Episode #9 Patient Centered View of Narcolepsy

The White Noise Podcast

In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy.

SHOW NOTES

1. Introduction of Guest: (5:00)
2. Matt’s Best Advice (11:00)
3. Matt’s Role in the sleep community (12:40)
4. Matt’s symptoms onset (15:00)
5. Matt’s additional symptoms (19:00)
6. Matt’s onset of cataplexy (23:00)
7. Cataplexy triggers (24:45)
8. Delayed diagnosis: (27:00)
9. Nightmares and sleep paralysis onset (31:30)
10. One more question about sleep paralysis (34:15)
11. Partial cataplexy (37:50)
12. Diagnosis and Management: (39:00)
13. Pitolisant (43:45)
14. Strategic Napping (44:15)
15. Bitter Pills (45:15)
16. AASM revised Guidelines (47:22)
17. Sodium Oxybate and Cataplexy (49:00)
18. Finding a sleep physician to manage narcolepsy (55:00)
19. Sleep apnea (60:30)
20. MSLT (62:15)
21. Treat Clinically (65:00)
22. 4 pillars of management (66:00)
23. Patient request/feedback (68:00)
24. Academic vs private practice (71:30)

Links to articles and guidelines referenced in this episode are included

Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.

Treatment of central disorders of hypersomnolence: an American Academy of Sleep Medicine clinical practice guideline