Sickle Cell's Story; the impact on one family and how it changed Australia


Manage episode 348463452 series 2948786
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This weeks guest Agnes Nsofwa is a registered nurse, data analyst, author, Global Health Advocate, Managing Director of Unique Living Options, Advocacy Consultant at AMN Advocacy Consulting Services specialising in Sickle Cell Disease (SCD) and Mental Health, founder of Amplify Sickle Cell Voices International Inc (ASVI) and Zambian Network For Sickle Cell Disease, as well as being the Founder and CEO of Australian Sickle Cell Advocacy Inc (ASCA) - Australia’s first charity exclusively dedicated to serving the sickle cell community.
Agnes' journey could not be experienced through one episode, so this is part 2 of this 3 part feature! In this part 2 Agnes goes into great detail of her families sickle cell story, the origins of sickle cell, the treatments offered, sickle cell pregnancy and why she started Australia's first sickle cell charity.
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