Player FM - Internet Radio Done Right
27 subscribers
Checked 4M ago
הוסף לפני four שנים
תוכן מסופק על ידי HypermobilityHH. כל תוכן הפודקאסטים כולל פרקים, גרפיקה ותיאורי פודקאסטים מועלים ומסופקים ישירות על ידי HypermobilityHH או שותף פלטפורמת הפודקאסט שלהם. אם אתה מאמין שמישהו משתמש ביצירה שלך המוגנת בזכויות יוצרים ללא רשותך, אתה יכול לעקוב אחר התהליך המתואר כאן https://he.player.fm/legal.
Player FM - אפליקציית פודקאסט
התחל במצב לא מקוון עם האפליקציה Player FM !
התחל במצב לא מקוון עם האפליקציה Player FM !
פודקאסטים ששווה להאזין
בחסות
<
<div class="span index">1</div> <span><a class="" data-remote="true" data-type="html" href="/series/in-her-ellement">In Her Ellement</a></span>
AI and digital expert Suchi Srinivasan and fintech practice leader Kamila Rakhimova from Boston Consulting Group (BCG) talk to the women at the vanguard of business, digital, and technology. They’re digging into how these powerhouse leaders got where they are—everything from the joy of projects gone right to the realities of family responsibilities. And crucially, asking: what was that moment you knew you weren't merely getting there...you had arrived? That's when you know you're in your element.
66 - Kalin Johnson on Advocacy, Neurodivergency & More
Manage episode 362014528 series 2817872
תוכן מסופק על ידי HypermobilityHH. כל תוכן הפודקאסטים כולל פרקים, גרפיקה ותיאורי פודקאסטים מועלים ומסופקים ישירות על ידי HypermobilityHH או שותף פלטפורמת הפודקאסט שלהם. אם אתה מאמין שמישהו משתמש ביצירה שלך המוגנת בזכויות יוצרים ללא רשותך, אתה יכול לעקוב אחר התהליך המתואר כאן https://he.player.fm/legal.
On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best through concierge whole person care. As a licensed clinical pharmacist, functional medicine specialist, healthcare advocate, and neurodivergent mentor, she bridges the gap between mental and physical health through her professional and personal experience. Kalin brings a unique and enthusiastic perspective to her private practice. A perspective gained from living life as an LGBTQIA+, ADHD and autistic individual with hypermobile Ehlers-Danlos Syndrome. She cares, coaches, and mentors with passion and an insatiable appetite to help other neurodivergent and hypermobile individuals navigate a world that wasn’t built with them in mind. If you’re interested in working with Kalin one-on-one, signing up for her newsletter, or attending one of her free webinars, head over to her website (kalinjohnson.com).
…
continue reading
66 פרקים
Manage episode 362014528 series 2817872
תוכן מסופק על ידי HypermobilityHH. כל תוכן הפודקאסטים כולל פרקים, גרפיקה ותיאורי פודקאסטים מועלים ומסופקים ישירות על ידי HypermobilityHH או שותף פלטפורמת הפודקאסט שלהם. אם אתה מאמין שמישהו משתמש ביצירה שלך המוגנת בזכויות יוצרים ללא רשותך, אתה יכול לעקוב אחר התהליך המתואר כאן https://he.player.fm/legal.
On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best through concierge whole person care. As a licensed clinical pharmacist, functional medicine specialist, healthcare advocate, and neurodivergent mentor, she bridges the gap between mental and physical health through her professional and personal experience. Kalin brings a unique and enthusiastic perspective to her private practice. A perspective gained from living life as an LGBTQIA+, ADHD and autistic individual with hypermobile Ehlers-Danlos Syndrome. She cares, coaches, and mentors with passion and an insatiable appetite to help other neurodivergent and hypermobile individuals navigate a world that wasn’t built with them in mind. If you’re interested in working with Kalin one-on-one, signing up for her newsletter, or attending one of her free webinars, head over to her website (kalinjohnson.com).
…
continue reading
66 פרקים
כל הפרקים
×H
Hypermobility Happy Hour
1 81 - My Hypermobility: New Children's Book on Hypermobility by Leah Pinnington 36:05
36:05
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
36:05In this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally. Links: Instagram: https://www.instagram.com/leahpinnington_author/ My Hypermobility on Amazon: https://www.amazon.com/My-Hypermobility-Leah-Pinnington/dp/1738437205 My Hypermobility at Target: https://www.target.com/p/my-hypermobility-by-leah-pinnington/-/A-91860135…
H
Hypermobility Happy Hour
1 80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra Orfanides 58:06
58:06
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
58:06This episode features a discussion with Alex Orfanides, Masters in Osteopathy and Bachelor of Arts (honors), a hypermobility specialist osteopath and content creator who hosts the fantastic podcast Help! I’m Hypermobile. Alex has a unique blend of expertise gained through her prior degree in English literature and her clinical work with elite athletes. She challenges conventional perspectives on clinical outcomes in hypermobile patients and is dedicated to helping individuals with hypermobility (including hypermobile Ehlers-Danlos syndrome) to achieve their goals. Alex’s academic background fuels her commitment to promoting informed consent in healthcare settings, emphasizing the importance of patients understanding not only the “what” but also the “why” when it comes to their experiences and conditions. This dedication to answering the “why” questions has led to the successful establishment of her social media presence, the Hypermobility HQ Discord community, and the Help! I’m Hypermobile podcast. Alex is committed to doing her best to make the world a better place for hypermobile people. A friendly reminder that this podcast is for informational and educational purposes only, it is not advice. If you have questions or are having trouble finding resources or professionals, please feel free to reach out to us at hypermobilityhappyhour@gmail.com Links: Help! I'm Hypermobile podcast available at: https://podcasts.apple.com/us/podcast/help-im-hypermobile/id1691592838 Hypermobility HQ: https://hypermobilityhq.com/contact Instagram: https://www.instagram.com/hypermobilityhq/…
H
Hypermobility Happy Hour
1 79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & More 54:31
54:31
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
54:31This episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studies and anecdotal evidence from healthcare providers to help educate others about various movement disciplines. Celest is a co-author of the book Too Flexible to Feel Good and she also has a blog, a podcast, various YouTube videos, an active social media presence, and offers private 1 on 1 online science where she focuses on a neuromechanical approach to physiotherapy. A friendly reminder that this podcast is for informational and educational purposes only, it is not advice. If you have questions or are having trouble finding resources or professionals, please feel free to reach out to us at hypermobilityhappyhour@gmail.com https://www.celestpereira.com/ Beginner’s Yoga - Shapes with Weights (Celest Pereira): https://www.youtube.com/watch?v=ZJXEUpBVycY https://www.instagram.com/celestpereirapt/ Too Flexible to Fell Good (book), available at: https://www.amazon.com/Too-Flexible-Feel-Good-Hypermobility/dp/1628604174/ref=sr_1_1?crid=2GSKMQH1YS2Y4&dib=eyJ2IjoiMSJ9.HKAql1iYWO27pOpry3uvh9JjnUPVkzjR5Hm0JzR3xDoABa1qzYNVJSXJlMcGmSN25k6JOWJH3m3CIkIGeiBq69UV6lgFmrEWt8hD1wR9nOu1utB2kUEKM-5-_x9PO0xew-Vd-nquXdgtXziNtcL9IhQAhiACKkEz-XRqCnfj7F2pBMTZFMmEd_hizsMf3M6_20VSeCLFfdl98P7bAW0JdTEA2FwjNfw-4smfBOlWi-w.8GKNhGvYeMMiH7ccaXrTaBXBSt__q0y1TihzDvmkikE&dib_tag=se&keywords=too+flexible+to+feel+good&qid=1712157923&sprefix=too+flexible+%2Caps%2C1230&sr=8-1 Love @ First Science Podcast, available at: https://www.celestpereira.com/podcast…
H
Hypermobility Happy Hour
1 78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work 52:19
52:19
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
52:19Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at the Rio Paralympic Games, Allysa made history when she won a gold medal in paratriathlon’s debut as a medal event at the Paralympics. She also competed in track and field at the Rio games where she landed an impressive sixth place finish in the 200m event. Allysa has been featured in ESPN the Magazine’s Body issue and has been dominant in the women’s PTS2 division since the Rio games. In July 2019, Allysa won an ESPY award for Best Female Athlete with a disability. Allysa has struggled with significant health challenges in late 2020 and early 2021 and spent several months in the hospital with endocarditis or severe inflammation of the heart. She was able to return to full time training in the spring and was able to earn a silver medal at the Americas Triathlon Para Championships event on June 27, 2021 in Pleasant Prairie, Wisconsin, a key selection event for the Tokyo Games. Links: https://www.teamusa.com/profiles/allysa-seely-817537 https://www.instagram.com/triallysa…
H
Hypermobility Happy Hour
1 77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE) 53:30
53:30
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
53:30On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in the greater San Diego area. Movement Reborn’s YouTube channel has some videos about hypermobility, one of which has been seen nearly sixty thousand times as of the time of this recording. Andy discusses nervous system regulation, movement for hypermobile people and people with EDS, neurokinetic treatment, resources that can be helpful for movement protocols and more. Links: Movement Reborn https://movementreborn.com/ YouTube Video: Exercises and Tips for Hypermobility - Stretch Less, Stabilize More. available at: https://www.youtube.com/watch?v=-CzIsYElN0w&t=27s YouTube Video: Stabilizing the Hip: Exercises for Hypermobility and EDS, available at: https://www.youtube.com/watch?v=RuWzU4w2oYw Neurokinetic Therapy https://neurokinetictherapy.com/about/david-weinstock/…
H
Hypermobility Happy Hour
1 76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT) 49:24
49:24
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
49:24On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobility Spectrum Disorders (HSD) and Postural Orthostatic Tachycardia Syndrome (POTS). Dr. White owns her own practice, Intrinsic Physical Therapy & Wellness, a specialty PT clinic in Minneapolis, Minnesota, specifically designed for people living with complex, chronic conditions. She is passionate about providing a space for people to feel seen and heard in their healthcare needs no matter how complex or rare their symptoms may be. Rita combines her personal experience of living with chronic pain and fatigue with her professional expertise to help people find lasting relief from symptoms. Links: https://www.intrinsic-pt.com/ Instagram: @theintrinsicpt Paper on the “presentation and physical therapy management of upper cervical instability in patients with symptomatic generalized joint hypermobility: International expert consensus recommendations” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9893781/…
H
Hypermobility Happy Hour
1 75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach 1:00:23
1:00:23
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:00:23On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth. Links: https://spreadwhealth.com/overcome-pain https://www.instagram.com/whealth https://www.facebook.com/spreadwhealth https://www.youtube.com/spreadwhealth…
H
Hypermobility Happy Hour
1 74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility 1:17:17
1:17:17
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:17:17In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite athletes. He has worked with swimmers at many levels from physical therapy to the USA Olympic Swim Team. Dr. Cunningham also reflects on his own personal experience with hypermobility as well as his professional insights gleaned from working with many hypermobile people. Links: https://www.theswimdoc.com/#/ Instagram: https://www.instagram.com/drbriancunningham Article by Dr. Cunningham “Hypermobility in Swimmers” https://www.streamlineteams.org/post/hypermobility-in-swimmers…
H
Hypermobility Happy Hour
1 73 - Occupational Therapist Jo Southall on Pacing, Patient Advocacy, Dark Age Medicine & More 49:43
49:43
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
49:43On this episode, our guest is Jo Southall, Occupational Therapist and Patient Advocate. Jo is an Independent Occupational Therapist and an expert patient with many years of experience self-managing complex health conditions. Jo began working life in the sport and Outdoor Adventure industries. After being diagnosed with Hypermobile Ehlers Danlos Syndrome, Jo returned to study and gained a BSc degree in Occupational Therapy from the University of Northampton. Jo was named Changemaker Student of the Year for 2016 in connection with their work in helping to bring wheelchair basketball to the university, their volunteer work with the Hypermobility Syndromes Association in the UK (HMSA) and writing their blog about their own experiences and practice. Jo's final placement also made her the UK’s first Occupational Therapist to work in the travel and tourism industry. Jo is also a pioneer in remote placement work as well. Jo completed her degree in September 2016 after 5 years, thousands of miles of travel, 57 nights in 4 different hospitals, 5 different A&Es (some more than once), 4 ambulance trips, countless hospital and GP appointments, 3 work placements, living in student accommodation, hotels and friends’ houses. Jo has been self employed working via videochat since obtaining qualification and they continue to volunteer for the HMSA. Jo is also on the medical advisory board for the HMSA. Jo's regular Occupational Therapy work consists mainly of 1:1 appointments with clients and their loved ones. Jo is a regular guest lecturer and leads webinars and training sessions both in the UK and abroad. Recently, Jo started down the Practice Educator route and you can find out more about that in their Practice Educator Diary (link below). Links: https://jboccupationaltherapy.co.uk/ https://jboccupationaltherapy.co.uk/category/occupational-therapy/practice-educator-diary/ https://www.instagram.com/jboccytherapy/?hl=en Jo Southall on The Rest Room Podcast: Pacing: A guide for people who’d rather be doing other things on Apple Podcasts, available at: https://podcasts.apple.com/gb/podcast/pacing-a-guide-for-people-whod-rather-be-doing-other-things/id1218852479?i=1000550501384 (This is the first episode in a series) Jo Southall's Youtube channel available at: https://www.youtube.com/@JBOccyTherapy Jo Southall on workplace adjustments: https://www.youtube.com/watch?v=3yjyuGfxTY8 Jo Southall on occupational therapy: https://www.youtube.com/watch?v=_NnWsZszG6g Article on the "Siberian Ice Princess" Mummified Remains: D.I. Abrams, M.D., Integrating Cannabis Into Clinical Care, Curr. Oncol. 2016, available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4791148/ (see introduction)…
H
Hypermobility Happy Hour
1 72 - Remembering Stephanie Aston - with Punteha van Terheyden 38:13
38:13
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
38:13On this episode, British-Iranian journalist Punteha van Terheyden discusses the recent tragic death of Stephanie Aston in New Zealand and the article Punteha wrote about Steph and Punteha’s own experiences with hypermobility and other medical conditions. Punteha van Terheyden - https://www.vtfeatures.co.uk/ 'Stephanie Aston died after doctors said she was faking her symptoms. I'm not even surprised' - Story by Punteha van Terhayden - https://www.mamamia.com.au/stephanie-aston-death/ People magazine article about Stephanie Aston - https://people.com/ehlers-danlos-new-zealand-stephanie-aston-dies-7966639 Another recent article by Punteha: https://metro.co.uk/2023/10/04/it-costs-a-bomb-but-cannabis-oil-has-allowed-me-to-stand-up-again-19589151/…
H
Hypermobility Happy Hour
1 71 - Hormones, Pelvic Floor and Hypermobility: Dr. Brit Harmon (PT) 42:41
42:41
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
42:41On this episode, our guest is Dr. Brit Harmon, a Doctor of Physical Therapy who specializes in hypermobility and women’s health. Dr. Brit works to help women to feel more empowered in their ability to create sustainable and obtainable shifts in their bodies and minds. Her background in Hypermobility, the female cycle, holistic health, and the pelvic floor has allowed her to connect the dots in helping women to more fully understand how to care for themselves. Links: https://www.bloomembody.com/ https://www.bloomembody.com/free-resources…
H
Hypermobility Happy Hour
1 70 - Highly Sensitive People, Neurodivergency, ADHD & Advocacy: Donna Irene 1:00:07
1:00:07
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:00:07On this episode, Donna Irene talks about her experience with hypermobile Ehlers-Danlos Syndrome and related conditions. Donna is a travel photographer with hEDS from Miami, FL and soon to be in Chattanooga, Tennessee. She picked up a camera at the age of 13 and since then her camera has taken her to 5 continents and 40 countries. Since her diagnosis in 2022 she has become an advocate for women with invisible disabilities and shares about her journey on social media. Links: Instagram: https://www.instagram.com/chronicandcapable TikTok: chronicandcapable Dr. Rodney Grahame quote: https://www.the-rheumatologist.org/article/function-despite-pain/4/?singlepage=1 Dermal fibroblast article: https://pubmed.ncbi.nlm.nih.gov/36552803/…
H
Hypermobility Happy Hour
1 69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & More 1:10:29
1:10:29
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:10:29Content advisory: This episode contains discussion of highly sensitive topics including suicide and allegations of child abuse. Please exercise listener discretion. On this episode, Kerry interviews Donna Sullivan, a patient advocate with the organization TCAPP, The Coalition Against Pediatric Pain. She is a graduate of Providence College and has worked for more than two decades in media, communications and marketing with some of the world’s biggest brands. Donna uses her skills to help TCAPP raise awareness of the needs of children living with complex pain. She and her husband have three children diagnosed with Ehlers-Danlos Syndrome, POTS, and complex regional pain syndrome. Donna's goal is to give voice to the real struggles that families with complex pain face in trying to get appropriate care and treatment. Links: TCAPP Website https://tcapp.org/ TCAPP Summer Pain Camp https://tcapp.org/summer-pain-camp/ Fundraiser for Documentary: https://openeyepictures.com/complicated https://www.pathwaystotrust.org/initiatives https://www.thecut.com/2022/10/child-abuse-munchausen-syndrome-by-proxy.html When the Helping Hand Hurts: How Medical Child Abuse Charges Are Undermining Parents’ Decision Making Rights over Children’s Medical Care by Maxine Eichner https://aaml.org/wp-content/uploads/MAT102-1.pdf…
H
Hypermobility Happy Hour
1 68 - Mitch Martow Update on Advocacy & More 48:26
48:26
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
48:26Mitch Martow returns to the Hypermobility Happy Hour to talk about his documentary and advocacy efforts. Links Bend or Break documentary https://youtu.be/5toRNvFug3Y Instagram (@mitchmartow) https://instagram.com/mitchmartow?igshid=MTIyMzRjYmRlZg== Bend or Break Instagram (@_bend_or_break_) https://instagram.com/_bend_or_break_?igshid=MTIyMzRjYmRlZg== https://www.cnn.com/videos/health/2022/12/16/ehlers-danlos-syndrome-patient-stories-contd-lon-orig.cnn…
H
Hypermobility Happy Hour
1 67 - Kalin Johnson (Part 2) Advocacy, Neurodivergency & More 38:27
38:27
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
38:27On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best through concierge whole person care. As a licensed clinical pharmacist, functional medicine specialist, healthcare advocate, and neurodivergent mentor, she bridges the gap between mental and physical health through her professional and personal experience. Kalin brings a unique and enthusiastic perspective to her private practice. A perspective gained from living life as an LGBTQIA+, ADHD and autistic individual with hypermobile Ehlers-Danlos Syndrome. She cares, coaches, and mentors with passion and an insatiable appetite to help other neurodivergent and hypermobile individuals navigate a world that wasn’t built with them in mind. If you’re interested in working with Kalin one-on-one, signing up for her newsletter, or attending one of her free webinars, head over to her website (kalinjohnson.com).…
H
Hypermobility Happy Hour
1 66 - Kalin Johnson on Advocacy, Neurodivergency & More 41:42
41:42
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
41:42On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best through concierge whole person care. As a licensed clinical pharmacist, functional medicine specialist, healthcare advocate, and neurodivergent mentor, she bridges the gap between mental and physical health through her professional and personal experience. Kalin brings a unique and enthusiastic perspective to her private practice. A perspective gained from living life as an LGBTQIA+, ADHD and autistic individual with hypermobile Ehlers-Danlos Syndrome. She cares, coaches, and mentors with passion and an insatiable appetite to help other neurodivergent and hypermobile individuals navigate a world that wasn’t built with them in mind. If you’re interested in working with Kalin one-on-one, signing up for her newsletter, or attending one of her free webinars, head over to her website (kalinjohnson.com).…
H
Hypermobility Happy Hour
1 65 - Taylor Goldberg on Hypermobility 1:06:46
1:06:46
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:06:46In this episode, Taylor Goldberg, DC, discusses her practice as a hypermobility coach and her perspectives on various aspects of hypermobility spectrum conditions. Taylor is a chiropractor who works with hypermobile individuals and has a unique perspective through her education and her own experiences with hypermobility. www.hypermobilechiro.com Instagram: @thehypermobilechiro…
H
Hypermobility Happy Hour
1 64 - Savita Sandhu on Diet and Hypermobility (Part 2) POTS & Diet 51:12
51:12
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
51:12On this episode, returning guest Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses diet, POTS, and hypermobility. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional and Environmental Medicine. Savita also has an amazing instagram page at hypermobility.dietitian where she provides information and resources about food and micronutrients for hypermobile people. Links: https://www.savvydietetics.com.au https://www.instagram.com/hypermobility.dietitian/?hl=en…
H
Hypermobility Happy Hour
1 63 - Dr. Alysse Cruz on Diagnosing and Treating Hypermobility from Ages 5-80 52:06
52:06
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
52:06On this episode, Dr. Alysse Cruz, who goes by @zebracornmd on Instagram, discusses the diagnostic process for Hypermobility and more. Dr. Cruz is a multiracial, first generation, board-certified family medicine doctor with myopathic Ehlers-Danlos Syndrome (EDS) and POTS and a passion for teaching. She obtained her degree from The Ohio State University and completed her residency training at the University of Minnesota Medical Center - Smiley’s Clinic. Dr. Cruz now works at Allina Health in Blaine, Minnesota and she has developed specialized knowledge and expertise in diagnosing and treating various types of EDS including hypermobile Ehlers-Danlos Syndrome. Links: https://www.instagram.com/zebracornmd/ https://account.allinahealth.org/providers/19405…
H
Hypermobility Happy Hour
1 62 - Camille Schrier on Advocacy, Awareness & More 1:05:49
1:05:49
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:05:49On this episode, Camille Schrier returns to talk about her life as a pharmacy student and her continuing advocacy efforts regarding Ehlers-Danlos Syndrome. Camille graduated with honors from Virginia Tech in 2018 with dual Bachelor of Science degrees in Biochemistry and Systems Biology. She is currently pursuing a Doctor of Pharmacy degree at Virginia Commonwealth University. In 2019 Camille earned the title Miss Virginia after performing a science experiment (the catalytic decomposition of hydrogen peroxide) as her onstage talent. In December 2019, Camille was named Miss America 2020, again after showcasing her science skills. Camille also provides STEM outreach via Her Royal Scientist. Links: https://www.camilleschrier.com…
H
Hypermobility Happy Hour
1 61 - Dr. Melissa Koehl (PT) on Treating the Full Spectrum of Hypermobility 1:12:29
1:12:29
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:12:29On this episode, Kerry interviews Dr. Melissa Koehl, a physical therapist diagnosed with hypermobile Ehlers-Danlos Syndrome. Dr. Melissa was a competitive level 10 gymnast in her earlier years and ended up incurring a number of injuries including a career-ending stress fracture to her lower back. Dr. Melissa created her own ChimeraFit method that combines elements of Pilates, Yoga, strength, and balance work. She has been teaching her method to others with hypermobility, arthritis, and joint pain for over 20 years. She also has a great instagram page with lots of content about different movement approaches for people at many places on the hypermobility spectrum. Links: https://www.instagram.com/dr.melissakoehl.pt/ https://www.chimera-health.com/ https://www.chimera-health.com/hypermobile-fitness-course…
H
Hypermobility Happy Hour
1 60 - Zinc & Hypermobility: Fiona Sullivan & Danielle Humphreys 1:33:35
1:33:35
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:33:35Content notice: This episode contains discussion of premature death and descriptions of physical symptoms and medical procedures/conditions This podcast is for informational and educational purposes only. Please consult with appropriate medical professionals before making any changes to your own health regimen. On this episode, researchers Fiona Sullivan and Danielle Humphreys (who have both been diagnosed with hEDS) discuss their research into the causes and mechanisms underlying hypermobility and other health conditions and what they’ve found regarding the role of zinc in human health. Instagram: https://www.instagram.com/fiona_my_eds/ (Fiona) https://www.instagram.com/edsexpertpatient/ (Danielle)…
H
Hypermobility Happy Hour
1 59 - Doug Kremer on Learning about and Treating Hypermobility Later in Life and hEDS in Men 49:40
49:40
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
49:40On this episode, Kerry interviews Doug Kremer, a mechanical engineer diagnosed with hEDS in late 2021. He’s the father of two girls, one who is 17 and has mild features of hypermobility and another daughter who is 19 and was diagnosed with hEDS in mid-2021. Doug reached out after finding success with one of the treatments we discussed on this show and he and I have become friends chatting about hypermobility and many other shared interests. Doug has found some great hypermobility hacks that have helped him to improve his life and it’s great to hear a hypermobility success story and to have an important reminder that hEDS definitely does impact men as well and that the condition can be diagnosed at virtually any age.…
H
Hypermobility Happy Hour
1 58 - Hyp-ACCESS: L Tuthall and Audre Wirtanen on Reimagining Hypermobility 1:03:16
1:03:16
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:03:16Content Warning: This episode contains mentions of suicidality, ableism, abuse, exploitation, medical trauma, white supremacy, eugenics. Please exercise listener discretion. On this episode, Kerry interviews L Tuthall (they, them) and Audre Wirtanen (she, her)--two disabled community organizers, care access advocates, artists, and researchers who co-founded and co-direct Hyp-ACCESS. Hyp-ACCESS is a Hypermobile-specific disability justice organization working to increase care access and justice for Hyps (a term they coined) in the arts, medicine, and alternative therapy spaces. L and Audre met in a somatic training that was not accessible to them and so they developed Hypermobile Accessible Proprioceptive Therapy (or HAPT) by combining sensorimotor theory with the values of disability justice. L and Audre develop and operate multi-field care access programs and are accessibility consultants for dance organizations and policy groups. They also run IRB approved research and collaborate with scientists at WUStL and Keene State. Links: https://www.hyp-access.com/ https://www.instagram.com/hyp_access/ https://www.instagram.com/audrewirtanen/ https://www.instagram.com/ltuthall/…
H
Hypermobility Happy Hour
1 57 - Victoria Daylor: From Dancer to Pre-Med with hEDS 54:44
54:44
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
54:44Victoria was a professional dancer and Gyrotonic Instructor who has performed throughout the US and worldwide including in Israel, Greece, and a tour in Austria. After being diagnosed with hypermobile Ehlers-Danlos Syndrome, Victoria switched gears and is now a Postbac student at Columbia University in New York City where she is pre-med and preparing for a career as a physician. Links: https://www.victoriadaylor.com/ https://www.instagram.com/victoria.daylor/…
H
Hypermobility Happy Hour
1 56 - Savita Sandhu (Savvy Dietetics) on Diet and Hypermobility (Part 1) Mast Cells & Diet 58:20
58:20
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
58:20On today’s episode, Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses the relationship between hypermobility and our diets. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional and Environmental Medicine. Savita also has an amazing instagram page at hypermobility.dietitian where she provides information and resources about food and micronutrients for hypermobile people. https://www.instagram.com/hypermobility.dietitian https://www.savvydietetics.com.au/…
H
Hypermobility Happy Hour
1 55 - Dr. Pradeep Chopra: On Headaches in EDS and their Various Causes (Part 3) 29:00
29:00
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
29:00This episode is Part 3 in a series of interviews with Dr. Pradeep Chopra. This episode focuses on the types of headaches experienced by people with EDS and hypermobility and how those headaches can be diagnosed and treated. Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management, also from Harvard. Dr. Chopra is double board certified in Pain Management and Anesthesiology by the American Board of Anesthesiology. Currently, Dr. Chopra holds the appointment of Assistant Professor (Clinical) at the Department of Medicine at Brown Medical School as well as an adjunct Professorship of Anesthesiology at Boston University School of Medicine. Dr. Chopra has won a number of awards commemorating his achievements and his approach to treating his patients. He is also the author of several publications on chronic pain including book chapters and academic articles. He has a special interest in managing complex pain conditions including complex regional pain syndrome (CRPS) and the Ehlers-Danlos Syndromes. Dr. Chopra also frequently gives presentations to raise awareness about EDS and specifically about pain issues in the community. Links: https://painri.com/pradeep-chopra-md/…
H
Hypermobility Happy Hour
1 53 - Dr. Angelina Vera on Hips, Hypermobile Genetics, and More 56:37
56:37
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
56:37On this episode, Kerry interviews Dr. Angelina Vera, a fellowship trained orthopedic surgeon who specializes in sports medicine, arthroscopy, and the treatment of injuries to the shoulder, hip, knee, and ankle. Her practice is located in the Las Vegas, Summerlin, and Henderson areas of Nevada. She has a particular interest in hip pathology, anatomic variances, and genetics as they relate to dancers and she has a focus on the prevention and management of sports and dance related injuries. Dr. Vera has conducted some very interesting research which she has presented at multiple national and international conferences. She is also the author of several peer reviewed publications. Links: https://www.angelinaveramd.com/ https://www.angelinaveramd.com/pdfs/vera-high-prevalence-connective-tissue-gene-variants-professional-ballet.pdf…
H
Hypermobility Happy Hour
1 52- John Ferman of EDS Awareness: EDS is Not All in the Head 33:12
33:12
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
33:12On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are posted to YouTube (one of which has an astounding 50,000 views) so definitely check them out if you haven’t already and are looking to learn more about Ehlers-Danlos and chronic pain. One of the recent topics John has been working on is raising awareness about how EDS is not “all in your head.” Links: EDS Awareness site - https://www.chronicpainpartners.com/ EDS is not all in your head article - https://www.chronicpainpartners.com/eds-is-not-all-in-the-head/ Healthcare Providers CME Programs - https://ehlers-danlos-cme.org/ EDS Leadership Program - http://www.leadeds.com/ EDS Awareness Newsletters - https://www.chronicpainpartners.com/eds-awareness-educational-programs-and-newsletter/…
H
Hypermobility Happy Hour
1 51 - Christie Cox - Her Advocacy Practice & New Book Holding it All Together When You're Hypermobile 1:18:49
1:18:49
הפעל מאוחר יותר
הפעל מאוחר יותר
רשימות
לייק
אהבתי
1:18:49Christie Cox is a patient advocate who was diagnosed with hypermobile Ehlers-Danlos Syndrome after a 17 year quest to find answers. Christie just published a fascinating book called Holding it All Together When You’re Hypermobile: Achieving a Better Life Experience with EDS, POTS, & Joint Instability and she has a patient advocacy practice that offers free initial consultations and other great content on her website. Christie’s book explores the basics of hypermobile EDS, its common comorbidities, tips on getting diagnosed, coping strategies, lifestyle changes, and tons of other resources on how to get help. Check out her website for more free resources for EDS patients. The book also delves into the future of scientific medical research, in search of tools for earlier diagnosis and treatment, and how to foster a positive mindset in the face of despair. Links: Holding it All Together Book: https://www.holdingitalltogether.com/ Christie Cox’s Patient Advocacy: https://www.journey2joyous.com Scheduling A Free Initial Consultation: https://calendly.com/journey2joyous/15min…
ברוכים הבאים אל Player FM!
Player FM סורק את האינטרנט עבור פודקאסטים באיכות גבוהה בשבילכם כדי שתהנו מהם כרגע. זה יישום הפודקאסט הטוב ביותר והוא עובד על אנדרואיד, iPhone ואינטרנט. הירשמו לסנכרון מנויים במכשירים שונים.