הפודקאסטים הטובים ביותר ב-Spoonie (2025)

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59. Navigating Chronic Illness: The Hidden Side of Healing 1:18:38

2d ago1:18:38

1:18:38

In this powerful re-airing of an interview originally featured on the Holistish Podcast with host Lianne Balazsi, Emily Fraser dives deep into her journey from high-achieving perfectionist to becoming bedridden after a traumatic brain injury—and how she turned that breakdown into a breakthrough. Emily opens up about the emotional toll of chronic il…

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Competition or Comparison: Finding Your Place in Chronic Illness 36:46

4d ago36:46

36:46

Have you ever found yourself scrolling through social media, seeing others with your same diagnosis seemingly thriving while you struggle to get out of bed? That gnawing feeling of "why them and not me?" isn't something we talk about enough in the chronic illness community. The Spoonie Sisters dive deep into the complicated emotions of competition …

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58. From Housebound to Managing 8-hour Market Days: A TSP Transformation Story 1:02:07

9d ago1:02:07

1:02:07

In this powerful episode, we sit down with a TSP alum, Shiloh Gray, who went from barely making it through the day to managing markets, getting married, and living in alignment with their body. Through the lens of their deeply personal story, they share what it's really like to live with a chronic illness—and how learning to pace, regulate their ne…

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Defying Limits: One Man's Battle with Arachnoiditis 48:48

11d ago48:48

48:48

Steve Lovelace's journey with arachnoiditis demonstrates the remarkable strength of the human spirit when faced with seemingly insurmountable pain. When his neurologist delivered the devastating diagnosis in 2014 with a solemn "I'm sorry," Steve realized his life would never be the same. This rare disease, ranking at the top of the pain scale, forc…

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57. Talk Therapy Isn’t Enough: Why Somatic Tools Work for Trauma & Chronic Illness 55:31

16d ago55:31

55:31

Meet Oliver Phoenix, a somatic coach, yoga teacher, & movement artist who works with queer and neurodivergent folks to help them live with greater ease (& joy!) as their most authentic selves.In this empowering conversation, we talk about reconnecting with your body through somatic practices—especially for those living with chronic illness, neurodi…

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Empowering Parents through Asthma Education 49:16

18d ago49:16

49:16

Andrea's inspiring journey from interior design to public health is a testament to the power of personal experience in shaping professional paths. Prompted by her son's asthma diagnosis and the challenges they faced navigating the healthcare system, Andrea became a Certified Health Education Specialist and Asthma Educator. Through her story, we unc…

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The Art of Slow Nomad Living 39:56

25d ago39:56

39:56

How do you pursue your dreams when your body seems to have other plans? For slow travel nomad and empowerment coach Caitlin, the answer lies in adaptation rather than abandonment. With a background in environmental engineering and a life shaped by fibromyalgia and complex mental health challenges, she's crafted a unique approach to entrepreneurship…

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56. Spoonie Travel Tips: Managing Chronic Illness While Abroad 47:11

30d ago47:11

47:11

Ever wondered how you can travel the world as a spoonie without triggering a flare-up? In this episode, I share my 16-day journey through Europe—Barcelona, Mallorca, and Paris—while managing chronic illness and navigating international travel. From essential travel tips to mindset shifts, I dive deep into the strategies that allowed me to thrive, n…

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Dr. Amee's Vulnerability with Epilepsy and Advocacy 35:37

1M ago35:37

35:37

What happens when you combine the expertise of a trailblazing dentist with an unwavering commitment to mental health advocacy? Dr. Amee shares her powerful story of living with epilepsy since age eight and how it catalyzed her mission to challenge societal stigma and embrace vulnerability. Her journey from patient to advocate is a beacon of hope fo…

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Resilience in Motion 31:25

1M ago31:25

31:25

Join us for a deeply moving conversation with Ashley Spalla, as she recounts her extraordinary journey living with Ehlers-Danlos Syndrome and hip dysplasia. From a seemingly benign basketball injury in college, Ashley quickly found herself facing a challenging medical path that culminated in 49 surgeries over a decade. Her story, filled with determ…

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POTS & Strategies with Maggie 32:24

2M ago32:24

32:24

Struggling with the challenges of invisible disabilities? Join us as Maggie Cavanaugh, a National Certified Counselor living with postural orthostatic tachycardia syndrome (POTS), reveals her transformative journey from an advertising career to becoming a counselor. Diagnosed at just 14, Maggie navigates the complexities of mental health and chroni…

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Taboo Talk: Sex, Mormonism 51:14

2M ago51:14

51:14

Chronic illness impacts every aspect of our lives, including the bedroom. In this refreshingly candid conversation, we break down the walls of shame and silence surrounding sexuality when living with chronic conditions. Ali returns from her mountain cabin retreat to share how her diagnosis completely changed her relationship with intimacy—once a pr…

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Nerdy Workouts and Connection 37:18

2M ago37:18

37:18

Ever wondered how fitness can be more inclusive and empowering for everyone? Join us as we dive into a transformative conversation with Keira, the innovative founder of Chaotic Good Fitness, who has redefined personal training for neurodivergent and queer individuals. Keira's journey, marked by personal battles with ADHD and depression, has fueled …

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55. Traveling to Europe as a Spoonie: My Mindful Prep, Packing List & Pacing Plan 21:49

2M ago21:49

21:49

I’m sharing how I’m preparing for a two-week trip to Europe as a spoonie — from the excitement (and nerves!) to the mindset shifts, packing essentials, and pacing strategies that help me travel with more ease. You'll hear: How I’m adjusting to the time zone before my flight What’s in my carry-on and flare-up kit (heatwraps, electrolytes, meditation…

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Epilepsy Beyond the Ordinary 52:13

2M ago52:13

52:13

What happens when ordinary deja vu becomes something far more complex? In honor of Epilepsy Awareness Day, join us as we uncover Emma's extraordinary journey with epilepsy, a condition she was unexpectedly diagnosed with at the age of 23. Her story is a testament to resilience as she navigates through the labyrinth of symptoms and misdiagnoses, rev…

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54. Living Well with Chronic Illness 1:01:55

2M ago1:01:55

1:01:55

In this episode, I chat with the inspiring Eline Duk, a chronic pain coach and disability advocate who is the founder of The Spoonies Community. After two major accidents, she was diagnosed with Complex Regional Pain Syndrome (CRPS) and Functional Neurological Disorder (FND). We explore how she has learned to live well alongside her chronic health …

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Rheum Champions Tell All ACR 2024 38:18

2M ago38:18

38:18

Uncover the power of advocacy and community in rheumatology as we welcome our empowering guests, Jennifer Weaver and Cheryl Crow. Jennifer, a dedicated patient leader, and Cheryl, an occupational therapist and founder of Arthritis Life, open up about their journeys as Rheum Champions at the ACR Convergence 2024. With a promise of insight and inspir…

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53. Need motivation? This is for you. 13:56

2M ago13:56

13:56

I had a full circle moment last week and needed to share it with all of you! If you're feeling stuck on your recovery and needing some motivation, this is for you. Free Workshop: https://go.thespooniementor.com/free Instagram: https://instagram.com/thespooniementor Website: https://www.thespooniementor.com/…

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Guava Your App to Health Tracking 42:17

2M ago42:17

42:17

Have you ever felt unheard or dismissed in a doctor's office? Join us as we navigate through the deeply personal health journeys of Isabel and Emily, part of the founding team of Guava Health, who share their compelling stories of battling complex medical challenges and the frustrating experience of not being believed by healthcare professionals. T…

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The Silent Struggle: Endometriosis Revealed 34:36

3M ago34:36

34:36

Join us for a heartfelt and enlightening conversation tackling one of women's health's often-overlooked issues: endometriosis. Through the eyes of three women who bravely share their personal narratives, we uncover the complexities around the experiences of living with this painful condition. From the onset of their first menstrual cycles, fraught …

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52. Where I've Been... 12:16

3M ago12:16

12:16

In this episode, I share where I've been for the last several months and share why I'm back. xoxo Sign Up for my free flare-up freedom workshop: https://go.thespooniementor.com/free/

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A Mother's Advocacy in the Face of Linspad Syndrome 50:49

3M ago50:49

50:49

Kim, a passionate advocate and mother, shares her incredible journey of adopting two daughters, one of whom faces the challenges of an ultra-rare brain condition known as Linspad syndrome. Through personal trials and triumphs, Kim has emerged as a formidable voice in the advocacy space, particularly with her work at the Child Neurology Foundation. …

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Battling Cushing's: Jewel’s Journey 30:40

3M ago30:40

30:40

What happens when a determined spirit meets a daunting diagnosis? Join us as we hear from Jewel Dukes, who courageously shares her battle with Cushing's disease. Discover the emotional rollercoaster she faced, from the challenges of weight gain, depression, and anxiety to the life-changing brain surgery to remove a tumor from her pituitary gland. J…

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Embracing ADHD: From Harlem Globetrotter to Empowering Entrepreneur 44:28

3M ago44:28

44:28

Discover how former Harlem Globetrotters athletic trainer turned business coach, Michael Dickey, unravels his personal journey with ADHD—a revelation sparked by his son's experiences. Despite initial pushbacks from healthcare professionals, Michael sought a diagnosis that ultimately shed light on the struggles he faced throughout his career and lif…

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Stacey a Voice Behind Rare Patient Voice 34:13

3M ago34:13

34:13

From the heart-wrenching journey of a mother's advocacy to the personal battles with chronic illness, Stacey Haynes's story promises to move and inspire you. We sat down with Stacey, a leading voice in the chronic illness community, to explore her transformative path—from her daughter Iris’s diagnosis of Crohn's disease at a young age to Stacey's o…

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Elevator Pitches from your Spoonie Sisters 43:46

4M ago43:46

43:46

Crafting the perfect elevator pitch isn't just for business moguls—it's a vital tool for anyone navigating life with a chronic illness. Imagine being able to communicate the essence of your health journey in just a few sentences. That's exactly what our latest episode explores, featuring remarkable insights from Jen, Ali, Andi, Linnea, and Megan. A…

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EXPOSED: You Can’t Heal When You Hide 55:44

4M ago55:44

55:44

*TRIGGER WARNING* violence, sexual abuse, and suicide Serena's journey is one of extraordinary resilience and transformation. As our guest, she opens up about surviving a traumatic childhood filled with unimaginable challenges, including abuse and life in witness protection. Her unwavering determination to reconnect with her mother amidst adversity…

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Spoonie Chats 25:40

4M ago25:40

25:40

Ever wondered how innovative tools like trainer chopsticks can transform your daily life with a chronic illness? Join us, your hosts Jen, Ali and Andi, as we share our personal experiences navigating these challenges and discuss the inspiring lifestyle of Okinawa, Japan. Discover the secrets behind their remarkable longevity, from embracing communi…

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Recognize Me 47:40

4M ago47:40

47:40

Imagine facing a medical system that dismisses your symptoms and undermines your experiences. Our guest and dedicated advocate for patient empowerment, Anneke, reveals how she tackled this daunting challenge. Her remarkable journey from misdiagnoses such as chronic fatigue syndrome to finally understanding her rare chronic conditions, including adr…

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Laughing Through Life's Quirks: From Public Spaces to Strip Club Stories 36:58

4M ago36:58

36:58

What gives you the ICK? Ever been trapped in an empty lobby, only to have someone sit right next to you? You're not alone! Join us as we laugh through the relatable quirks of public spaces that drive us all up the wall, from the orchestra of loud eaters to those who park just a smidge too close for comfort. We'll share some of our tried-and-true st…

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Navigating Anxiety with Humor and Self-Care 42:43

4M ago42:43

42:43

Transform your approach to anxiety and personal growth with insights from Andi Byers, a decorated Air Force veteran turned holistic wellness practitioner. Andi & Jen dive in on the My Spoonie Sisters Podcast to share their incredible journeys, the hurdles faced in being recognized for achievements, and the vital role setting boundaries plays in man…

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Exploring New Paths to Healing 56:45

4M ago56:45

56:45

*Trigger Warning* What if your lifelong pain was dismissed as mere imagination? Join us as we explore Riane's powerful narrative of self-advocacy and perseverance in the face of medical doubt. As a Hawaii native, Riane offers an intimate look into her life with juvenile rheumatoid arthritis and chronic migraines, shedding light on how these experie…

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Helen's Roadmap to Thriving Amidst Diagnosis 31:48

5M ago31:48

31:48

What happens when your life takes an unexpected turn, and you're faced with navigating the complexities of a chronic illness far from home? Meet Helen, a determined life coach whose journey through an ankylosing spondylitis diagnosis after battling COVID in her late 20s reshaped her world. Tune in as Helen shares her personal story of overcoming th…

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#PlanToBeYourBest with Chronic Pain 46:55

5M ago46:55

46:55

After years of enduring chronic pain, Rick Cram transformed his life by embracing resilience. His story of overcoming a high school football injury and multiple surgeries will inspire you to rethink how you approach life's challenges. We promise you'll gain valuable insights from his “Plan to Be Your Best” program, designed to build resilience and …

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Breaking Down Barriers to Medication Access 24:53

5M ago24:53

24:53

Discover how you can manage the financial strain of chronic illnesses with insights from Laura and Jamie of Universal Drugstore, who join us for a candid discussion on medication affordability. We begin with Laura's heartfelt account of living with juvenile arthritis and how the exorbitant drug prices in the U.S. compare to more affordable internat…

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Maggie's Creative Journey with Chronic Illness 20:05

5M ago20:05

20:05

Maggie Bushway's journey of overcoming brain cancer and navigating life with seizures is nothing short of inspiring. Diagnosed at just seven, she turned her battle into a beacon of hope through storytelling. As she shares her experiences, Maggie reveals how her father's blog posts and her sister's artwork helped her transform her story into a heart…

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Navigating Hydrocephalus: Jeff and Katherine's Story of Hope and Resilience 58:11

6M ago58:11

58:11

What if you could recognize early signs of health deterioration before it turns into a crisis? Join us in a conversation with the inspiring couple, Jeff and Catherine Pearson, as they share their remarkable journey navigating life with hydrocephalus. Jeff, who has managed this condition since birth, and Catherine, his devoted caregiver, reveal thei…

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Patient-Centered Medicine: Lauren's Journey with Conradi-Hunermann Syndrome 43:27

6M ago43:27

43:27

What if your greatest challenges could fuel your passion and shape your life's ambitions? Meet Lauren, a clinical assistant at Boston Children's Hospital, whose journey with Conradi-Hunermann syndrome and nearly 30 orthopedic surgeries has not only defined her path but also her dream of becoming a pediatric orthopedic surgeon. Through her eyes, we …

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Chronic Slay 1:02:07

6M ago1:02:07

1:02:07

After grappling with juvenile idiopathic arthritis since she was just 15, our guest Ali shares her transformative journey from denial to empowerment. Allie's story is one of incredible resilience as she navigates the physical challenges of surgeries and isolation, ultimately finding strength and purpose through movement. As a certified personal tra…

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Let's Catch Up Chelsey! 33:59

7M ago33:59

33:59

Ever wondered how someone navigates the unique challenges of a thriving career in musical theater while dealing with the daily hurdles of a chronic illness? Chelsey, our inspiring guest, shares her remarkable journey from Vancouver to the American Musical and Dramatic Academy and how she's now making a difference as the Associate Director of Musica…

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Lupus to Open-Heart Surgery with Victoria 35:37

7M ago35:37

35:37

Ever wondered how someone can transform adversity into strength? Meet Victoria, a spirited yoga instructor living with lupus, who shares her powerful journey from undiagnosed college student to a wellness advocate in the bustling city of New York. Experience her raw and emotional recount of confronting extreme fatigue, hair loss, and brain fog befo…

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Finding Balance: Jake's Journey with Lyme 40:23

7M ago40:23

40:23

What if embracing your vulnerabilities could become your greatest strength? Join us for an enlightening conversation with Jake Mayers, a Lyme coach who has turned his chronic illness journey into a pathway for helping others. From dealing with dyslexia as a child to confronting the harsh realities of a Lyme disease diagnosis at 15, Jake's story is …

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