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The 2022 Power Over Parkinson's Dolomite Mountain Trek in Italy is over, but the hikes and events of that week will stay with all of us for a lifetime. I had the most incredible experience hiking for the week with Alex Trepte, one of the four people on the trek with Parkinson's. Alex has this thing – he runs at the end of every hike. And for someon…
 
We survived our first hike in snowy, icy, and very cold conditions. On this day, the whole team rose to the occasion – dressed properly, waling carefully, helping each other, we made a steep descent and arrived at our first coffee stop of the day. With this team, coffee (and bombardinos – a rum, eggs, and whipped cream drink) are always a welcome t…
 
IT'S SNOWING ON THE MOUNTAIN! We woke up to an unexpected four inches of snow covering the mountain. In this short episode we hear from the team at breakfast as each person looks forward to the excitement of the day. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the …
 
In this short episode Gina Lupino, one of our amazing Parkinson's patients on the Dolomite trek, looks at some of the challenges she faces in the mountains, including finding a private place to pee, and talks about the inspiration of the other three people hiking with Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Die…
 
Will Kauffmann, now living in Luxembourg, joined the Power Over Parkinson's trek to support his long time family friend John Crawford, but now also has a very personal connection to Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate o…
 
In this short episode, and with about six hours of hiking still in front of us, Francie Barron talks about why she has joined her second Power Over Parkinson's trek and how she is inspired by the people on the trek with Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click…
 
Day three: meet John Crawford, one of our trekkers with Parkinson's. In this short episode John tells us why he travelled to Italy to join the Power Over Parkinson's trek. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the …
 
Day three: in this episode Lisa Graham tells us what brought her to her third Power Over Parkinson's trek. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. All the donations stay within the San Diego Parkinson's c…
 
On our day three hike, Alex Trepte, another of our hikers with Parkinson's, talks about how hard it can be to accept help, even though everyone around him is willing to offer it. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one …
 
And we're ready to go on day two! After a long introduction to the Dolomites yesterday, the team is gathered at the start for day two, a shorter, more gentle hike than day 1. In this episode we check in with a few of the team members just minutes before we start. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are …
 
One of our amazing guides, Anna Vecellio Del Monego of Dolomite Treks, offers her take on the team, the motivation, the determination, and the joy she gets from guiding this powerful team of people with Parkinson's and those connected to people with Parkinson's. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are s…
 
Day 1 of the Power Over Parkinson's Dolomites Trek is in the books. 20 km/about 12.5 miles and 3600 feet of vertical gain, this was a tough hike for anyone regardless of Parkinson's. In this short episode, nurse practitioner Sherrie Gould looks at the power of the team as we made our up and down narrow challenging terrain. This trek is a fundraiser…
 
Half way through our day one hike, Elena Andrew gives us a little insight on why she continues to travel the world for these Power Over Parkinson's mountain treks. This trek is a fundraiser for the Parkinson's Association of San Diego so. If you are so inclined, feel free to click here or on the link below to donate on behalf of one of the hikers. …
 
We are hiking! With about half the team assembled in Cortina we did our first acclimatization hike to a spectacular refugio overlooking the whole valley. Today we all got a look at just how powerful these mountains are. The trek officially starts with a welcome dinner tomorrow, then our 8-day adventure begins. The magic of this trek is being with t…
 
We are one flight away from Italy. Jeff, Sherrie, and Marilyn are meeting up with most of the Dolomites team members tomorrow. In this episode we take a final look back at the 2013 Mt. Everest Base Camp trek with three short clips: Sherrie talking about a medical condition that caused two of our team to turn around just one day shy of Base Camp; a …
 
After four years of planning and three years of cancellations we are finally on our way to Italy and the Dolomite Mountains. In this short episode your podcast host Jeff Seckendorf, Nurse Practitioner Sherrie Gould, and trekker Marilyn McCrary are close to boarding an airplane for Italy. Listen in as we are now just a few hours from joining the res…
 
The Dolomite team is on its way! This trek, in support of the Parkinson's Association of San Diego, starts in a few days as team members are making their way to Cortina, Italy. In this episode we take another look back to 2013 and the trek to Mt. Everest Base Camp, this time hearing from father and son team Alan and Adam Truitt along with a clip fr…
 
During this episode, as we make our last few days of preparation for the Dolomite Trek, we are joined by nurse practitioner Sherrie Gould for a look back at trek number two to Mt. Everest Base Camp in 2013. Listen in as Sherrie describes that team's reaction to seeing Mt. Everest for the first time and then looks ahead to talk about the training th…
 
We're going to the Dolomites! After years of delays due to the pandemic, the trek is finally happening. The team starts to arrive in Italy this Friday, September 9, 2022. We will be recording daily microcasts during the trek and, as a bit of a teaser, in this episode and the next few we will rerun some of the microcasts we recorded on the trek to M…
 
Balance – one of the most important issues in Parkinson's. In this episode doctor of physical therapy Megan George of NeuroLab360 defines balance and addresses some of the reasons balance can be challenging in Parkinson's. The Parkinson's Association of San Diego https://parkinsonsassociation.org NeuroLab360 https://www.neurolab360.com/…
 
Continuing our short series on balance in Parkinson's, in this episode doctor of physical therapy Kristine Negrete of NeuroLab360 looks at some of the ways physical therapy can help with balance issues for anyone living with Parkinson's. The Parkinson's Association of San Diego https://parkinsonsassociation.org NeuroLab360 https://www.neurolab360.c…
 
Dual tasking, or doing more than one thing at a time, can be a challenge for many of us, but more so with Parkinson's. In this episode doctor of physical therapy and co-founder of NeuroLab360, Kristine Negrete, looks at some of the ways they can help people with Parkinson's multi-task. The Parkinson's Association of San Diego https://parkinsonsasso…
 
Physical therapy has traditionally been prescribed and paid for within the hospital and insurance company setting. But NeuroLab360 has chosen a different model for PT services. NeuroLab360 is a non-profit provider of physical therapy, founded by three doctors of physical therapy. In this episode, co-founder Meagan George looks at the advantages of …
 
Everyone connected to Parkinson's knows how important exercise is in helping to manage the symptoms and slow the progression of the disease. But some of the most critical stages in any structured exercise program are rest and recovery. The time between exercise sessions is where "adaptation" occurs. Adaptation is the strengthening of the muscles in…
 
How much do you really eat? If you are managing your weight, or exercising more than before, or you're just curious, tracking your intake in a food diary is a great way to get a clear picture of your diet. In this episode registered dietitian (and Parkinson's Association of San Diego board member) Marty Acevedo looks at the ins and outs of tracking…
 
"Aging up" is inevitable. Retirement may be inevitable. Many of us completely identify with our jobs and careers as our "purpose." But when that job, or career, goes away, how do you continue to find purpose in your life? In this episode Partner in Aging's Jonathan Schwartz looks at the power and joy that comes from finding purpose at any stage in …
 
Doing two things at once – something we all do, but also something that can be more challenging with Parkinson's Disease. NeuroLab360 co-founder Jessie Agrimis, DPT, looks at some of the ways a physical therapist can help train the brain to multi-task. https://www.neurolab360.com/ https://parkinsonsassociation.org/…
 
Parkinson's Association board member Lisa Evans is also a PASD mentor, guiding "mentees" through their journey with Parkinson's. In this episode Lisa gives us some insight on the mentor program from the perspective of a mentor – what she gets out of being a mentor who can help others as they navigate and embrace life with Parkinson's. For more info…
 
One of the crazy things about Parkinson's disease is that no two people with Parkinson's are alike. The disease manifests differently in each person. In this episode Lisa Evans, Parkinson's Association of San Diego board member and newly diagnosed with young onset Parkinson's, takes us through her exercise regime. Lisa's program is not necessarily …
 
Exercise. It's still the only therapy known today that can slow the progression of Parkinson's disease. One of the exercise options that is taking the Parkinson's community by storm is Rock Steady Boxing. In this episode Mike Reeder of Rock Steady Boxing Downtown (San Diego) gives us some insights on boxing, having fun, and training like a tough fi…
 
The diagnosis of Parkinson's is, generally, life-changing. But it's not all bad. In this episode Dr. Abigail Lawler offers some guidance for the newly diagnosed and their care partners.על ידי Parkinson's Association of San Diego
 
With a Parkinson's diagnosis, home safety becomes an issue, particularly if falling manifests as a symptom. In this episode Paige Hargis, who works for the Trauma Service at Scripps Memorial Hospital in LaJolla as the Injury Prevention and Community Outreach Coordinator, looks at some of the options and resources to make a home safer. Resources: Pa…
 
Care partners of people with Parkinson's: these are people with angel wings. But one of the traps of taking care of someone with Parkinson's is not taking care of yourself. In this episode Jessie Agrimis, DPT, looks at some of the ways care partners can be good to themselves, can stay strong, so everyone can lead stronger, healthier, happier lives.…
 
Dementia. This is a very difficult topic in Parkinson's, both for the person who is starting to experience dementia and for the person caring for their loved one. In this episode Dr. Abigail Lawler, movement disorder specialist and medical director of the Parkinson's Association of San Diego, looks at some of the day to day issues faced by both peo…
 
Downsizing. Is the idea terrifying? Or something to look forward to? Gerontologist Jonathan Schwartz looks at the challenges and upsides – along with some available resources – of moving into a smaller, easier to manage space. Jonathan is the founder of Partner in Aging: https://partnerinaging.com/ Check out the Resource Center on the Parkinson's A…
 
Entering a hospital, for any reason, is almost aways stressful, and that's compounded if you have Parkinson's. In this episode Dr. Abigail Lawler, movement disorder specialist and medical director of the Parkinson's Association of San Diego, looks at some of the concerns for a care partner and has some guidance on managing the early stages of a hos…
 
We've heard from everybody – doctors, nurse practitioners, dietitians, coaches, personal trainers – why it's so important for people with Parkinson's to exercise. In this episode Jessie Agrimis, DPT and co-founder of NeuroLab360, gives us a physical therapist's perspective on why it's critical that people with Parkinson's have a consistent exercise…
 
Each year the Parkinson's Association of San Diego holds a 5K walk at Liberty Station in San Diego. In this episode, 2022 walk chair Lisa Evans gives us a short look at the reasons we hold the Walk, some of her expectations, and some of the amazing stories she's seen at prior Walks. To register for the 2022 5K Walk, click here: https://raceroster.c…
 
When people think about weight management, usually it's related to weight loss. But in Parkinson's it might be more important to maintain or even add weight. Registered dietitian and nutritionist Marty Acevedo discusses managing your weight while living with Parkinson's. https://parkinsonsassociation.org/…
 
What happens if you have Parkinson's and you're in physical therapy and your insurance for PT runs out. This is often a difficult situation if you get to a point where you are benefiting from PT but your insurance company says your PT is no longer medically necessary. In this episode Jessie Agrimis, DPT and co-founder of NeuroLab360 addresses this …
 
NeuroLab360 – a non-profit rehabilitation and wellness center specializing in working with those with neurological challenges such as Parkinson's disease – has opened in San Diego. Founder and president Jessie Agrimis, DPT spent a few minutes with us to describe the facility, the services, and the reasons she and her partners opened NeuroLab360. ht…
 
Peeing. Another topic that if you are living with Parkinson's, you've probably talked about. Urinary issues are common in Parkinson's and here to give us a brief overview is Nurse Practitioner Sherrie Gould. https://parkinsonsassociation.org/על ידי Parkinson's Association of San Diego
 
Oral dopamine – one of the most common prescribed drugs for people with Parkinson's. But how do you best manage taking the dopamine with your meals? Registered dietitian Marty Acevedo looks at timing your food intake – particularly protein – with your Carbidopa/Levodopa. https://parkinsonsassociation.org…
 
It might not be for everyone, but there is some research that fasting could have some benefit for people with Parkinson's. Registered Dietitian Marty Acevedo takes an objective look at fasting – what is it, what are the benefits, what are the risks. https://mentors.parkinsonsassociation.org/על ידי Parkinson's Association of San Diego
 
Normally, when we talk about weight loss, we're talking about trying to lose weight. But that's not always the case, especially if you're living with Parkinson's disease – it may be that you need to put some weight back on. For more on managing weight with Parkinson's, here is nurse practitioner Sherrie Gould. https://parkinsonsassociation.org…
 
One of the diets that has been in the news recently is the keto diet. This is a nutritional plan that involves eating fats as a high percentage of your daily intake, putting your body into a state of ketosis. However, this is not without its downfalls and dangers. Here to give us an honest look at the keto diet is registered dietitian Marty Acevedo…
 
Sleep. Is it your favorite thing? Or is it elusive. Sleep disorders can be part of Parkinson's, and here to tell us a bit more about dealing with sleep dysfunction is nurse practitioner Sherrie Gould. https://parkinsonsassociation.org/על ידי Parkinson's Association of San Diego
 
What you eat is so important to your health regardless of whether you have Parkinson's. In this episode Marty Acevedo, a Registered Dietician and Nutritionist and a board member of the Parkinson's Association of San Diego, looks at the Mediterranean diet and some of its advantages for anyone living with Parkinson's. https://parkinsonsassociation.or…
 
Although everyone with Parkinson's can experience different symptoms, as no two cases of Parkinson's are identical, some of the common symptoms are quiet speech, difficulty swallowing, and occasional drooling. In this episode nurse practitioner Sherrie Gould takes a look at those three symptoms and some of the things your medical providers can do t…
 
The Parkinson's Association of San Diego's website is filled with information that can help every person living with Parkinson's and their families and care partners. In this episode, Executive Director Chris Buscher takes us through some of the highlights of the website. https://parkinsonsassociation.org/…
 
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