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The Michael J. Fox Foundation Parkinson's Podcast
The Michael J. Fox Foundation for Parkinson’s Research
Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.
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Michael Parks interviews local business people spotlighting their products and services
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What I Wish I Had Known at Diagnosis
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In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what …
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Real Talk from Women Living with Parkinson’s
43:51
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43:51
In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health ca…
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Let’s Talk Taboos: Hard-To-Discuss Parkinson’s Symptoms (Webinar Audio)
51:16
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51:16
Living with Parkinson’s comes with a variety of symptoms, some of which can be unexpected, and frankly, embarrassing. Drooling, bladder issues and sexual dysfunction are hard to talk about, even with loved ones or your doctor – and can affect your self-image, your intimate relationships or the way you move through the world. In audio from this Thir…
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Everyday Exposures to Parkinson’s: Environmental Connections to the Disease (Webinar Audio)
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The biology behind what causes Parkinson’s is complex, with only about a quarter of cases with clear genetic drivers. The environment – where you live, the air you breathe, the food you eat, the world around you – plays a key role in PD. Emerging research is showing environmental exposures to things like pesticides and pollution may interact with a…
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Therapies for Tomorrow: How Better Clinical Trial Design Leads to Better Treatments (Webinar Audio)
58:27
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The drug development pipeline is key to bringing new therapies to people with Parkinson’s disease (PD). With major breakthroughs in research in the past year, including a new biomarker for PD, The Michael J. Fox Foundation’s Parkinson’s Progression Markers Initiative (PPMI) study and other initiatives can be leveraged to create better designed tria…
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Dating and New Relationships after a Parkinson’s Diagnosis
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Dating and beginning new relationships with Parkinson’s involve distinct challenges, joys and fears. In this frank and funny podcast, our experts discuss how they face considerations like building and maintaining confidence, disease disclosure, and the importance of self-knowledge and self-care in new relationships. They remind us all that no matte…
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New Year, New Moves! Explore Exercise for Life with Parkinson’s (Webinar Audio)
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We know exercise is important for people with Parkinson’s. Once you’ve decided to move more, what next? In this audio from our Third Thursdays Webinar, our experts discuss strategies for making exercise a meaningful part of your life. They present ways to make time for exercise and to make the most of it, including being aware of different types, f…
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How MJFF “De-Risks” PD Drug Development Pipeline
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One key pillar of The Michael J. Fox Foundation’s research strategy is a focus on “de-risking" potential treatments for Parkinson’s disease. This episode of our award-winning “Parkinson’s Science POV” series explains how lowering the risk associated with developing new therapies leads to a more robust pipeline of treatments. The episode details sev…
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Tools for Diagnosing and Visualizing Parkinson’s Disease (Webinar Audio)
55:07
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Doctors have been using DaTscan brain imaging as a tool to help diagnose the Parkinson’s disease (PD) for more than a decade, but even people who know a lot about the disease often still have questions about its role — and the role of other imaging tools — in diagnosis and care. What’s a DaTscan, and how does it relate to PET, SPECT and MRI? When i…
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Having Happy Holidays with Parkinson’s
36:54
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The holidays can be a time of joyful celebration with those we love. They may also come with the stress of travel, disruptions to your regular routine or even loneliness. For those living with Parkinson’s disease (PD), or those taking care of someone they love with the disease, these feelings can be intensified. This podcast offers tips to people l…
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A Year Like No Other in Parkinson’s Research: 2023 in Review (Webinar Audio)
56:54
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In a year of remarkable progress for the Parkinson’s field, we’re entering a new era for better understanding the biology of the disease, with the identification of a breakthrough biomarker accelerating new therapeutics through the clinical pipeline and legislators on Capitol Hill moving toward legislation that unites the federal government on a mi…
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Genetics Discovery Underscores Importance of Diversity in Parkinson’s Disease Research
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In a groundbreaking discovery earlier this year, a global consortium found a new variant in the GBA gene that is associated with a higher risk of Parkinson’s disease (PD) for people of African ancestry. The finding marks the first African ancestry-specific genetic risk factor for Parkinson’s disease. In this podcast, researchers share the human sto…
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Ask Us Anything: Answers to Your Questions about Gut Health and Parkinson’s (Webinar Audio)
59:08
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People with Parkinson’s disease (PD) have lots of questions about probiotics, prebiotics, laxatives and fiber. That’s because constipation and bloating are some of the more bothersome but less talked about symptoms of PD. In this audio from our Third Thursdays Webinar, experts and people with PD discuss effective ways for managing constipation and …
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Finding Your Way: Working through Emotions in Early Years with Parkinson’s (Webinar Replay)
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Shock, doubt, anxiety — a diagnosis of Parkinson’s can trigger these and many other difficult emotions. This replay of audio from our Third Thursdays Webinar features a conversation among people with Parkinson’s about how they processed the emotional aftermath and navigated the early years following their diagnosis. We also hear from a psychologist…
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Too Much or Not Enough: Dyskinesia and “Off” Time in Parkinson's (Webinar Replay)
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In this replay of audio from our Third Thursdays Webinar, Michael J. Fox Foundation Patient Council member Larry Gifford leads a discussion on common Parkinson’s issues — dyskinesia and "off" time — and how to treat them. Like our podcasts? Please consider leaving a rating or review and sharing the series with your network. https://apple.co/3p02Jw0…
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Reporting on Stem Cells for Parkinson’s
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Stem cells have grabbed headlines for decades. Now, at last, they are starting to deliver on their therapeutic promise, with multiple stem cell therapies in clinical trials for Parkinson’s disease. This episode of our award-winning “Parkinson’s Science POV” series brings us up to date on these trials, including how scientists are using stem cells t…
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Genetics and Parkinson’s: Understanding the Role of Gene Therapy in a Cure (Webinar Audio)
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What do you know about gene therapy and its potential for treating Parkinson’s? In this audio from our Third Thursdays Webinar, you’ll learn what exactly gene therapy is and how it works, who gene therapy might work for and the role of genetic testing. You’ll also get a status report on investigations into gene therapy for Parkinson’s. Panelists in…
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Digestible Tips: Your Gut and Parkinson’s
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How’s this for a dinnertime conversation starter… did you know that what happens in your gut can have an impact on your brain health? Some experts even call the gut “the second brain” because of its huge community of microbes and large nerve network that links the gut to brain disease, like Parkinson’s. Join our panel of experts who cover the lates…
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From Low Blood Pressure to Bladder Problems: A Look at Lesser-Known Parkinson’s Symptoms (Webinar Replay)
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Many people with Parkinson’s experience autonomic symptoms, like bladder problems, low blood pressure and constipation that can be hard to talk about. In this audio from our Third Thursdays Webinar replay, experts and patients open a dialogue on these issues and share ways to treat them. Like our podcasts? Please consider leaving a rating or review…
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Ask MJFF Anything: Your Questions for Our Scientists
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In the latest installment of our award-winning “Parkinson’s Science POV” series, MJFF’s Maggie Kuhl sits down with Mark Frasier and Brian Fiske, Chief Science Officers at MJFF, in an “Ask MJFF Anything” edition of our podcast. These experts cover a variety of questions from our community about Parkinson’s disease (PD) therapies and treatments, the …
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Get Moving: Exercising for a Healthy Brain (Webinar Audio)
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Have you ever wondered what’s the best exercise for your brain? Listen as our expert panel breaks down approachable tips to add more movement into your day-to-day, Parkinson’s-friendly exercises to try right now and the science behind the benefits of working up a sweat. Join hundreds of Parkinson’s community members June 17 weekend for our annual V…
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If Not Us, Who? Humans behind a Biomarker Breakthrough
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Faith and science are not often discussed together, but science requires a leap of faith. A few years ago, MJFF staff scientists, Samantha Hutten, PhD and Katie Kopil, PhD never would have guessed that a leap of faith and a cold call to a researcher in Texas would lead to a tool that, for the first time, can detect Parkinson’s in people who have no…
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Major Research Breakthrough: A New Biomarker for Parkinson's (Webinar Audio)
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In April, The Michael J. Fox Foundation (MJFF) announced a major biomarker breakthrough, opening a new chapter for Parkinson’s research — with the promise of better drug development and care for all people and families living with the disease. With the new test, validated by MJFF’s Parkinson’s Progression Markers Initiative (PPMI), researchers can …
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Trouble Sleeping? What to Know about Acting Out Dreams and Other Sleep Issues (Webinar Replay)
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Some people act out their dreams while asleep. They may punch, kick, yell or even fall out of bed. This sleep problem can be linked to Parkinson’s and other brain diseases. In this episode, experts share why sleep issues happen and what you can do to manage them. If you or your bed partner have sleep issues — whether you have Parkinson’s or not — y…
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What You Need to Know about Sleep, Aging and Parkinson's
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Did you know that RBD – REM sleep behavior disorder, or acting out dreams -- can be an early indicator of Parkinson’s? Many people develop sleep issues as they age — with and without PD. Join host Larry Gifford in a rich discussion with expert Stephen Joza, MD, PhD; Allen Dance, recently diagnosed with RBD; and Richie Rothenberg, patient advisor to…
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One Step at a Time: Managing Gait and Balance Issues in Parkinson's (Webinar Audio)
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From freezing to shuffling and everything in between, gait and balance issues can impact people with Parkinson’s at all stages of their journey. In this episode, listen as experts discuss emerging research and tips for people and care partners to improve mobility, prevent falls and maintain independence day to day. The Michael J. Fox Foundation’s l…
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Food for Thought: Answering Your Questions on Diet, Brain Health and Parkinson's
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For many, the word “diet” has negative associations: cutting out the foods you love, not enjoying what you eat or following strict rules about what you can or can’t eat. But diet is a way of life. And you can still boost brain health or manage Parkinson’s with your favorite family recipes, dinner out with friends and even the salty or sweet snacks …
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Eating to Boost Brain Health and Ease Symptoms (Webinar Audio)
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What foods are best for you? Whether you have Parkinson’s disease, or are concerned you might develop it, food and nutrition play a critical role in brain health. Our expert panel of Parkinson’s physicians and nutritionists shares effective ways to manage symptoms through nutrition and mobility modifications to make food preparation and eating easi…
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Podcast: What Comes Next? Living with Parkinson’s Years after Diagnosis (Webinar Replay)
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There are social, emotional and physical changes you may notice after living with Parkinson’s for some time. In this episode replay, experts discuss tips for managing symptoms, finding support and living well with Parkinson’s disease. Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study th…
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Navegando el Viaje Emocional de un Diagnóstico de Parkinson (seminario virtual: grabación de audio)
56:44
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Un diagnóstico de Parkinson puede traer muchas emociones diferentes: negación, ira, tristeza, frustración. Es importante saber que no importa qué emociones sientas, no estás solo. Escuche a los expertos, personas con Parkinson y un especialista en trastornos del movimiento, hablar sobre cómo navegar por las emociones y el viaje viviendo con la enfe…
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2022 in Review: Progress Toward Better Treatments and Prevention (Webinar Audio)
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The Parkinson’s community often asks, “What new treatments are in the pipeline?” In this episode, experts discuss the latest approaches in treating the spectrum of Parkinson’s, from early diagnosis to advancing disease. They also highlight the latest tools to predict and measure Parkinson’s and critical steps toward prevention. Recently diagnosed w…
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Podcast: Deep Brain Stimulation: Is It Right for Me or My Loved One? (Webinar Replay)
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Many people and families with Parkinson’s wonder if deep brain stimulation (DBS) — a surgical procedure for Parkinson’s — is a possible treatment option for them. In this episode replay, experts discuss who should consider DBS; potential benefits and risks; and the latest advancements in DBS research. If you’ve recently been diagnosed with Parkinso…
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From Diagnosis On: My First Days with Parkinson’s
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A Parkinson’s diagnosis can bring many different emotions — denial, anger, sadness, frustration. It’s important to know that no matter what emotions you feel, you’re not alone. Listen as people with Parkinson’s and their loved ones discuss how they’ve navigated emotions in the early years with Parkinson’s disease. This podcast episode offers person…
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Podcast: Public Policy and You: How to Become a Parkinson’s Advocate (Webinar Audio)
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Public policy plays an important role in speeding a cure for Parkinson’s. In this episode, experts discuss ways to become a Parkinson’s advocate and how you can reach out to your elected officials to help influence change on behalf of the Parkinson’s community. Experts also highlight the first-ever legislation solely dedicated to ending Parkinson’s…
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Podcast: Virtual Checkup: How Telehealth Brings Parkinson's Care to You (Webinar Audio)
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Many people with Parkinson’s consider telehealth a useful tool for getting care. But for some, the technology or visit may be tough to navigate. In this episode, experts discuss how to make the most of a virtual visit with a doctor and the impact of telehealth on research and care. Recently diagnosed with Parkinson’s? You can play a critical role i…
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Making Strides: Treatments and Technology for Walking Problems in Parkinson's
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Walking is a complex skill. So, shares Catherine Kopil, PhD, in the third episode of our “Parkinson’s Science POV” podcast series. Gait requires a symphony of connections between the brain and body, which makes it one of the hardest Parkinson’s symptoms to treat. Kopil, MJFF Senior Vice President of Clinical Research, and Chief Scientific Officer M…
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From Low Blood Pressure to Bladder Problems: A Look at Lesser-Known Parkinson’s Symptoms (Webinar)
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Parkinson’s can affect the automatic and involuntary functions our bodies perform, like heartbeat and digestion. In this episode, experts discuss common but lesser-known Parkinson’s symptoms — including bladder problems, constipation, low blood pressure and sweating — and what you can do to treat them. Recently diagnosed with Parkinson’s? You can p…
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A Special Conversation in Honor of Father’s Day: Adult Children Reflect on Having a Father with Parkinson’s
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In honor of Father’s Day, The Michael J. Fox Foundation (MJFF) is sharing a special podcast episode between three adult children who discuss how they each have navigated having a father with Parkinson’s disease. This Father’s Day and beyond, MJFF celebrates the experiences of patients, loved ones, researchers, advocates and supporters — speeding pr…
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What's in Your DNA? Understanding Parkinson's Genetics (Webinar)
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What is the science behind genetic inheritance that increases the chance of getting Parkinson’s disease (PD) later in life? In this episode, experts explain what genetic mutations are, those that are mostly seen in people with PD and the benefits of genetic testing. Join the study that could change everything at michaeljfox.org/podcast-ppmi. Like o…
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Your Elected Officials, Your Voice: Coming Together to Speed a Cure
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Did you know the government plays an important role in helping find a cure for Parkinson’s, and in caring for those living with the disease? In this episode, Michael J. Fox Foundation policy experts and grassroots advocates discuss the importance of telling your story and building relationships with elected officials who represent you in the halls …
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Podcast: New to Parkinson’s? Steps to Take Today (Webinar Replay)
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Navigating a Parkinson’s diagnosis can be challenging, but you’re not alone. In this episode replay, experts share practical tips for managing the early years of Parkinson’s disease. If you’ve recently been diagnosed with Parkinson’s, you can play a critical role in our landmark Parkinson’s Progression Markers Initiative (PPMI) study. Connect with …
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Testing, Testing – How Doctors and Scientists Detect Parkinson’s
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How is Parkinson’s diagnosed? Tracked? Importantly, predicted? In the second episode of our “Parkinson’s Science POV” podcast series, MJFF Chief Scientific Officers discuss progress toward better tests for Parkinson’s disease, including a recent report of a brain scan of a key Parkinson’s protein. They discuss imaging, fluid measures and wearable d…
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Parkinson’s Disease and Acting Out Your Dreams (Ask the MD Podcast)
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We all dream when we sleep. Some don’t remember dreams. Others clearly recall what they did, how they felt, and who else was there. Still others unintentionally act out their dreams. They may imagine catching a touchdown pass, running from a wild animal, or fending off an enemy. In this episode, our on-staff movement disorder specialist speaks with…
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Parkinson’s Pillow Talk: An Open Conversation on Sex, Sleep and Intimacy
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Sexual problems are common in people with Parkinson's, but they can be difficult to talk about. In this episode, experts discuss how Parkinson’s and associated symptoms like sleep changes impact relationships and they share strategies for improving physical and emotional intimacy. A deeper understanding of Parkinson’s disease biology could improve …
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Diet, Exercise and Other Strategies for Living Well as You Age (Webinar)
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People with Parkinson's often ask how diet and exercise fit into their overall care plan. In this episode, experts share what you can do today to eat healthier, exercise, boost brain health and live well as you age. Our landmark Parkinson’s Progression Markers Initiative is open to anyone over age 18 in the U.S. Join the study that could change eve…
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Three Reasons to Be Optimistic about Parkinson’s Therapies for All Stages of Disease
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Parkinson’s disease changes: its biology and symptoms start even before the cardinal movement issues and evolve decades after diagnosis. In the first episode of our new podcast series “Parkinson’s Science POV,” MJFF Chief Scientific Officers discuss strategies to stop disease progression at every stage. This episode covers our Foundation’s approach…
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PPMI: The Study that Could Change Everything (Webinar)
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57:43
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57:43
Over the past decade, The Michael J. Fox Foundation’s landmark Parkinson’s Progression Markers Initiative has changed how research is done and what scientists know about the brain. Listen as experts discuss the study’s expansion and why now it needs you. PPMI is open to anyone over age 18 in the U.S. Join the study that could change everything at m…
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Recently Diagnosed with Parkinson’s? Why Your Participation in Research Could Speed a Cure
28:08
28:08
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28:08
People early in their disease course are valuable partners in research working toward cures. Experts discuss why this is so important for The Michael J. Fox Foundation’s landmark Parkinson’s Progression Markers Initiative (PPMI) and the critical role you can play in research. Recently diagnosed with Parkinson’s? Connect with the PPMI team today at …
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Podcast: Steps Closer to Stopping Parkinson's: 2021 Research Review (Webinar)
1:00:17
1:00:17
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1:00:17
Hear expert panelists discuss the latest advancements in Parkinson’s research for our 2021 research review webinar.על ידי Michael J. Fox Foundation
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“Progress on the Path to the Cure” Research Roundtable Recap
38:18
38:18
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38:18
In this podcast, we recap the discussion from our Research Roundtable's expert panel of scientists, program leaders and a person with Parkinson’s.על ידי Michael J. Fox Foundation
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