Why is so little attention paid to Sick Cell Disease?

Basic Black Podcast

This week on Basic Black we will be discussing sickle cell disease. It’s one of the most known inherited blood disorders that largely affects Black and brown people. A debilitating disease for those who have it, along with the strain on their families, sickle cell “warriors” live in constant pain. Life-threatening medical issues include stroke, eye damage, infection and pulmonary issues, making Covid very risky for those with sickle cell disease. Currently, the only cure for SCD is a bone marrow or stem cell transplant. Many companies are conducting clinical trials. Advocates hope there will be more focus and attention on SCD to increase services and ultimately find a cure.

Guest Panelists:

Dr. Charl Azar, Medical Director, Comprehensive Sickle Cell Disease Treatment Center at Mass General Hospital

State Representative Bud Williams, of the 11th Hampden district in Springfield AND Chairperson, Joint Committee on Racial Equity, Civil Rights, and Inclusion

Carissa Juarez, a mother of child living with sickle cell disease. She is also a Patient Ambassador for Massachusetts Sickle Cell Association.

Dima Hendricks, Health Advocate, Activist, Author, and a Sickle Cell “Warrior”

Crystal Haynes hosts.