Fibromyalgia ציבורי
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Tired of being held prisoner in your own body? Tami Stackelhouse is an author and Master Certified Fibromyalgia Coach® who has gone from disabled to thriving. In this podcast, Tami brings together top fibromyalgia experts and advocates, creating a virtual dream team to help you take back control of your life and health. From doctors and researchers in the traditional medical setting, to coaches and providers of alternative and natural treatment options, this podcast will empower you to feel ...
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Mind Your Fibro podcast is dedicated to fibromyalgia.Dr. Olga Pinkston, the host and board-certified rheumatologist, discusses up-to-date information about fibro, its treatment, and the biology and psychology of this condition. It covers pain science education and the current complementary and alternative methods available to improve your symptoms. Many things influence the development of fibromyalgia, trigger fibro flares, and produce other symptoms like IBS/irritable bowel syndrome, depres ...
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Pain is a common complaint in the primary care setting, and the standard of practice is to assess for the cause of the pain. Patients often present with painful symptoms of unknown etiology that cannot be defined by the degree of inflammation or damage to muscle tissue. Fibromyalgia affects an estimated 10 million people in the United States and is especially common in women. Many patients have additional symptoms including fatigue, headaches, irritable bowel syndrome, cognitive problems/mem ...
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In this special bonus episode, I'm sharing a recent guest appearance I made on the Power in Motion Podcast hosted by Kim Hagle. Kim is a Certified Personal Trainer, Non-Diet Nutritionist and Body Image Coach – who’s on a mission to empower women to break free from tortuous exercise, restrictive eating and body shame, so they can free up their time,…
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“No matter how small, any type of advocacy you do will have an impact.” - Lily Garner According to the NIH, fibromyalgia affects 1 in 13 women in the US. That means about twice as many women are diagnosed with fibromyalgia as are diagnosed with colon cancer, and while you're not going to die from fibromyalgia, living with fibro pain and fatigue can…
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Have you ever wondered why some people have an easier time managing their fibromyalgia than others? We all have natural strengths and weaknesses and approach life in a unique way. Managing our fibromyalgia is no different. Our personalities play a central role in how we approach life and our fibromyalgia, and research has shown that our personality…
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You're probably aware of the need for more research funding to help us develop new treatments for fibromyalgia. You’re probably also aware of the lack of training most doctors have when it comes to fibromyalgia. But did you realize that the two are connected? Research not only uncovers new potential treatments but also shapes how and what medical s…
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GLP-1 medications like Wegovy, Ozempic, and Mounjaro are all the rage right now. Originally marketed as drugs to help diabetics with insulin resistance, they were later discovered to help people lose weight. With those possibilities, GLP-1 meds are positioned to revolutionize health in the US since about two-thirds of the population is either overw…
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“How do you propose we help low-income individuals with CFS and fibromyalgia? Self-care and wellness are rooted in privilege, choice, fellowship, support, time, and money to invest in themselves.” So many people living with chronic illnesses are forced to navigate the issue of how best to support themselves with limited resources. While you’ll ofte…
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Exercise is one of the foundational pillars of health, but with fibromyalgia, we have extra sensitive bodies and nervous systems, and we need to be gentle. That means finding the right exercise to meet our needs can be tricky. Today, Tami is excited to introduce you to a tool helping her feel even better and that she’s recently been obsessed with: …
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Welcome to the final episode of our special Be a Coach series. So far, I’ve answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgi…
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Rest is not a luxury. It’s required for healing your mind, body, and soul. A month and a half into the new year, everything around us is about making this your best year ever. From classes to articles, social media posts, and podcast episodes, there’s so much messaging about becoming a new and better version of yourself. While growth is a good thin…
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Welcome to episode 03 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. In episode one of the series, I explained what a Certified Fibromyalgia Advisor® is and what a Certified Fibromyalgia Coach® is. Episode two of the series…
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Most of us with fibromyalgia have to spend a lot of physical and emotional energy teaching the people in our lives about our condition. From friends and family to doctors and coaches, it can be draining. That’s just one of the ways working with a Certified Fibromyalgia Coach® transformational. It’s invaluable to have someone in your corner who know…
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Welcome to episode 02 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. I cover all the basics… the who, what, when, where, why, and even the how. Don’t understand what a Certified Fibromyalgia Coach® or Adviser is? No problem…
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As a master Certified Fibromyalgia Coach®, author, and fibro podcaster, the questions I’m asked more than any others are: How do I get better? How do I improve my Fibromyalgia so I can get back to living the life I want to live? While those sound like simple questions, they do not have simple answers. We all have similar symptoms, what helps you fe…
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“Taking action and being clear about what we expect does not have to be disrespectful.” - Meredith Holley It’s very common for people with invisible disabilities like fibromyalgia to experience workplace conflict and discrimination because of it. From snide remarks to outright harassment, it can feel so isolating and even make your symptoms worse. …
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We often underestimate what we can accomplish in a year. The goal can seem so massive that we think we’ll never get there and don’t even bother to try. That’s why it’s so important to hear stories of hope from people who have been where you are. There is so much you can do in a year; whether or not you go for it, the year will go by. It’s up to you…
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“You can only truly heal once you’ve accepted what's going on.” - Dr. Isabelle Amigues When you’re able to reflect on your fibromyalgia as a teacher, you stop fighting your body and put yourself in the best position to heal. Tami often describes fibromyalgia as the biggest gift life has given her. It’s a sentiment that can be difficult to understan…
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Family stories play a crucial role in shaping our beliefs about health, work, and other aspects of life. In previous episodes, we’ve talked about the way traumatic experiences can impact your health and fibromyalgia. Today, we’re taking it a step further and exploring how the traumatic events that happened to your ancestors can affect your wellbein…
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For a lot of us with fibromyalgia and other chronic illnesses, working on our fitness comes in bursts. We’re told exercise is good for us, but when we go out and do what ordinary people do, it’s too much, and we crash. Then, that cycle repeats itself over and over. Tami has found a tool that helped her and many of her students and coaches to shift …
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“How do you do it all?” This question came up during one of Tami’s Ask Me Anything sessions during our annual alumni retreat, and it was so good that she decided to bring it to the podcast. Before we get into the details, the short answer is Tami doesn’t do it all! At first glance, it’s easy to compare your life to what you see others doing. The pr…
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“No woman is going to get to 90 years old without having gone through menopause.” - Jeanne Andrus As women, society has trained us to be afraid of menopause. To view it as yet another trial we have to suffer through. The truth is that if you learn to accept it, menopause is a gift. And to take advantage of it, you need to support yourself through i…
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“The big rule of thumb is to do things that make you feel better.” - Dr. Izabella Wentz Adrenal dysfunction is a significant contributing factor to fibromyalgia, and over the years, we’ve never met someone with fibromyalgia who didn’t also need to heal their adrenals. For Tami, supporting her adrenals and correcting her adrenal function resulted in…
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“Whenever there's a lot of interest and dollars put into fibromyalgia research, patients only stand to benefit.” - Dr. Ginevra Liptan During the pandemic, a potentially game-changing research article showed us that the immune system is involved in creating fibromyalgia pain. The results of this study were remarkable and began to address one of the …
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When we have an interest or a passion, but we're not pursuing it, we don't feel good. Creativity is a vital part of wellness; for many people, it helps them manage their illness and feel better. No matter how you’re feeling, it’s important to know that staying creative and vibrant is possible. Today, Tami welcomes Wellness Coach Jenni Grover to tal…
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It’s hard to find people who understand you when you struggle with something like PTSD…My coworker shared she struggles with PTSD too. It’s nice to meet someone that understands, but also very sad to know they go through tough situations too. I also share what’s been going onעל ידי Noemi Rodriguez
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A certified Certified Fibromyalgia Coach® is not a doctor. We can’t prescribe or diagnose, but we can help fill the gap in fibro knowledge for you and your doctors. IFC graduates have received hundreds of hours of fibromyalgia-specific training. We can teach you and your providers more about fibromyalgia and help you advocate for yourself and get b…
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For many of us, the fibromyalgia diagnosis left us feeling like, “Who am I now?” Fibromyalgia changes how we see ourselves, relate with others, and interact in our lives. What if you could significantly improve your quality of life? Or have the energy to do the things you love? Or to travel and enjoy yourself? Today is the seventh installment of ou…
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Welcome to the final episode of our special Be a Coach series. So far, I’ve answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgi…
  continue reading
 
As patients, we must take control of some aspects of our health care to get what we need. Many fibromyalgia patients are familiar with the feeling that we know more about fibromyalgia than our healthcare providers do. How can you get help from someone who knows less about your condition than you? When you combine that feeling with the broken health…
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Welcome to episode 03 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. In episode one of the series, I explained what a Certified Fibromyalgia Advisor® is and what a Certified Fibromyalgia Coach® is. Episode two of the series…
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Season 2 Episode 42 -What is your stress load? Take your ACE survey to calculate your ACE score: https://stopabusecampaign.org/take-your-ace-test/ Full transcript to this episode: https://www.buzzsprout.com/1890983/13274871 References and resources: https://www.cdc.gov/violenceprevention/acestudy/ https://acestoohigh.com/aces-101/ https://stopabuse…
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Having been through the Western medical system for 20 years without meaningful change, Gisèle McDiarmid decided to take her health into her own hands. She felt the need to explore further and find specialists who knew about invisible illnesses, and she finally received a diagnosis and the help she needed to rebuild her health. With that, she finall…
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Welcome to episode 02 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. I cover all the basics… the who, what, when, where, why, and even the how. Don’t understand what a Certified Fibromyalgia Coach® or Adviser is? No problem…
  continue reading
 
As coaches, we get a lot of questions from people trying to understand their insurance coverage. From prior authorizations to deductibles, coinsurance, and patient assistance, many moving parts need to align to maximize our healthcare benefits. To help gain some clarity around all things insurance, Tami is joined by Doctor of Pharmacy Dr. Chelsea L…
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As a master Certified Fibromyalgia Coach®, author, and fibro podcaster, the questions I’m asked more than any others are: How do I get better? How do I improve my Fibromyalgia so I can get back to living the life I want to live? While those sound like simple questions, they do not have simple answers. We all have similar symptoms, what helps you fe…
  continue reading
 
One of the questions Tami gets most often is, “When are we going to have new fibromyalgia treatment options?” With only three FDA-approved fibromyalgia medications, many of us are on the alert for new options to address our symptoms better. To answer that question, Tami invited Dr. Seth Lederman, CEO and founder of Tonix, to talk about the fibromya…
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An objective test for fibromyalgia will change everything. As a researcher, Dr. Jarred Younger’s mission to figure out fibromyalgia has led him to study neuroinflammation as a primary suspect. “What I think is happening in fibro is an overly robust immune response, an abnormal reaction to low level, daily insults to the immune system.” Having seen …
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With the lack of awareness and education about fibromyalgia, many of us go through years of chronic health issues without finding answers. You might even find that the medications, supplements, and treatments that are supposed to help you to get better are making you worse. Today’s guest, Gisèle McDiarmid, went through all of that, and today she’s …
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Season 2 Episode 41 - How your childhood may have affected your health Take your ACE survey to calculate your ACE score: https://stopabusecampaign.org/take-your-ace-test/ Full transcript to this episode: https://www.buzzsprout.com/1890983/12858246 References and resources: https://www.cdc.gov/violenceprevention/acestudy/ https://acestoohigh.com/ace…
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Everyone with fibromyalgia understands how challenging it can be to explain the invisible pain and fatigue that comes with it. Despite affecting millions of people, there’s still a lack of understanding and awareness about fibromyalgia. That's where the documentary "Invisible” comes in. Through personal stories and expert interviews, "Invisible" ex…
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Episode 40 - Season 2 Introduction -Why do we need to talk about trauma? Get Season 1 podcast guide: https://www.rheumcoach.com/season1 Use this guide to track your progress as you listen to the episodes. It has a list of all episodes included in 1st season, with checkboxes to mark off your completion. It also has a fill-in-the-blank guide to episo…
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With the sheer volume of information online, it can be challenging to know which sources are legitimate. Since ChatGPT’s launch in December 2022, we must be even more careful. While it’s an incredibly useful tool for increasing efficiency for writing blog posts, generating book outlines, and more, the problem lies with the fact that it will create …
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This is part 2 of Julia Multiple Chemical Sensitivities Recovery story (MCS recovery story) where we discuss Julia's brain training approach for MCS recovery. We talk about how she faced triggers despite knowing the consequences, how she dealt with the setbacks along her MCS recovery journey and what life is like after Multiple Chemical Sensitivity…
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Julia shares her Multiple Chemical Sensitivities Recovery story (MCS recovery story) in this wonderful interview. In part 1 here, we explore how her illness came on in childhood and how she struggled with doctors and the label of having a psychosomatic illness. Then, her MCS suddenly went into remission following a change in environment (makes sens…
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Fibromyalgia can feel like an endless taking away of things. Whether you’re newly diagnosed and struggling to find your way, or you think you have it all figured out, boom, life happens. We’ve all had hopes and dreams that ultimately died or were taken away. Living your best life doesn’t mean avoiding anything terrible happening - that's impossible…
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Having good conversations with doctors can be difficult for many fibromyalgia patients. Whether it’s dealing with fibro fog or the fear of being labeled as a drug seeker, we often leave these interactions without feeling understood or confident in the action plan. So how do we have better conversations with our doctors? By finding the right practit…
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Welcome to the final episode of our special Be a Coach series. So far, I’ve answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgi…
  continue reading
 
“If it’s in you, it’s for you.” - Katy Suik With fibromyalgia, we can’t do things the way we used to. That can trigger a loss of purpose and identity. “Who am I when I can’t do this? Can I still contribute?” While we tend to think of our purpose as a single thing that will make our lives perfect, the reality is much more expansive. Purpose is not e…
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Treating your thyroid is a critical piece of managing fibromyalgia. It’s so crucial that Tami dedicates a whole week of the Certified Fibromyalgia Advisor® training program to teaching about thyroid. It’s also an issue that’s near and dear to Tami’s heart because it’s a significant part of her story. After years of classic thyroid symptoms being di…
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