הפודקאסטים הטובים ביותר ב-Yopd (2024)

1
Choosing DBS 57:51

2M ago57:51

57:51

Supported by Abbott. Podcast Summary: Overview of DBS for Parkinson's Disease In this episode, we discuss Deep Brain Stimulation (DBS), a therapy used for over 20 years to manage Parkinson's symptoms when medications aren't enough. DBS involves surgically implanting electrodes in the brain, connected to a battery pack in the chest, to improve motor…

1
Season 4 Episode 5 Rock climbing, a vision to end Parkinson’s disease and the Today Show! 40:16

7M ago40:16

40:16

Join me as I speak with a panel of guests today including Molly Cupka, the Director of Sportrock Climbing Center, Alexandria and Founder of Up Ending Parkinsons. Molly is determined to spread the addictive sport that is rock climbing throughout the Parkinsons community. In addition, Molly is also dedicated to funding research and sharing simple, ev…

1
From Awareness to Action: The Final Episode 10:35

8M ago10:35

10:35

In this bittersweet finale of "When Life Gives You Parkinson's," we reflect on the incredible journey we've shared over 124 episodes. From the very first episode to this one, we've laughed, cried, and learned together. Countless guests have graced our show, sharing their stories, insights, and expertise, making each episode a treasure trove of know…

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Season 4 Episode 4 Dr. Sara Whittingham 37:49

9M ago37:49

37:49

What do Parkinson’s disease and an Ironman Triathlon have in common…Dr. Sara Whittingham Dr. Sara Whittingham is an Air Force Veteran and Anesthesiologist at Cleveland Clinic, Marymount Hospital, and clinical faculty member at Northeast Ohio Medical University. She traveled the world caring for fellow service members and patients. In Nov. 2020, at …

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Season 4 Episode 2: Tim Hague runs the race of his life-winner of season #1 of The Amazing Race Canada 43:47

9M ago43:47

43:47

Time Hague runs the race of his life. Tim Hague Sr. overcame the odds when he went from a diagnosis of Parkinson’s disease to winning season #1 of The Amazing Race Canada. Listen in as he shares the lessons he learned from that experience. His message is wrapped in the idea of having the strength to do your best, the courage to be content with what…

1
Season 4 Episode 3: Billy Kennedy, American basketball coach, discusses living with Parkinson's disease while in the public eye 16:54

9M ago16:54

16:54

Billy Kennedy is an American basketball coach who has a winning career spanning almost three decades. He talks candidly about his diagnosis during a career change, DBS surgery and his approach to living with Parkinson’s disease.על ידי Teresa Jackson

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Season 4 Episode 1: Up Ending Parkinson's disease with Molly Cupka 34:30

9M ago34:30

34:30

Have you heard that exercise may slow the progression of Parkinson’s Disease? Are you curious which types of exercise may help? Please join me as I chat with Molly Cupka, Director of Sportrock Climbing Center in Alexandria, Virginia and Founder and President of Up Ending Parkinson’s. In addition, two special guests, Teresa Bennett and Michelle Sloa…

1
Dialing in DBS and Sorting Through the Data with Rune Labs CEO Brian Pepin 32:59

10M ago32:59

32:59

In the latest episode of "When Life Gives You Parkinson’s," Larry Gifford shares insights into his Deep Brain Stimulation (DBS) journey alongside his partner, Rebecca Gifford. Larry expresses excitement about the positive impact of DBS on his symptoms, noting improvements in walking, voice, and overall confidence. He recommends Dr. Jon Stamford’s n…

1
DBS: I Helped Surgeons Operate on my Brain 39:03

12M ago39:03

39:03

In this episode of "When Life Gives You Parkinson’s," Larry and Rebecca dive into Larry's recent Deep Brain Stimulation (DBS) surgery. It's the culmination of their DBS series, showcasing moments before and after the procedure. (Episode six of our 2023 DBS series) Larry shares his experiences, from the anticipation of the surgery to post-surgery re…

1
DBS Pre-Op Talks: Love and Transition 31:20

1y ago31:20

31:20

Season 6, Episode 6 SHOW NOTES Oct 17, 2023 TITLE: DBS Pre-Op Talks: Love and Transition Podcast Notes: In the latest episode of the When Life Gives You Parkinson's podcast, hosts Larry and Rebecca Gifford discuss the upcoming Deep Brain Stimulation (DBS) surgery. The surgery is scheduled for October 24th, 2023, at UBC Hospital in Vancouver, Britis…

1
Brains and Drills: What to Expect with DBS Surgery 31:54

1y ago31:54

31:54

In this episode, Larry and his partner, Rebecca, discuss what to expect right before, during, and after DBS surgery. The surgery is scheduled for October 24th, 2023, and this episode was recorded about two weeks before the surgery. The episode covers the pre-surgery preparations, including the need to stop medication before the surgery, and an info…

1
Navigating Deep Brain Stimulation: The Pros, Cons, and Realities 29:45

1y ago29:45

29:45

In this episode of "When Life Gives You Parkinson's," Larry Gifford and Rebecca Gifford delve into the world of Deep Brain Stimulation (DBS), continuing their 2023 series on this treatment option. While sharing their optimism about Larry's upcoming DBS surgery, they also address the importance of discussing the risks associated with it. They presen…

1
Inside Larry's DBS Journey: Meeting the Brain Surgeon 22:49

1y ago22:49

22:49

In this episode of "When Life Gives You Parkinson's," Larry and Rebecca dive into Larry's upcoming Deep Brain Stimulation (DBS) surgery. They introduce Dr. Chris Honey, the neurosurgeon who will perform the procedure the brain surgeon. Dr. Honey breaks down what to expect and the possible risks of DBS, stressing the importance of picking the right …

1
My Eye-Opening DBS "Off" Challenge 24:26

1y ago24:26

24:26

Hosts Larry and Rebecca Gifford are preparing for Larry's DBS surgery scheduled for October 24, 2023. During the evaluation for DBS surgery. Larry needed to completely go off meds for at least 12 hours. The medical team tests motor symptoms while OFF levodopa and then after taking a dosage and waiting forty minutes repeat the tests. Evaluators were…

1
Season 3 Episode 5 Dr. Michael Okun discusses fatigue, sleep and other non motor Parkinson’s symptoms. 28:03

1y ago28:03

28:03

Are you challenged with non motor Parkinson's symptoms? Do you experience fatigue and sleep disruptions? Dr. Michael Okun discusses the management of these symptoms and more. Please join me as I speak with world Parkinson’s leader, Dr. Michael Okun. Dr. Okun is a board-certified neurologist, movement disorders specialist, neuroscientist and author …

1
WPC2023: Parkinson's Without Borders 49:41

1+ y ago49:41

49:41

Donate to the World Parkinson Coalition to support this and future World Parkinson Congresses. World Parkinson Congress 2023 (WPC2023) was a true testament to unity and shared vision. It saw the participation of more than 2,600 people, drawn from 73 countries, all converging under one roof with one common objective: unraveling the mysteries of Park…

1
Season 3 Episode 4: When both of your parents are diagnosed with Parkinson's disease. A candid discussion with Laura Mosley-Manthey on her parent's journey with Parkinson's and the impact it has had on ... 31:33

1+ y ago31:33

31:33

Do you have a parent living with Parkinson’s? Can you imagine what it would be like to have both parents with Parkinson’s? Please join me as I chat with Laura Mosley – Manthey, as she candidly shares her parent’s journey with Parkinson’s and the impact it has had on her life. Laura inspires those around her with her strong faith and her selfless gi…

1
Harnessing the Healing Power of Infrared Light 43:57

1+ y ago43:57

43:57

Larry & Rebecca Gifford dive into the growing interest and research being conducted around red light and infrared light laser therapy for Parkinson’s disease. In Hamilton, Ontario PD Avenger and care partner Lorna Dueck, a retired radio and TV host, visits Gaitway Physical Therapy. She interviews physiotherapist Orla Hares and research assistant Je…

1
Season 3 Episode 3: Carley Rusch, PhD, RDN, LDN, nutrition and the impact it has on Parkinson's symptoms 45:27

1+ y ago45:27

45:27

Are you curious how nutrition affects Parkinson’s Disease? Is there a Parkinson’s specific diet? What about microbiome? Please join me as I talk with Carley Rusch PhD, RDN, LDN as she discusses how nutrition impacts Parkinson’s symptoms. Carley coordinated a nutrition program at the UF Health Norman Fixel Institute for Neurological Diseases and her…

1
Biomarker Breakthrough w/ Debi Brooks CEO of The Michael J Fox Foundation 33:14

1+ y ago33:14

33:14

The banner headline on the homepage of the Michael J. Fox Foundation’s website reads “Breaking News: Parkinson’s Disease Biomarker Found.” It sounds exciting, but what does it really mean? Debi Brooks, CEO and cofounder of The Michael J. Fox Foundation, joins Larry Gifford for a chat about what she says is the most important finding the Foundation …

1
Is Trichloroethylene an invisible cause of Parkinson’s? 45:24

1+ y ago45:24

45:24

Trichloroethylene (TCE). You cannot see it or smell it. It could be in the air you breath, the water you drink, and the food you eat. It is a carcinogen and is linked to clusters of cancer and Parkinson’s. In Journal of Parkinson’s Disease, Dr. Ray Dorsey at the University of Rochester and eleven colleagues have published a research article asking …

1
Season 3, Episode 2: Dr Michael Okun, world Parkinson's leader and how to best manage Parkinson's disease 37:11

1+ y ago37:11

37:11

Please join me as I speak with world Parkinson’s leader, Dr. Michael Okun. Dr. Okun is a board-certified neurologist, movement disorders specialist, neuroscientist and author who practices with the philosophy that ‘the patient is the sun’ and should be at the center of all care decisions. Dr. Okun co-founded and co-directs the internationally renow…

1
The Promise of Lithium as a Parkinson’s Disease Modifying Treatment 52:20

2y ago52:20

52:20

Lithium is more than a drug, it’s the third element on the Periodic Table of Elements. Symbol is LI. It’s lightest metal known to mankind. Lithium-ion batters are used in electric cars. Lithium is also present in vaping devices, many personal electronics such as cell phones, tablets, and laptops, E-Bikes, electric toothbrushes, tools, hoverboards, …

1
Muhammad Ali’s Parkinson’s Journey w/ May May Ali and Michael S. Okun, MD 38:18

2y ago38:18

38:18

January 17 marks the 81st anniversary of the birth of one of the greatest Parkinson’s advocates of all time, Muhammad Ali. In this episode, we learn more about the champ’s journey from his eldest daughter Maryum “May May” Ali – the stigma her father dealt with after his diagnosis, when she first noticed changes in her dad, struggles with speaking a…

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Season 3 Episode 1, Jon Braddock, His diagnosis with YOPD and coping with the disease during the best years of his life 32:37

2y ago32:37

32:37

Season 3 Episode 1: Jon Braddock is a licensed architect with a Masters Degree from MIT and a Bachelors Degree from the University of Florida. He was diagnosed with YOPD in Jan, 2020 and lives in Ponte Vedra, Florida with his wife and two kids. Join me as I talk to Jon about navigating Young Onset Parkinson’s Disease and coping with the disease dur…

1
Episode 12 Season 2, Allie Toepperwein, Her Parkinson's Journey and American Ninja Warrior competitor. 46:53

2y ago46:53

46:53

Please join me as I chat with Allie Toepperwein, as she boldly shares her beautiful journey with Parkinson’s disease and her diagnosis at the young age of 37. Allie has inspired thousands of people as a regular contributor to the Huffington Post, and the first person with Parkinson’s to compete on American Ninja Warriors. She travels throughout the…

1
I Don’t Care Just Call It Apathy 51:55

2y ago51:55

51:55

One of the dark symptoms of Parkinson’s is apathy. Describing apathy is a bit like describing what it feels like when a dementor in the Harry Potter books kisses a character – the ability to drain happiness and hope from its victims. When a person with Parkinson’s spirals into a an apathetic state they lack motivation and lose interest in activitie…

1
Live Inspired with John O'Leary 56:56

2y ago56:56

56:56

When John O’Leary was a nine-year-old boy, he was burned on 100% of his body. He was in his garage playing with matches and gasoline—just like he’d had seen the older boys on his block do. A fire exploded, consuming the garage, sending him flying back against the wall and turning his whole world upside down. He talks with Larry & Rebecca about how …

1
Being Well with Parkinson’s 47:52

2y ago47:52

47:52

Kat Hill and Nancy Peate are the authors of Being Well with a Chronic Illness: A Guide to Joy and Resilience with Your Diagnosis. In their book they offer wisdom, language, research-supported guidance and personal stories to help people with Parkinson’s and other chronic conditions navigate their wellness journey. In this episode, Rebecca talks wit…

1
What’s Your Superpower? Feat. Geoff Constable 51:26

2y ago51:26

51:26

Geoff Constable is a PD Avenger and an Ambassador for the World Parkinson Congress 2023 in Barcelona. We met at the last WPC2019 in Kyoto. Like many of us with YOPD, Geoff’s diagnosis was delayed six years as doctors tried to figure out root issue of his symptoms. In 2008, at the age of 50, he finally was able to put a name to the issues he had, Pa…

1
Episode 11 Season 2 Alison Ballard, accomplished elite athlete and person living successfully with Parkinson’s Disease 26:17

2y ago26:17

26:17

In this episode you will meet Allison Ballard, accomplished elite athlete and living successfully with Parkinson’s disease. Alison faces Parkinson’s disease head on, just like she faces everything else. You will be inspired as Alison shares her view on life, her struggles with Parkinson’s and her recent diagnosis of cancer.…

1
What’s New and Now in Parkinson’s 40:05

2y ago40:05

40:05

Updates on several stories we’ve shared on the podcast. Reactions to the three-minute test to diagnose Parkinson’s. The final 30km on a cross-country bike tour for Parkinson’s leaves bikers spinning their wheels. * We catch up with the Rigid Riders. Plus, Ozzy Osbourne on stage for the first time since his Parkinson’s diagnosis. *Don’t forget to pu…

1
A 3-minute test for a Parkinson’s diagnosis 32:11

2y ago32:11

32:11

This is a breakthrough, breaking news episode featuring Professor Perdita Barran, University of Manchester and Joy Milne, the woman who can smell Parkinson’s. Today. their latest research paper was published at 12:01am (BST) September 7, 2022. This research has led to a three-minute non-invasive test to determine a positive or negative Parkinson’s …

1
I Was Clueless About Caregiving 32:32

2y ago32:32

32:32

Dave Iverson was diagnosed with Parkinson’s in 2004. He is a founding member of The Michael J Fox Foundation (MJFF) Patient Council and was the first host of the MJFF Parkinson’s Podcast. We caught up at a patient council meeting in New York City to chat about his new book “Winter Stars.” Parkinson’s runs deep in Dave’s family, but this book is not…

1
Episode 10 Season 2 Understanding how movement can be tied to practical function through Occupational Therapy with Nicole Reynolds 33:15

2y ago33:15

33:15

Please join me for a discussion with Nicole Reynolds, Occupational Therapist and Certified Health Coach, as she explains how movement ties into function. Nicole Reynolds is an occupational therapist and certified health coach, who enjoys looking from a holistic lens when working with people living with Parkinson’s Disease. Nicole is certified in LS…

1
Two women with Parkinson’s, 200 years apart 39:55

2+ y ago39:55

39:55

SUMMARY: In the book, “Mary & Me,” author Robyn Cotton draws upon her own experiences with Parkinson’s in a fictional novel based in contemporary times and early 1800’s London, England when Dr. James Parkinson was roaming the streets and noticing a condition, he called shaky palsy. Not often does Parkinson’s play such a key role in a fictional piec…

1
Spinning Wheels 48:55

2+ y ago48:55

48:55

Larry & Rebecca Gifford highlight two Canadians with Parkinson’s who are sparking awareness, raising money and building community by riding their bicycles across every Canadian Province over the next three months. Jim Redmond and Steve Iseman take a break from pedaling to sit down with Larry at picnic table outside their RV on Day two of the journe…

1
Episode 9 Season 2 The development of future Parkinson's related therapies and the cure for Parkinson's 29:31

2+ y ago29:31

29:31

Please join me for a scientific discussion with Dr. Xiaobo Mao, Associate Professor with Johns Hopkins School of Medicine, around future Parkinson’s related therapies and the cure for Parkinson’s Dr. Mao is currently an Associate Professor with Johns Hopkins School of Medicine where he has extensive work in the hospital & health care industry. Dr. …

1
Episode #8 Season #2 The Parkinson's Foundation, A discussion on the unique challenges of hospitalization while living with Parkinson's disease and how the Parkinson's Foundation works to help meet those ... 45:09

2+ y ago45:09

45:09

Join me as I chat with Annie Brooks, MSW who currently serves as the Associate Director of Education at the Parkinson’s Foundation. As part of the Education department, her primary focus is providing quality informational resources and programs for people with Parkinson’s disease, their care partners and loved ones, and the professionals who are pa…

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Episode #7 Season #2 Scott Rider Parkinson's Across America A private look into what life is like with Parkinson's. 33:29

2+ y ago33:29

33:29

Scott Rider and Jim Morgan are embarking upon a cross country, motor coach adventure in an effort to provide the world an educational yet private look into what life is like with Parkinson’s. Scott and Jim are collaborating with Barry Blaustein, an American comedy writer best known for his writing on Saturday Night Live and the screenplays for Comi…

1
Episode #6 Season 2 PD GENEration - genetic testing and the future for mapping Parkinson's Disease for better treatments. 26:58

2+ y ago26:58

26:58

Have you ever wondered if Parkinson's in genetic? Maybe you are concerned because a grandparent or parent was diagnosed with Parkinson's Disease. Join me today as my guests from the Parkinson's Foundation explain PD GENEration and how it is used for mapping the Future of Parkinson’s Disease.על ידי Teresa Jackson

1
Down Under | A Spark, A Warrior, and World Parkinson's Day 31:37

2+ y ago31:37

31:37

This is part one of three of a mini-series of episodes we are calling “Down Under.” Host Larry Gifford gets you ready for World Parkinson’s Day. Learn about the new international symbol for Parkinson’s disease named “THE SPARK” and how you can use it. Where to watch the world premiere of the new documentary “The Long Road to Hope: Ending Parkinson’…

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Episode #5 Season 2 Eve Grill - looking through the lens of a child when your mother is diagnosed with Young Onset Parkinson's Disease 40:16

2+ y ago40:16

40:16

Eve Grill is 22 years old and the oldest daughter of Anna Grill, who was diagnosed with Young-Onset Parkinson’s disease when Eve was very young. While Eve is embarking on her life as a young adult, having just graduated from the College of William and Mary and working in DC, she still looks to her mom for guidance in every aspect of life. Eve discu…

1
Episode #4 Season 2 Tom Urtz lives with Parkinson's disease. He has fallen over 5,000 times in the past few years. Join me as he shares what motivates him to get up and fight back. 21:08

2+ y ago21:08

21:08

Please join me as I chat with Tom Urtz who shares his inspirational story. He talks about his journey so honestly from falling down more than 5,000 times in the past few years to his decision to stop driving. Tom underwent deep brain stimulation surgery in 2012 and retired on disability in 2014. His speech has been affected by Parkinson’s. There ma…

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The Talk | Larry & Rebecca in Conversation – Part Three of Three 35:20

2+ y ago35:20

35:20

This is the final instalment of our three episode mini-series we are calling “The Talk.” Hosts Larry and Rebecca Gifford talk about how Parkinson’s can send them into a hopeless spiral – at times it feeling as if they aren’t both committed to the marriage. And then there are times when Parkinson’s brings them closer together than ever. A difficult,…

1
The Talk | Larry & Rebecca in Conversation – Part Two of Three. 34:20

3y ago34:20

34:20

This is part two of three for a mini-series of episodes we are calling “The Talk.” Hosts Larry and Rebecca Gifford are also the guests this week. In this episode, they check share the emotional toll Parkinson’s takes on each of them. How to maintain agency of your life while dealing with Parkinson’s, how apathy impacts everything and where hope is …

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Episode #3 Season 2 Dr. Soania Mathur Living with Parkinson's disease as a young praciticing family phyician in Toronto, Canada. Join me as Dr. Mathur shares how she has successfully lived with Parkinson ... 29:06

3y ago29:06

29:06

Dr. Mathur is a family physician from Toronto, Canada who resigned her medical practice following a Young Onset Parkinson’s Disease diagnosis at age 27. Having lived with the disease for over two decades she now spends her time writing, educating, and advocating for those living with Parkinson’s. Dr. Mathur works with organizations such as The Mich…

1
The Talk | Larry & Rebecca in Conversation – Part One of Three. 30:19

3y ago30:19

30:19

This is part one of three for a mini-series of episodes we are calling “The Talk.” Hosts Larry and Rebecca Gifford are also the guests this week. They will check on how each other is doing physically and emotionally. They will talk about personal priorities, advocacy, and how chronic disease changes and challenges the dynamics of a family. We will …

1
Episode #2 Season 2 Karl and Angela Robb - Lessons from living successfully with Parkinson's disease for over 30 years 38:57

3y ago38:57

38:57

Karl and Angela Robb - lessons from living with Parkinson's for over 30 years. Join me as I chat with Karl and Angela Robb as they share their experience of living successfully with Parkinson's disease for over 30 years. They are truly inspirational! Karl Robb has had Young Onset Parkinson’s disease (PD) for over thirty years. With symptoms since h…

1
Deep Dive into DBS | Part Two of Two: Shake it Off 49:11

3y ago49:11

49:11

Larry & Rebecca Gifford dive deep in to deep brain stimulation (DBS). We learn about the innovative technology used for DBS from Dr. Alfonso Fasano, the chair of Neuromodulation and multi-disciplinary care at the University of Toronto and University Health Network. Sonia Soriano-Espert from Valencia, Spain, through translator and friend Sabela Avio…

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