All about Retina UK

Retina UK

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הוסף לפני four שנים

תוכן מסופק על ידי Retina UK. כל תוכן הפודקאסטים כולל פרקים, גרפיקה ותיאורי פודקאסטים מועלים ומסופקים ישירות על ידי Retina UK או שותף פלטפורמת הפודקאסט שלהם. אם אתה מאמין שמישהו משתמש ביצירה שלך המוגנת בזכויות יוצרים ללא רשותך, אתה יכול לעקוב אחר התהליך המתואר כאן https://he.player.fm/legal.

Species Unite

1
Reuven Bank and Andrew Kim: When the Ocean Lost Its Stars 30:54

לפני 6 ימים30:54

הפעל מאוחר יותר

רשימות

לייק

אהבתי

30:54

לפני שנה 16:59

MP3•בית הפרקים

Join Research Intern Aysha in conversation with Research Development Manager Kate and Communications Manager Jane as they take us through the history of the charity, why we are called Retina UK and what conditions we support.

Don't miss out on this informative podcast!

207 פרקים

#Non-Profit #Business #Retina UK

All about Retina UK

Retina UK

published לפני שנה

שתפו

MP3•בית הפרקים

Don't miss out on this informative podcast!

207 פרקים

#Non-Profit #Business #Retina UK

כל הפרקים

1
Look Forward - Summer 2025 (Issue 186) 54:30

לפני 13 ימים54:30

54:30

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2025 (Issue 186). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠⁠⁠ . Contents in this edition are as follows: Help us to mark our 50th anniversary Win up to £1,000 cash in our annual raffle Register now for our flagship event of the year Looking for clarity with genetic testing Our 2024 in numbers How genetic testing can support research Annual General Meeting notice Support our anniversary appeal Get involved in our anniversary year Congratulations to our 2025 TCS London Marathon Paid advertisements: New OrCam Read 3 Dates for your diary Thank you Register now for our Professionals' Conference Spotlight on the Belfast 'Bumpers' Support our work…

1
Impact Report 2024 35:29

לפני 14 ימים35:29

35:29

Find out more about the difference we made in 2024. This report is also available in PDF and plain text (Word) formats on the Retina UK website: RetinaUK.org.uk/resource/impact-report-2024/

1
Podcast: Volunteering at Retina UK 17:20

לפני 19 ימים17:20

17:20

In this episode, we're joined by two of our wonderful volunteers, Kim and Annemarie. They chat with our Communications Manager, Jane, about their experiences with sight loss, what inspired them to volunteer with Retina UK, whilst also discussing what volunteering means to them . They also talk about all the exciting things they get up to in their peer support group meetings. We hope you enjoy the conversation!…

1
Webinar: Influencing with Retina UK 34:52

לפני 26 ימים34:52

34:52

We know a lot of people are concerned about the proposed changes to the Personal Independence Payment (PIP) that were announced at the end of March. Much of the proposal forms part of a wider consultation with the Department for Work and Pensions.Hear from our Special Project Lead, Matthew Carr, in this webinar about Influencing with Retina UK to learn more about the proposals, Retina UK’s position and how you can make sure your voice is heard by your MP and in the consultation. Matt also talks about different ways that you engage with politicians on both a local and a national level.…

1
e-Newsletter May 2025 8:26

לפני 5 weeks8:26

8:26

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442…

1
Podcast: Discussing health economics research 11:12

לפני 5 weeks11:12

11:12

In this podcast, our Research Development Manager, Kate Arkell, talks to health economics researcher Rebecca Rosi from Bangor University, who is aiming to investigate which support services are available and which are most beneficial to people living with RP.

1
Webinar: Miles for Vision: Behind the Scenes of the London Marathon 2025 42:04

לפני 9 weeks42:04

42:04

The London Marathon 2025 is fast approaching and our #TeamRetinaUK runners are well underway with their training and fundraising! In this inspiring session, our marathon runners share their personal stories, motivations, and experiences as they take on this iconic challenge to raise awareness and vital funds for retinal conditions. Hear firsthand how they are preparing for the marathon, the unique connection they have to Retina UK, and why they’re going the extra mile to help us support research and improve the lives of those affected by inherited retinal diseases. Don’t miss out on this chance to be inspired by their determination, passion, and commitment to making a difference. Whether you’re an avid runner, a supporter of Retina UK, or simply looking for motivation, this webinar is for you!…

1
e-Newsletter April 2025 9:18

לפני 10 weeks9:18

9:18

1
Webinar: Genetic Testing: What can I expect? 51:11

לפני 13 weeks51:11

51:11

Join us for our next webinar which is an exploration of a community members experiences of genetic testing with input from a genetic counsellor. If you would like more information on genetic testing, you can head to our website where you will find guidance on how genetic testing may help you and your family discover more about your inherited sight loss condition and how to unlock choices. The page can be found here: https://retinauk.org.uk/genetics/ If you would also like to watch Rob's video, that can be found here: https://retinauk.org.uk/genetics/genetic-testing/…

1
Sight Loss Survey 2025 15:28

לפני 13 weeks15:28

15:28

Join Lauren as she chats with Paula McGrath, Deputy CEO of Retina UK, about the 2025 Sight Loss Survey - why it matters, how your voice can drive real change, and how you can take part. Every three years, we carry out this survey to ensure our work continues to meet the needs of our community. Your voice matters, and we need your input to shape the future of our services, campaigns, and advocacy efforts for those living with inherited sight loss. The survey should take approximately 40 minutes. You can either complete it online by visiting RetinaUK.org.uk/survey, or call our office on 01280 821334 to book an appointment with a member of our team to complete the survey on your behalf over the telephone. The deadline for completed surveys is Friday 25 April 2025. If you have any questions, please email info@retinauk.org.uk.…

1
Look Forward - Spring 2025 (issue 185) 1:06:45

לפני 14 weeks1:06:45

1:06:45

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2025 (Issue 185). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠⁠ . Contents in this edition are as follows: Tell us about you – Tina Garvey You can influence positive change A golden opportunity for your workplace Marking 50 years of Retina UK Experimental therapy by Retina UK funded researchers leads to ‘life changing improvements’ A passion for genetic engineering Dates for your diary With opportunity, support and determination, anything can happen Research round-up From bake sales to challenges – get involved in 2025! Finding a place to thrive Thank you Help us raise awareness and vital funds in 2025 Paid Advertisement from: Seable Holidays for Blind and Partially sighted…

1
e-Newsletter February 2025 7:47

לפני 18 weeks7:47

7:47

1
Webinar: Together We Can: ways you can get involved! 40:25

לפני 18 weeks40:25

40:25

At Retina UK, we believe that together, we can make a real difference in the lives of those affected by retinal conditions. That’s why we’re inviting you listen to our webinar, "Together We Can: Ways You Can Get Involved!" – your guide to exciting fundraising opportunities in 2025. Whether you’re a seasoned fundraiser or new to supporting us, this webinar is packed with ideas and inspiration to help you get involved. From taking on iconic challenges like marathons and walks to hosting your own events, we’ll explore a variety of ways you can contribute to raising awareness and vital funds for research into inherited retinal diseases. Listen to hear from members of our fundraising team, meet passionate supporters, and learn how you can make 2025 the year you take action and make a lasting impact.…

1
A deep dive into CBS with Dr Jasleen Jolly 39:07

לפני 18 weeks39:07

39:07

In this podcast we talk to Dr Jasleen Jolly, Associate Professor at Jolly Vision Science and Honorary fellow at Melbourne University. We are also joined by Yvette Chivers, Helpline Coordinator at Retina UK, who is living with Retinitis Pigmentosa (RP) and experiences CBS. Charles Bonnet Syndrome is phenomenon where some people with sight loss experience visual hallucinations. Tune in to find out more about CBS, Yvette's experience and the work that Dr Jasleen Jolly is doing.…

1
Looking back on 2024 with our CEO, Tina Garvey 26:34

לפני 20 weeks26:34

26:34

We are joined today by Tina Garvey, Chief Executive Officer at Retina UK. In this episode we reflect on the year 2024, taking a closer look at some of the most significant milestones and achievements for Retina UK, as well as the challenges we faced. We also explore the lasting impact Retina UK has had on the community, and look ahead to the exciting projects in store for 2025.…

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