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Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Learn more about Brain Tumour Foundation of Canada’s resources, programs, and services for people affected by a brain tumour. Visit www.BrainTumour.ca.
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Let's Talk About Brain Tumours

The Brain Tumour Charity

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Join us as we talk about all things brain tumours with those who have been diagnosed, their friends, parents, partners and children as well as with researchers, fundraisers and advocates. Find out how The Brain Tumour Charity is working to improve outcomes for those who are diagnosed with this unforgiving disease. Please Note: We recognise that everyone's experience's are unique. Our guests are sharing their own personal experiences of diagnosis, treatment and care. These may differ from you ...
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Aunty M Brain Tumours Talk Show - A podcast sharing inspiring stories of brain tumour survivors. Join our supportive community for heartfelt interviews, insights from medical experts, and empowering tales of resilience. Tune in, be inspired, and spread awareness on the path of brain tumour recovery. I’d love for you to join me on the podcast. If you have a story to share, advice to give, or just want to be part of the conversation, please reach out! Your voice could be the one that someone e ...
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tumour, tumour, on the wall

hope love cancer

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Cancer is more than a diagnosis! It is a reality that reshapes lives in ways big and small. In this podcast series, we share the deeply personal journey of Rosemarie and her caregiver. Through the ups and downs, the triumphs and challenges, we’ll uncover what it’s really like to navigate life with cancer - beyond the medical terms and into the human experience. We will explore the highs and lows, the triumphs and challenges, as we navigate the various stages of the cancer experience. You wil ...
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In this episode, we'll hear from four of our much-valued Involvement Champions : Rebecca, Oriana, Claire and Mark. We recorded their presentations to the whole organisation as they explained why they wanted to become key voices in the brain tumour community. (Trigger warning, they talk about diagnosis and mental health issues, and their stories are…
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Welcome back, everyone! In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience a…
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Welcome back, everyone! In this episode, our host Ben Seewald chats with Patrick, a Registered Nurse and a brain tumour survivor. Having just started nursing school, Patrick shared his experiences facing a brain tumour as a young adult and balancing care, recovery and coursework. Together, they discuss Patrick’s journey of strength and resilience a…
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After weeks of toil and training, The TCS London Marathon 2025 is just around the corner and The Brain Tumour Charity has 145 runners taking part this year - more than ever before! Our Involvement Champion Imelda Turnock speaks to two of them - Barbara Prodger and David Barrow - about their reasons for running. But first, Andy Tudor gets some insid…
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In this deeply personal episode, Julia opens up about her father’s diagnosis with astrocytoma, a type of brain tumour, and how it reshaped her family and her understanding of invisible disabilities. Julia shares the emotional rollercoaster of discovering her dad’s condition—initially hidden until chemotherapy made it undeniable. She reflects on how…
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In this powerful episode, Victoria shares her deeply personal journey of being diagnosed with a meningioma brain tumour in June 2017. What began as a few "funny five minutes" quickly escalated into a life-alteringdiagnosis. She opens up about the emotional and physical challenges she faced, including a moment when she couldn't recall her own daught…
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Sarah’s life changed in an instant when she experienced a grand mal seizure. The cause? An oligodendroglioma grade two brain tumour. Facing the unknown, she underwent awake brain surgery, remaining calm in a situation that would shake most. Post-surgery, she found healing through positivity, spirituality, and self-education, even watching brain sur…
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In this episode, Michelle shares her journey with oligodendroglioma grade 2, a brain tumour she was diagnosed with in 2010 following a grand mal seizure. Despite the challenges, she gave birth to a healthy daughter and found strength in her community. Michelle opens up about her experiences with surgery, radiation, and the lasting effects of an acq…
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In this episode of Aunty M Brain Tumours Talk Show Podcast, Madi shares her powerful journey with an oligodendroglioma grade two brain tumour. Her story begins with unexpected seizures that led to a life-changing MRI. Initially told her tumour was slow-growing and not a major concern, Madi's move to a new province meant navigating a complex healthc…
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In this episode, Christine shares her journey with angiomatous microcystic meningioma, a diagnosis that profoundly impacted her daily life. She opens up about the significant symptoms she faced, the emotional toll of waiting for surgery, and the relief of finally receiving treatment. Christine describes how surgery brought noticeable improvements b…
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In this powerful episode, Imogen shares her journey of love, loss, and resilience after her husband, Wayne, passed away from glioblastoma in May 2024. Together since their teens, Imogen and Wayne built a life filled with music, family, and dreams for the future. But in early 2022, their world changed when Wayne began experiencing unexplained sympto…
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At just 20, Steph Still’s life changed forever. Unusual symptoms led to a devastating diagnosis— Ependymoma. Surgery was her only option, followed byRadiotherapy, but it came with a heavy price. She had to relearn how to move, how to speak… how to live. The battle didn’t end in the operating room. With a paralyzed vocal fold and a long road to reco…
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Claire Harris shares her emotional journey on the podcast, recalling the terrifying moment her son Jake was diagnosed with a brain tumour at just four years old. Initially misdiagnosed, it was a persistent health visitor who helped fast-track the MRI that changed everything. From major brain surgery to a surprisingly quick recovery, Claire reflects…
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Israr Jan-Parker shares her journey of being diagnosed with a brain tumour, the emotional and physical challenges she faces, and her determination to raise awareness and funds for Brain Tumour Research and The Brain Tumour Charity. She discusses the various challenges she undertakes to support the charities and her hope for future advancements in t…
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In 2017, Vicki was diagnosed with an astrocytoma after battling severe migraines and vision issues. She faced surgery, complications, and an awake craniotomy with remarkable resilience. Despite the tumour growing to Grade 3, she endured chemotherapy, radiotherapy, and seizures—all while holding onto hope for her daughter. Now, her tumour is shrinki…
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Maria Peta was diagnosed with a meningioma on New Year’s Eve 2009 after her initial symptoms were misdiagnosed as migraines. A second opinion revealed a golf ball-sized tumour, changing the course of her life. As she navigated the fears and uncertainties leading up to surgery, she used humour to cope.The operation marked the beginning of a long rec…
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In this inspiring episode, Kiera Mitchell shares herpowerful story of resilience after being diagnosed with a Medulloblastoma brain tumour at just 19, and left her with mobility issues. She talks about her challenges of rehabilitation and how fitness became a crucial part of her recovery. From struggling with mobility to regaining independence, Kie…
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Katie Smith shares her journey of being diagnosed with an oligoastrocytoma, the challenges she faced with treatment and recurrence, and her ongoing battle with uncertainty and grief. She discusses her advocacy for brain tumour research and the impact of her experiences on her family. Katie emphasizes the need for awareness and the emotional complex…
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Madi Ruby, has been living with a brain tumourfor more than half of her life. First diagnosed at 23 in 1995 with a 6cmmeningioma, she underwent surgery and built a successful career in TV sales andIT, all while raising her son with her husband, Neil. But in 2013, her tumourreturned—this time with multiple growths. Despite setbacks, Madi refused to …
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Through the eyes of her parents, we witness Amani’s heartbreaking yet powerful journey with Glioblastoma Multiforme Amani's strength never wavered from the first symptoms to the desperate fight for treatment. She dreamed of making a difference, and she did that —her #WalkofHope and #Chat2Amani were just the beginning. Even after her passing, Amani’…
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Steve Blake was diagnosed with an inoperable meningioma. For 18 months, he battled misdiagnoses before finally hearing the words "You have a brain tumour." The emotional toll of brain surgery and the harsh reality of recovery tested him in ways he never imagined. Brain surgery was just the beginning—he had radiotherapy, and the challenge of rebuild…
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Julia’s world changed with an incidental finding—a sphenoid wing meningioma that doctors said could never be fully removed. From the emotional toll of diagnosis to the complexities of brain surgery, radiotherapy, and Gamma Knife treatment, her journey has been anything but easy. Yet, through it all, she’s leaned on community, humour, and resilience…
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Matthew Warne shares his journey with glioblastoma multiforme (GBM), detailing his initial diagnosis, treatment experiences, and the emotional and physical challenges he faced. He discusses the importance of mental resilience,exploring alternative treatments, and making lifestyle changes to cope with the disease. Matt emphasizes the significance of…
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In this heartfelt interview with Sarah Long, we learn abouther son Oscar, a young boy full of life and promise. Oscar was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a rare and devastating brain tumour. His initial symptoms— a tilted head and memory issues—marked the beginning of afight no family should ever have to endure. Throughout h…
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Ryan Vest shares his journey of battling an Astrocytoma, a brain tumour, detailing the challenges he faced from diagnosis to recovery. He recounts the misdiagnoses, three surgeries, and the long road to rehabilitation, emphasizing the importance of mental health and support systems throughout his experience. Ryan highlights the significance of sett…
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Nicki Hopkins shares her emotional journey following her husband David, also known as 'Did', diagnosed with a brain tumour. She recounts the initial symptoms, the diagnosis of a glioblastoma multiform, and the challenges her family faced. Nicki discusses the importance of quality of life, her coping mechanisms through fundraising, and the impact of…
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Matthew Lawford shares his personal journey with an Oligodendroglioma diagnosis, detailing the challenges of living with seizures, the realities of tumour treatment, and the importance of maintaining a positive outlook in the face of adversity. His story emphasizes resilience, the impact of mental health on physical well-being, and the power of pos…
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Stephanie Day talks about her son George, who was diagnosed with a Choroid Plexus, a type of brain tumour, at merely 10 weeks old. Stephanie talks about receiving the diagnosis, the hurdles of surgery, and the ongoing process of understanding and supporting George's developmental requirements, including autism. Throughout the story, she talks about…
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Mel Hennessy's emotional journey from the moment shereceived her brain tumour diagnosis to her recovery process. It highlights the challenges she faced as a new mother, the medical hurdles she navigated, and the emotional turmoil that accompanied her diagnosis and treatment. Mel's storyis about resilience, love, and the struggle to maintain normalc…
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Sarah shares her journey of being diagnosed with a right frontal lobe oligodendroglioma. She recounts the struggles of misdiagnosis, the emotional turmoil of living with an inoperable brain tumour, and the challenges of navigating treatment options. Sarah emphasizes the importance of support systems, therapy, and personal growth throughout her expe…
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Neil Parker shares his personal journey of being diagnosed with GBM Glioblastoma Multiforme, detailing the initial symptoms, the shock of the diagnosis, and the subsequent treatment options he explored. He emphasizes the importance of lifestyle changes, support from loved ones, and maintaining a positive outlook on life despite the challenges of li…
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Cat talks about her brain cancer journey and of dealing with a brain tumour diagnosis, exploring the medical challenges faced, the emotional toll on the individual and their family, and the importance of raising awareness about such conditions. It highlights the resilience required to navigate treatment and the crucial support systems in coping wit…
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Will Roth shares his journey of being diagnosed with an anaplastic astrocytoma in 2016, navigating treatment, and the emotional and physical challenges he faced. He emphasizes the importance of palliative care, support systems, and advocacy for brain cancer awareness. Will also discuss fertility considerations during treatment and express hope for …
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In this conversation, Adam Gouldson shares his personaljourney of being diagnosed with a right Sphenoid Meningioma. He discusses the emotional and physical challenges he faced during diagnosis, treatment, and recovery. Adam emphasizes the importance of mental health, coping strategies, and finding positivity amidst adversity. He also provides pract…
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Ali shares her journey of being diagnosed with a Glioma, the challenges she faced in navigating the healthcare system, and the decisions she made regarding treatment options. She discusses her experiences with surgery, chemotherapy, and the importance of mental health and support systems during her recovery. Ali also emphasizes the need for more re…
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Sara Crosland shares her journey of being diagnosed with an acoustic neuroma brain tumour, the challenges she faced during recovery, and how she found strength through endurance sports. She discusses the impact of surgery on her daily life, the importance of community support for brain tumour survivors, and the founding of the Beyond Recovery Proje…
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Catherine Gladwyn shares her profound journey of dealingwith a pituitary tumour, starting from her initial symptoms of memory loss and hormonal changes to her eventual diagnosis and treatment. She discusses the challenges of navigating the healthcare system, the emotional impact of her condition, and the importance of finding support and purpose in…
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In this Aunty M Brain Tumours Talk Show episode, Claire Kelly shares her journey with a sphenoid wing meningioma. It all began in early 2020 when her cousin noticed swelling above Claire’s right eye. What followed was a long and challenging road to diagnosis, surgery, and ongoing treatment. Claire takes us through the emotional rollercoaster of wai…
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Our focus in this episode is on friendships and close bonds. How does a brain tumour diagnosis affect our loved ones and who can we turn to for support or advice when we don’t want to worry or upset those closest to us? To answer that question, Andy Tudor talks to five women who were all treated at the same hospital for the same meningioma diagnosi…
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A warm welcome to Let's Talk About Brain Tumours! After a break since the summer, we're back to bring you interesting and informative conversations with members of the brain tumour community and at The Brain Tumour Charity. A new production team is now at the helm, so bear with us while we learn the ropes of podcast production. But we're delighted …
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Today on Aunty M Brain Tumours Talk Show, Matthew White talks about his astrocytoma. In the months leading up to his diagnosis, Matthew noticed subtle signs of fatigue, but life was busy, and he brushed them off. Everything changed one evening during a football game when he experienced an intense and disorienting sensory episode—a seizure. Over the…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Lisa shares her Astrocytoma story. She began experiencing persistent headaches as a teenager. Initially attributing them to stress from her architecture studies, she sought massages, visited doctors, and even tried treatments for migraines, all without finding relief. It wasn’t until a sev…
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In this heartfelt episode of Aunty M Brain Tumours Talk Show, Sarah Kelly shares her powerful journey navigating life with an Anaplastic Astrocytoma, a grade III brain cancer. Diagnosed in 2021 during Melbourne's lockdown, Sarah reflects on the physical, emotional, and spiritual hurdles she overcame. From symptoms like hand weakness to the challeng…
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In this heartfelt interview on Aunty M Brain Tumours Talk Show, Teri Holmes shares her Meningioma journey, starting from the puzzling symptoms she faced during her college and university days to surviving six brain tumours and building a new life as a brain tumour survivor. With unwavering courage, determination, and a strong mindset, Teri turned h…
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Kiera Mitchell faced extraordinary challenges when she was diagnosed in 2020 with a medulloblastoma. Kiera underwent life-saving surgery to remove it. However, her journey didn’t end there. Following the operation, she developed Posterior Fossa Syndrome—a condition that left the right side of her body paralysed and significantly impacted her speech…
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In this powerful episode of the Aunty M Brain Tumours Talk Show, Lindsay Miller shares her brain tumour journey with Lhermitte-Duclos disease (also known as dysplastic gangliocytoma of the cerebellum) and hydrocephalus. These conditions led her through a series of life-altering surgeries and a profound shift in her life’s path. Follow Aunty M Brain…
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In this episode of the Aunty M Brain Tumours Talk Show, we listen to Lauren Papadopoulos Green, who courageously shares her journey with a Schwannoma, a rare brain tumour. From her first alarming symptoms at age 17 to the recent recurrence of her tumour, Lauren opens up about her diagnosis, surgery, and recovery. She also discusses the mental and e…
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Nicole McNamara shares her brain tumour journey. She went from a seemingly idyllic life to facing an Astrocytoma, a type of brain tumour. Nicole talks about her diagnosis, undergoing awake craniotomy, being a part of the Voracitinib trial and navigating the complexities of seizures and life decisions. Throughout her experience, she emphasizes the i…
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Send us a text What happens when the final goodbye is just the beginning of a new chapter of grief? Charlie discuss the emotional journey through grief after the loss of a loved one and also explains it through various models of grief. Renée also speaks in this episode, offering personal insights on honouring memories, finding comfort, and navigati…
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Send us a text Have you ever wondered how to say goodbye to someone you love? In this tender episode, Renée prepares to say goodbye to her mum, Rosemarie, with love and care. Despite the heartbreak, they celebrate Rosemarie's birthday, mixing tears with moments of joy and treasured memories. Join us as we honour a wonderful life and navigate the bi…
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