This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.
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We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
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We are celebrating the success of people with Down Syndrome!
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Learn what Down syndrome is, what the characteristics of Down syndrome are, and how Down syndrome is caused
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Beth Parillon is a life coach with Ocean Organics Wellness & Coaching will discuss all things as they relate to down syndrome. I will share my personal stories, insights, my successes and my epic failures of raising my daughter with down syndrome. I will help guide you through this new journey of raising your child with down syndrome . Are you ready to get down?
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Positive About Down Syndrome Podcasts are compilations of stories, letters and lived experiences written by people with Down syndrome, family members, friends and professionals to challenge the thinking and perceptions around Down syndrome.
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Down Right Awesome
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SIMPLE MONEY SYSTEMS II Pay Off Debt, How to Budget, Down Syndrome, Personal Finance, Save Money, Budgeting, Budget Friendly, Manage Money, Financial Freedom
Diana Galas - Personal Finance Coach, Special Needs Mom, Budgeting Coach
Are you a full-time working mom who has been blindsided by your child’s disability diagnosis? Do you struggle to afford medical bills, special equipment, therapies, and caregivers- while you continue to further drown in debt? Do you wish that you had step-by-step financial guidance so you could attain the financial stability you desire and spend your precious energy focusing on your special needs child? You are in the right place. My mission is to equip special needs moms just like you to cr ...
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Most children with Down syndrome have hypotonia (low muscle tone) which may slow their physical growth and if the Down syndrome treatment is not done, then later in life causes problems like bad posture. Therapy can help them to develop tone and strength of the muscles, and also teaches them how to move their bodies in a proper way, which helps them in their day-to-day functioning.
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171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head
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This week we had the privilege to talk to Dr. Elizabeth Head, Professor and Vice Chair for research at the University of California, Irvine in the department of Pathology. Dr. Head has published more than 150 peer reviewed papers and has dedicated over 20 years to the study of aging and Alzheimer’s disease with a focus on people with Down syndrome.…
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35 II Running Out Of Money? 7 Ways to Waste Your Money Down the Drain
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Show Notes: This episode is about money wasting and about common ways of how unintentionally ending up with no money at the end of a month. Whether it’s emotional buying or quick convenience purchases, let me help you get control over your spending in a nonrestrictive way, giving you the freedom to put your money where it serves you the best. Check…
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John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more information about John's Crazy Socks (and to buy your own!), visit: https://johnscrazysocks.com If you would like to s…
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170. Celebrating The Life of Carl Erskine with Ted Green
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The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved deeply with the Special Olympics and charities which aimed at helping people with developmental disabilities such as his son Jimmy. Carl Erskine was a MLB All-Star, World Series Champion, ally of Jackie Robinson …
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34 II Ditch Debt Quickly with Down Syndrome Child: 3 Steps to Your Family Money System
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Show Notes: In this episode, I am giving you a simple formula to help you optimize your family money system to get you out of debt. Whether you are starting over on your financial journey, starting for the first time, or changing financial directions this episode will share exact strategies to create money systems in your home so you can sleep bett…
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169. The Annual DSDN Retreats with Ben Hughes
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This week we are fortunate to have Ben Hughes back on the podcast to discuss the Down Syndrome Diagnosis Network’s (DSDN) annual “Rockin’ Retreats” that offer our community the connection and respite caregivers truly need. Retreat information page: https://www.dsdiagnosisnetwork.org/dsdn-retreats Dad's retreat registration page: https://form.jotfor…
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33 II How to Organize Simple Binder for Child with Special Needs, Down Syndrome
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Show Notes: Creating a comprehensive special needs binder for a child can be immensely helpful for parents, caregivers, educators, and healthcare providers. The medical records, charts, immunizations, medications, and doctor's notes - all have to be carefully recorded and kept in one place and easily accessible. Our kids grow differently so, instea…
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#177 - Weight Loss Medications and Surgeries
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Dr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries. They also give their thoughts specifically on these treatments/management strategies for people with Down syndrome. If you would like to suggest a…
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32 II Step by Step Tutorial on Building Your Cash Flow Systems: So You Can Pay Off Debt Faster
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Show Notes: In this episode, I want to discuss steps on practical steps on how to build your cash flow systems so you can start paying your debt and staying out of it. Welcome to episode #32 on the Simple Money Systems podcast. Create a Bill Pay System Build your Family Purchasing System Have in place a Grocery Shopping Planning System Create a Deb…
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31 II Get Ready to Cash Flow; 5 Money Tips on How to Gain Back Your Money with Easy Budget
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Show Notes: Welcome to Simple Money Systems podcast episode #31. Today I will be talking about the concept of cash flow. There's one common denominator to find that simple strategy for saving money that you can run with. Is there one? And I say yes. To simplify this often confusing money subject I have a simple money system that is custom built for…
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#176 - Happy World Down Syndrome Day 2024!
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NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them.
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30 II Why It Is Hard to Stick to Budget and 3 Simple Steps on How to be Consistent With Spending Plan
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Show Notes: Welcome to episode #30 where I discussed the topic of why it is so hard to stick to your Budget and how to be consistent with your spending plan. Are you ready to learn and get back to the money management basics that you enjoy? I am glad to help you! Click the links below to learn, discover, connect, and engage. Learn – www.dianagalas.…
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29 II Simple Debt Free Budgeting With Down Syndrome Above Abilities for Peace of Mind
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Show Notes: You are the Mom of special abilities with a special calling that puts you in a place where you serve not only your child but also others. Just imagine when your voice is heard, and your talents are put to work to make not just your life much lighter, easier, more fun, and enjoyable but also the life of your child, your family, and peopl…
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28 II Frustrated With Your Money - Learn How to Break Through Spending Cycle with Easy Budget
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Show Notes: Welcome to the Simple Money Systems podcast, where simple is more and more simple. I am so happy you joined me! In this episode, I will be discussing a hot topic about how to break through the spending cycle and how to gain confidence and peace of mind when it comes to your daily finances. The first thing you need to know is what is com…
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168. Liam's 14th Birthday: Sharing Some Insight
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Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey with Liam. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/03/09/168-liams-14th-birthday-sharing-some-insight/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our F…
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#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa)
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Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado. He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune system can potentially be used in treatment of common disease conditions seen in people with Down syndrom…
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27 II How to Organize Bill Pay for Simple Spending Plan with Easy Budget Method
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Show Notes: Ok, let's organize and automate your bill pay! Have all your Bills available for one-time set-up only. I like to have paper copies with account numbers, mailing addresses, and telephone numbers for every payee. You may add payees to your bill pay as you go, but I prefer to have them all set up at one time for easier budgeting and money …
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26 II 3 Easy Habits to Support Your Spending Plan, Stop Impulsive Buying to Boost Your Cash Flow with Easy Budget
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Show Notes: Friends, try training your brain to practice enough mentality. How much is it really required to live a healthy simple lifestyle? And remember simple is always more: more freedom, more space, more rest, more health, more peace, more happiness in your marriage and relationship with family, and more money in your pocket. Instead of buying…
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25 II How Much Your Self-Worth Image Is? 6 Steps To Your Net Value with Debt-Free Budgeting
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Show Notes: When my son Dave was born with Down Syndrome and being a new mother of a child with intellectual disability it affected my self-worth. Automatically, not even giving much thought or consideration I fell into a trap of a very low self-esteem. I immediately was thinking of how others would look at my son what hardships of cruel societal n…
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167. A Discussion About Using The R-Word with Lynette Louise
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This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a serious discussion about the use of the r-word and the reasons why Lynette uses it. This episode may feel a bit intense for many of you and we understa…
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#174 - Dating in Down Syndrome (with Terri Couwenhoven)
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Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She rejoined the podcast this week to talk about dating and Down syndrome. For more information on Terri, her amazing resource…
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24 II Time is Money, 5 Tips on How to Simplify Your Day for Peace of Mind with Easy Budget
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Show Notes: I can relate to you my friend, whether you are a full-time mom or work outside your home, you can have peace of mind by simplifying your day by having some planning tips in place. Let's recap 5 of them. They are not coming in order and you can start from any that you struggle with the most. #1. Have your evening strategy ready #2. Plan …
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166. Finding The Right Supports Without Shame - Julie Picot
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This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kindergarten. We also touch upon how very often parents feel shame when guiding their school aged children out of diapers. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/02/17/166-finding-the-righ…
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23 II Ditch Cash Envelopes, Learn Hybrid Budgeting Method Stress Free, Get Credit Card Work For You
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Show Notes: You probably heard about the cash envelopes budgeting method. This is when you designate one paper or plastic it doesn’t matter envelope to a specific budget category. There is nothing wrong with it but I find it extremely unpractical and inefficient. It is very unsafe to carry bags of money with you in the store when your hands are tie…
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22 II Simple Money Systems is a Safe Place to Grow in Financial Freedom - Get Your Budget Done
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Show Notes: Welcome back to the Simple Money Systems podcast! What a great time to catch up on some money talk. Maybe you already took several financial courses with other coaches that left you with to-do and not-to-do lists that you were not able to get your hands on to tackle leaving you even more confused and discouraged from paying off your deb…
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#173 - Sexuality and Down Syndrome (with Terri Couwenhoven)
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Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She has been on the podcast before but joins us again to today for updates on the topic of sexuality and Down syndrome. For mo…
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21 II Strategies to Overcome the Overwhelm of Down Syndrome Diagnosis with Budget in Place
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Show Notes: It is easy to lose balance when something unexpected shakes your base. It can be anything. How about you, my friend? What is your story? Do you have one? With me, it was my special child. Now, I feel a responsibility here to make sure you are ready for any kind of storm in your life small or big. Maybe you are going through right now. H…
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20 II How to Increase Income Now - Ways to Make Money at Home by Having Simple Budget Ready
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Show Notes: You have your budgeting tools under your belt, you know the exact strategy to tackle your debt or to start smart investing. Friend, I urge you about the importance of having your budget in place! If you don’t have it please, right now, hit the stop button and schedule a phone call with me. You need to have your budget to start living wi…
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165. Picking The Right Pediatrician with Dr. Ilona Kleiner
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Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole child and how her care for Liam really isn't any different than that of a typical child. Dr. Kleiner's Bio: https://www.pamgdocs.com/copy-of-about-our-doctors-1 Recommend books: What’s Going on Down There? by …
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#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter)
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Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 2 of the 2 part podcast. https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@c…
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19 II Stuck With High-Interest Mortgage? Use easy budget to manage high-interest home loan to your advantage
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Show Notes: Welcome to episode 19! Are you stuck with a high-interest-rate home loan? Let’s get deep into how it can serve to your advantage. You might be wondering if it’s even safe to invest in your home like making extra principal payments. In general, housing is an essential need and always will remain in value. Just by looking at the historica…
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164. Charlotte and Riley: Not Taking No For An Answer
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In this episode, we discuss Charlotte Fien’s path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has influenced him to break down barriers in his own life. It is the story of two humans creating the life they want to live and never taking no for an answe…
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18 II 7 Budget Myths to Unlock Productive Money Management
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Show Notes: My friend, what are your misconceptions about budgeting? How do you handle your finances? Have you found this information helpful in any way? I hope it stretched you, challenged you helping you to grow in your financial journey. Write down on a piece of paper everything preventing you from getting to your budget. Whether it is a lack of…
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163. Revisiting Patience In The New Year with Maezen Miller
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Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believing and having patience can enable our children to be who they are, go where they go and do what they do, to become exactly who they are. Karen Maezen …
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17 II Loose 15 Lbs in 30 Days on Budget Eating 5 Times a Day
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Show Notes: You can eat 5 times a day, cook once maybe twice a week, do grocery shopping once a week, and kiss your grocery receipt! How does it sound? First, eat your breakfast. It must include lean proteins, some whole grains preferably cooked, and a load of fresh greens and veggies. Similar food ingredients for lunch. And for dinner same ingredi…
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#171 - Hearing Health in Down Syndrome (with Dr. Heather Porter)
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Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 1 of a 2 part series. https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.…
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16 II Why Your Budget Is Not Working - Do 3 Things Now
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Show Notes: You need to take these 3 steps right now to start your budget work for you: Track your daily expenses during your nightly routine time in one system like an Excel spreadsheet. Lit up candles, use an essential oils diffuser, and play soft music to establish a serene and peaceful atmosphere when you reflect on the day behind. Leave it the…
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15 II Money Making Mindset – 3 strategies for financial growth
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Show Notes: Improving financial confidence is a gradual process that involves both practical actions and a positive mindset. By taking proactive steps and staying committed to your financial goals, you can build confidence in your ability to manage and improve your financial well-being. Remember, attracting money is often a result of a combination …
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#170 - Dementia in Down Syndrome, Part 2 (with Dr. Seth Keller)
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Dr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/down…
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14 II 9 Steps to Reduce Stress and Improve Financial Confidence - Budget Ready
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Show Notes: Improving financial confidence is a gradual process involving practical actions and a positive mindset. By taking proactive steps and staying committed to your financial goals, you can build confidence in your ability to manage and improve your financial well-being. Take a good self-care Have a structured routine Create an inviting desk…
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13 II Christmas Valuable Treasure – Your Special Child is Born
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Show Notes: Today I would like to reflect on a very sacred topic about the most valuable treasure of a special child that once was born. You have your gem right in front of you. Take a closer look. Pick it up from the dirt, wash it, gently wrap it in a fine cloth, bring it to the sunlight, and get your magnifying glass out – you will see so many sp…
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