As we get closer to the Victory Over Parkinson's Komano Kodo trek in Japan, Parkinson's Association of San Diego's Director of Operations Jeff Seckendorf takes a look back on the prior five treks and a look forward to the upcoming Japan trek. Jeff gives us a first hand look at what it takes to complete one of these trips while living with Parkinson…

"Power Over Parkinson's" international trek number six! Nurse Practitioner Sherrie Gould has, over the past 14 years, led people with Parkinson's on fundraising treks to Kilimanjaro, Mt. Everest Base Camp, Machu Picchu, The Camino de Santiago, the Dolomites, and now, coming up in May 2024, the Kumano Kodo in Japan. Funds raised on this trip support…

In this episode Phil Goodrich, Parkinson's Association of San Diego Board member, continues his story of his journey with DBS. Today Phil looks back on his Parkinons's diagnosis and some of the physical, emotional, and family issues that surrounded it.על ידי Parkinson's Association of San Diego

In this episode Parkinson's Association of San Diego board member Phil Goodrich continues his story about his journey with DBS. Still a few weeks before surgery, Phil explores more about his personal journey with the decision, and the process, of getting deep brain stimulation implanted. https://parkinsonsassociation.org/…

In this episode of our Microcast Series, PASD Board member Phil Goodrich continues his story of his journey with DBS. Today Phil looks a bit more at what led him to DBS and what his process will look like. Watch for future episodes as Phil takes us with him through his prep, surgery, recover, and outcome.…

Beginning January 1, 2024 Scripps Clinic and Scripps Coastal will stop accepting Medicare Advantage plans. This leaves all Scripps patients on Medicare Advantage are facing some kind of change, and that change must be decided on by December 7, 2023. This 30-minute interview is with Sophie Exdell of HICAP – Health Insurance Counseling and Advocacy P…

Phil Goodrich, Parkinson's Association of San Diego board member, is about to undergo deep brain stimulation surgery. What makes Phil's DBS journey unique is that he is going to take us along with him. Phil will be recording short microcast episodes as he prepares for surgery, goes through the surgery, then goes through the programming process. In …

The Parkinson's Association of San Diego has just released an education program for mental health professionals – social workers, clinical psychologists, and marriage and family therapists. As we recorded the interviews for this program we asked each person why they work with the Parkinson's community – what makes it rewarding. In this short episod…

Deep brain stimulation is becoming a more and more popular treatment for some of the symptoms of Parkinson's disease. In this episode we speak with Anna Manor of Boston Scientific. Boston Scientific is one of the three companies providing most of the DBS equipment to Parkinson's patients. Anna talks about the new technologies Boston Scientific has …

The 6th World Parkinson's Congress wrapped up a few days ago in Barcelona and as we all return to our lives in San Diego we caught up with Nurse Practitioner Sherrie Gould to get her thoughts on being together with thousands of people all living with Parkinson's or trying to find a way to make living with Parkinson's easier. Or, better yet, find a …

What are the benefits of having the administrative team from the Parkinson's Association of San Diego in Barcelona at the 6th World Parkinson's Congress? In this episode PASD Executive Director Chris Buscher give us his perspective on those benefits.על ידי Parkinson's Association of San Diego

Meet Parkinson's advocate Ben Stecher. Ben was diagnosed with Parkinson's in 2013 at age 29 and almost immediately realized that he had to learn as much about Parkinson's as humanly possible. His drive and tenacity led him to all corners of the world meeting with the most renowned experts – scientists, researchers, doctors, authors, and advocates. …

The 6th tri-annual World Parkinson's Congress opened yesterday in Barcelona, Spain. Executive Director Chris Buscher, board member Lisa Evans, and Director of Operations Jeff Seckendorf are all at the WPC for different reasons. In this short, first episode from Spain, Jeff talks with Lisa about some of the chaos associated with getting the Mentor P…

In this episode we explore biofeeback and neurofeedback with Lisa Tataryn. Lisa is a Clinical Neuroscientist at the SMARTPD Program focusing on computational brain modeling for non-invasive interventions for tracking and managing Parkinon’s symptoms. She is a board-certified Neurofeedback practitioner and a Certified Functional Medicine Health Coac…

In this short episode Dr. Joanne Hamilton, neuropsychologist at the Scripps Clinic Medical Group, tells us a little about some of the rewards of working with people with Parkinson's. Click here to contact the Parkinson's Association of San Diego.על ידי Parkinson's Association of San Diego

Technology with DBS, or Deep Brain Stimulation, is advancing as fast as any tech these days. In this episode we speak with Shawn McMenamin of Abbott Pharmaceuticals and Nurse Practitioner Sherrie Gould of Scripps Clinic about some of this new technology, including Abbott's "Virtual Clinic," also known as remote programming. Hear about the benefits …

The Parkinson's Association of San Diego is hosted its "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108. Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed by Q&A…

What is a social worker? How can a social worker benefit someone living with Parkinson's. What is the difference between a social worker and a psychologist? Do social workers do therapy or counseling? In this episode Licensed Clinical Social Worker Adirana Gonzlez addresses these questions and much more as we discuss finding, and working with, a so…

The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108. Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed …

The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108. Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed …

The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on Wednesday, March 1st from 1 p.m. to 3 p.m. at the First United Methodist Church, 2111 Camino Del Rio South, San Diego, CA 92108. Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the seminar is a 2-hour session followed …

EN ESPAÑOL – Asociation de Parkinson Episodio #72 - Cindy Lopez de Renue Health con Lisbeth Garces. Reneu Health, es un equipo de kinesiólogos clínicos con experiencia en ejercicios preventivos y de rehabilitación para personas mayores y personas con Parkinson. En este episodio Lisbeth habla con Cindy Lopez de los beneficios de un programa de ejer…

In this episode we meet Slim Shaky, also known as Joni Lowe. Joni's son, Sequoia, made the video with Joni and her friend, Heather Kennedy. "SLIM SHAKY is a Parkinson's rap anthem that captures the struggle and the strength of two vibrant women who live with it every day." From Sequoia: "I made SLIM SHAKY to give people with Parkinson's a voice, to…

על ידי Parkinson's Association of San Diego

Medtronic's Pat McDonnell has been working with Deep Brain Stimulation technology for over 20 years. In this episode Pat offers his thoughts on DBS and gives us his perspective on being an exhibitor at the Parkinson's Association of San Diego's Empowerment Day. For more information on DBS from Medtronic, click here. http://www.medtronic.com/DBS For…

In this episode we're joined by Emory D'Andrea, a Speech Language Pathologist and certified LSVT LOUD/eLOUD provider at Carmel Mountain Rehabilitation and Healthcare Center. Emory gives us some insights into how the LSVT LOUD and eLOUD programs can help anyone with Parkinson's who is finding their voice becoming a bit more quiet. Emory can be reach…

YOPD, or young onset Parkinson's disease, affects those diagnosed with Parkinson's in their 20's, 30's, 40's and 50's. In this episode support group leader Trace Hill introduces us to "Park's on the Park," San Diego's YOPD support group, and some of the ways anyone who was diagnosed at a younger age can benefit from meeting with other's with YOPD. …

Meet Matt Soto, the director of the San Diego State University Adaptive Fitness Clinic. Serving those with minor to severe disabilities, the SDSU Adaptive Fitness Clinic is a community outreach program through the School of Exercise and Nutritional Sciences at San Diego State University. Founded in 1983, the Fitness Clinic serves those from the San…

The 2022 Power Over Parkinson's Dolomite Mountain Trek in Italy is over, but the hikes and events of that week will stay with all of us for a lifetime. I had the most incredible experience hiking for the week with Alex Trepte, one of the four people on the trek with Parkinson's. Alex has this thing – he runs at the end of every hike. And for someon…

We survived our first hike in snowy, icy, and very cold conditions. On this day, the whole team rose to the occasion – dressed properly, waling carefully, helping each other, we made a steep descent and arrived at our first coffee stop of the day. With this team, coffee (and bombardinos – a rum, eggs, and whipped cream drink) are always a welcome t…

IT'S SNOWING ON THE MOUNTAIN! We woke up to an unexpected four inches of snow covering the mountain. In this short episode we hear from the team at breakfast as each person looks forward to the excitement of the day. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the …

In this short episode Gina Lupino, one of our amazing Parkinson's patients on the Dolomite trek, looks at some of the challenges she faces in the mountains, including finding a private place to pee, and talks about the inspiration of the other three people hiking with Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Die…

Will Kauffmann, now living in Luxembourg, joined the Power Over Parkinson's trek to support his long time family friend John Crawford, but now also has a very personal connection to Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate o…

In this short episode, and with about six hours of hiking still in front of us, Francie Barron talks about why she has joined her second Power Over Parkinson's trek and how she is inspired by the people on the trek with Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click…

Day three: meet John Crawford, one of our trekkers with Parkinson's. In this short episode John tells us why he travelled to Italy to join the Power Over Parkinson's trek. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the …

Day three: in this episode Lisa Graham tells us what brought her to her third Power Over Parkinson's trek. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's c…

On our day three hike, Alex Trepte, another of our hikers with Parkinson's, talks about how hard it can be to accept help, even though everyone around him is willing to offer it. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one …

And we're ready to go on day two! After a long introduction to the Dolomites yesterday, the team is gathered at the start for day two, a shorter, more gentle hike than day 1. In this episode we check in with a few of the team members just minutes before we start. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are …

One of our amazing guides, Anna Vecellio Del Monego of Dolomite Treks, offers her take on the team, the motivation, the determination, and the joy she gets from guiding this powerful team of people with Parkinson's and those connected to people with Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are s…

Day 1 of the Power Over Parkinson's Dolomites Trek is in the books. 20 km/about 12.5 miles and 3600 feet of vertical gain, this was a tough hike for anyone regardless of Parkinson's. In this short episode, nurse practitioner Sherrie Gould looks at the power of the team as we made our up and down narrow challenging terrain. This trek is a fundraiser…

Half way through our day one hike, Elena Andrew gives us a little insight on why she continues to travel the world for these Power Over Parkinson's mountain treks. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. …

We are hiking! With about half the team assembled in Cortina we did our first acclimatization hike to a spectacular refugio overlooking the whole valley. Today we all got a look at just how powerful these mountains are. The trek officially starts with a welcome dinner tomorrow, then our 8-day adventure begins. The magic of this trek is being with t…

We are one flight away from Italy. Jeff, Sherrie, and Marilyn are meeting up with most of the Dolomites team members tomorrow. In this episode we take a final look back at the 2013 Mt. Everest Base Camp trek with three short clips: Sherrie talking about a medical condition that caused two of our team to turn around just one day shy of Base Camp; a …

After four years of planning and three years of cancellations we are finally on our way to Italy and the Dolomite Mountains. In this short episode your podcast host Jeff Seckendorf, Nurse Practitioner Sherrie Gould, and trekker Marilyn McCrary are close to boarding an airplane for Italy. Listen in as we are now just a few hours from joining the res…

The Dolomite team is on its way! This trek, in support of the Parkinson's Association of San Diego, starts in a few days as team members are making their way to Cortina, Italy. In this episode we take another look back to 2013 and the trek to Mt. Everest Base Camp, this time hearing from father and son team Alan and Adam Truitt along with a clip fr…

During this episode, as we make our last few days of preparation for the Dolomite Trek, we are joined by nurse practitioner Sherrie Gould for a look back at trek number two to Mt. Everest Base Camp in 2013. Listen in as Sherrie describes that team's reaction to seeing Mt. Everest for the first time and then looks ahead to talk about the training th…

We're going to the Dolomites! After years of delays due to the pandemic, the trek is finally happening. The team starts to arrive in Italy this Friday, September 9, 2022. We will be recording daily microcasts during the trek and, as a bit of a teaser, in this episode and the next few we will rerun some of the microcasts we recorded on the trek to M…

Balance – one of the most important issues in Parkinson's. In this episode doctor of physical therapy Megan George of NeuroLab360 defines balance and addresses some of the reasons balance can be challenging in Parkinson's. The Parkinson's Association of San Diego https://parkinsonsassociation.org NeuroLab360 https://www.neurolab360.com/…

Continuing our short series on balance in Parkinson's, in this episode doctor of physical therapy Kristine Negrete of NeuroLab360 looks at some of the ways physical therapy can help with balance issues for anyone living with Parkinson's. The Parkinson's Association of San Diego https://parkinsonsassociation.org NeuroLab360 https://www.neurolab360.c…

Dual tasking, or doing more than one thing at a time, can be a challenge for many of us, but more so with Parkinson's. In this episode doctor of physical therapy and co-founder of NeuroLab360, Kristine Negrete, looks at some of the ways they can help people with Parkinson's multi-task. The Parkinson's Association of San Diego https://parkinsonsasso…