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12. Here's a Warrior: Idiopathic Intracranial Hypertension, Neuro-Behçet's Syndrome, Parkinson's Disease ft. Levi Peterson
Manage episode 394035862 series 3497981
תוכן מסופק על ידי Mridula Bharathi. כל תוכן הפודקאסטים כולל פרקים, גרפיקה ותיאורי פודקאסטים מועלים ומסופקים ישירות על ידי Mridula Bharathi או שותף פלטפורמת הפודקאסט שלהם. אם אתה מאמין שמישהו משתמש ביצירה שלך המוגנת בזכויות יוצרים ללא רשותך, אתה יכול לעקוב אחר התהליך המתואר כאן https://he.player.fm/legal.
This week's episode is with Levi Peterson, a fighter of Idiopathic Intracranial Hypertension, Neuro-Behçet's syndrome, and Parksinon's disease. Levi has also experienced 10 major brain surgeries, resulting in her becoming an expert on shunting technology from past complications. In the past, she was an EMT, and currently, she is a patient navigator, which we expand on in the episode.
In addition, Levi shares ways she maintained hope and remained strong through her 10 brain surgeries and how she is using her experiences to help other patients currently. We also talk about the numerous complications Levi endured after her invasive surgeries and how artificial intelligence could play a role in the future of shunts. We later discuss the stigma behind IIH and how new research and technology are playing a role in reducing this stigma and increasing awareness of rare neurological disorders. Levi's bravery and strength are incredible, and her humor makes this episode an entertaining listen!
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Links Levi Mentioned/helpful resources:
- https://rarediseases.org/
- https://my.clevelandclinic.org/health/diseases/21968-idiopathic-intracranial-hypertension
- https://www.mayoclinic.org/diseases-conditions/behcets-disease/symptoms-causes/syc-20351326
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