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The ECTRIMS Podcast

The European Committee for Treatment and Research in Multiple Sclerosis

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The world is better when its people are connected. The ECTRIMS Podcast aims to be a sounding board for MS experts & advocates to discuss innovative work in MS research, treatment and care with the greater MS research community, while offering a collaborative platform for MS and healthcare experts to promote & nurture the advancement of research.
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Ectoplasm and Evil

Swasti Shukla Buick & Tenn Buick

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Tenn and Swasti Buick (and the occasional special guest) talk about all things supernatural, paranormal, and true crime, bringing lesser heard stories to the forefront.
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In this episode, we discuss the ever changing threat of Active Shooters, what you can do to prepare and help when faced with one, and what to expect from Law Enforcement on scene. We are joined by the Owner of Grenzer Concept's, who comes from a mixed Military & Law Enforcement background with real world experience responding to an Active Shooter i…
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Ever have the feeling that someone else is in the room with you while you were alone? You maybe did not see anyone, but had the odd and eerie feeling that there was in fact someone there with you? Maybe you asked for help in a stressful situation, but later found the person you received help from could not be found? This is THIRD MAN SYNDROME and w…
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Hotel Eldridge, located in Kansas (on the Missouri border), holds both history and hauntings. Does the ghost of Colonel Eldridge roam at night? What mysteries lie in room 506? And do Great Depression gangsters, Bonnie and Clyde, still check into the hotel now and again? Maybe, listen and find out! ectoportal.com…
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Hey Boolievers and Non-Boolievers This episode starts with an interesting story by yours truly and my experience with the shadowman. During our research, I found one website that briefly explained the reasoning behind this shawdowman phenomenon, while Mike tells us a story he came across about someone elses experience with a shadow figure. If anyon…
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The ECTRIMS Congress offers a valuable opportunity for young researchers to gain experience and exposure. Joonas Lehikoinen from Helsinki University Hospital and the University of Helsinki Neurocenter, along with Ahmed Abdelhak from the University of California, San Francisco, received poster abstract prizes at MSMilan2023. Host Brett Drummond from…
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Baroness Elisabeth Alexandrovna Strogonoff de Demidoff died on April 8, 1818 and is buried in a mausoleum in the famous La Chaise cemetery in Paris. Her will, offers that if someone will stay in her tomb for a year, they will receive a fortune. So far, no one has succeeded. www.ectoportal.comעל ידי ectoportal
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The story of a large, local community bath house during the Victorian era, where several deaths led many to believe that it was cursed. The site is now home to a Whole Foods store, lower parking lot. Does the curse continue to this day? www.ectoportal.comעל ידי ectoportal
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We welcome back to the show San Francisco Bay Area's famous HORROR HOST, John Stanley from CREATURE FEATURES. We discuss John's early career, including his first feature film NIGHTMARE IN BLOOD, the story of a vampire in San Francisco! Of course, we will discuss his tenure in CREATURE FEATURES and the upcoming CREATURESCON event in Orinda, CA on Ap…
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With the growing push towards taking a more personalised approach to the treatment and management of multiple sclerosis, it is important to understand the unique issues – both socially and clinically – that may arise among people of different ethnicities. In this episode, Natalie Bursari of The Nerve of My Multiple Sclerosis in the UK and Mitzi Joi…
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The Atherton House in San Francisco is a 19th-century style home that was built for George Atherton. He was a successful at business, but nobody knew exactly what his business was. Spirits haunt the Atherton House even to this day and we will unpack this strange and haunting story on our first live return to the ECTO PORTAL! Join us! www.ectoportal…
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CLASSIC Ecto Portal - Here is our first show with legendary Horror Host, John Stanley, from San Francisco Bay Area's CREATURE FEATURES on December 13, 2017. We talk about John's journey as a horror host and taking over the established role as host to a massively popular locally produced series featuring all things horror, science-fiction, supernatu…
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Discussions are ongoing to change the way MS patients are diagnosed and treated. In this episode, Xavier Montalban, Chair of the International Advisory Committee on Clinical Trials in Multiple Sclerosis, which is leading the discussions, explains the evolution of the McDonald criteria and why these proposed revisions are important for clinicians an…
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In this episode, we are joined by the Owner of Red Right Hand to discuss their line of AR uppers, the Second Amendment and the role of the Automatic Rifleman amongst the Citizenry. Red Right Hand: https://redrighthandllc.com/ Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citizens_Tactical…
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In this episode, we keep it short as we discuss a key events to watch as 2024 begins, as well as how you can continue to increase your preparedness. Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citizens_Tacticalעל ידי everydaycitizenstactical
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Recent global epidemiological data show that approximately 70% of people diagnosed with multiple sclerosis are women. While this may tell us something about the mechanisms behind disease susceptibility, it also raises a number of unique challenges throughout the MS journey. In this episode, Ruth Dobson, Professor of Clinical Neurology at Queen Mary…
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Welcome back boolievers and non-boolievers! Greetings to those joining this podcast for the first time! In this episode, Artie and Mike Reaper delve into the enigmatic tale of the legendary bluesman, Robert Johnson. Did he truly sell his soul at the crossroads for his musical craft? Who is Papa Legba? Was Roberts music an attempt to forewarn us abo…
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The MSMilan Patient Community Day was designed for people living with multiple sclerosis and related neurological diseases and their caregivers to stay updated and involved in the advancements being made on their journey towards managing their conditions. In this episode, Tim Coetzee, Chief Advocacy, Services & Science Officer and Bonnie Higgins, D…
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The Season Finale of Ectoplasmic Residue is FINALLY HERE! Join Mike, Artie, and special guest Araceli as she talks about her experience in this abandoned hospital. Shout out to Brock Hinger, Joshua Malak, and Mike for sticking through this test season of our podcast. We couldnt have done it with any of you! Starting the new year right with Season O…
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Mike and Artie do a recap of Season 0, giving their opinions on the episodes, improvements and goals necessary for season 1, and their overall honest opinion of the entire season as a practice run. Feel free to Contact Us Audio Editing by Artie ( Unfortunately) Artwork and Illustrations by Joshua Malak Special Thanks to literally everyone who has b…
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Mike and Artie talk about a local legend that spread among the surrounding cities of Turnbull Canyon. Hey listeners! Is there a local legend that you remember everyone talking about back in the day? Send us an email and tell us what about it! We'd love to hear them! Contact Us Audio Edited by Brock Hinger Artwork and Illustrations by Joshua Malak R…
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Get your milk and cookies ready because on todays Christmas special, Mike and Artie travel back in time to find the origins of the anti-Santa Clause, Krampus. Merry Christmas everybody! We hope you enjoy this short and sweet episode! As always, we appreciate any feedback you can give us. Contact Us Audio Editing done by Brock Hinger Artwork by Josh…
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Mike shares an unsettling story that he stumbled upon while browsing through the paranormal subreddit years ago. References: Original Reddit Post More Information On Greg NewKrik: Greg Newkirks Website Planet Weirds Youtube: Greg and Danas Youtube channel The Unbinding Documentary : Here is the movie if anyone is interested Contact Us: Please feel …
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Why do some people with multiple sclerosis (MS) continue to run marathons while others are in wheelchairs years after diagnosis? Genetics partly explains why. Scientists have identified the first genetic marker for MS severity, which could pave the way for new treatments to prevent disease progression. Sergio Baranzini of University of California S…
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In this episode, we talk about gathering Intelligence to aid your preparedness plan, as well as the evolution of gun owners & gun culture. I am joined by Joey, the owner of GrayFighter & Trinity Training Complex, who has spent his career in law enforcement with a focus in anti-terrorism. https://www.grayfightergear.com/ https://trinitytrainingcompl…
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Descriptors of multiple sclerosis are currently based on a combination of clinical and MRI features, and include clinically isolated syndrome, relapsing-remitting, secondary and primary progressive subtypes. Accumulating evidence suggests that the clinical course of MS is better considered as a continuum, with contributions from concurrent pathophy…
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Two sessions at the 9th Joint ECTRIMS-ACTRIMS Meeting (MSMilan2023) focused on nursing. Nurses play a critical role throughout an MS patient's life. And in this episode, we discuss the changing role of MS nurses and the challenges they face, with guests Belinda Bardsley, an N-CRESS (Neuro-Immunology Clinical Research, Education and Support Service)…
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In this episode, we revisit homesteading and self sustainment as we wrap up 2023. We are joined by Kaleb from Prevail Armament, who is an avid 2nd Amendment supporter and homesteader. Kaleb's IG: @kalebprevailarmament Prevail Armament IG: @prevailarmament Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citi…
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Long term use of disease modifying treatments (DMTs) poses challenges in terms of safety and pharmacoeconomics, while preventing disability progression. As such, there is an ongoing debate on how long disease modifying treatments should be continued and if discontinuation should be considered in stable multiple sclerosis. In this episode, Alan Thom…
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In this episode, we discuss some of the finer details of night vision, budgeting for gear and other various training topics related. We are joined by Chance, who comes from the LEO community and works as the Director of Training & Operations at GP Armory & Midwest Preparedness Center. Use Code "ECT2023" to save on LLUL-21 L3 Unfilmed 18UM White Pho…
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Multiple sclerosis (MS) treatments have been successfully added onto the World Health Organisation's Essential Medicines List (EML) in July 2023. Nick Rijke of the MS International Federation and Deanna Saylor of Johns Hopkins Hospital discuss the impact of this milestone and the next steps for clinicians, researchers, patients, and the MS communit…
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In this episode, we take a step back to what's going on behind the scenes at ECT, some new life updates for our Host Jeremy and a general outlook of current and future events to come. Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citizens_Tacticalעל ידי everydaycitizenstactical
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MS affects more women than men. Research on the reasons behind this, and if and how sex-specific processes may impact disease progression, and the symptoms experienced by women living with MS continue to expand. In this episode, Rhonda Voskuhl of UCLA and Elisabeth Celius of University of Oslo and Oslo University Hospital discuss these issues and m…
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In this episode, we are joined by @Communications.Workspace (Instagram) to talk about varies drone topics and their use for the prepared and tactical civilians. We do apologize in advance if our audio is a bit off this episode. Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citizens_Tactical…
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Welcome everyone to Episode 4 of Season 0. Today we are bringing you a favorite ghost story from Mikes past. As a child he watched over and over again, through reruns of Unsolved Mysters, a harrowing tale of a family stricken with inexplicable illness, and tormented by fiery foes. The story had faded from his memory until he ran across the same sto…
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Welcome Back!!! I know I know. Its been MONTHS since we've dropped an episode, but HEY! Lets move passed this okay? Super, fantastic. This episode of EPR touches the surface on ghost photography and ghostly encounters. Joining us on this episeode is Diana, who happens to run her very own paranormal podcast with a variery of creepy stories to keep y…
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Swasti tells Tenn an anonymously shared ghost story from a listener about an entity that had been haunting them throughout their childhood. The ending is shocking, infuriating, and hilarious all at once.על ידי Swasti Shukla Buick & Tenn Buick
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In this episode, we are joined by one of the co-founders of Contingency Company to discuss training, community and different aspects of the firearms industry. Mavericks IG: @a_modern_day_patriot Contingency Company IG: @contringencyco Find more content, products, classes and more at the link below: https://lnk.bio/Everyday_Citizens_Tactical…
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The development of global databases that record and store large amounts of clinical data for people living with MS has made a significant difference to the MS research world. In this episode, we talk to Izanne Roos of the University of Melbourne and Cyrus Daruwalla of the University of Cambridge about the types of registries that currently exist, t…
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In this episode, we are joined by the Owner of Partizan Solutions to talk about product innovation and market development in the firearms world. Partizan Solutions Website: https://partizansolutions.com/ Partizan Solutions Instagram: https://www.instagram.com/partizan_solutions/?igshid=ZDdkNTZiNTM%3D Find more content, products, classes and more at…
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