79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD

Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.

YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

Explored in this episode:

· What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome)

· How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related

· What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis

· How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware”

· What correlations exist between Crohn's disease, irritable bowel disease and RLS

· Why it is so crucially important to listen to AND believe our patients

· How Mast Cell Activation Disease and MCAS differ from one another

· Why the term “syndrome” can be problematic

· What environmental factors can play a role in MCAS

· When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis

· What testing can be performed for MCAS and the significance of tryptase levels

· How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.

The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.

This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.

Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

YOUR bendy body is our highest priority!

Products, organizations, and services mentioned in this episode:

https://www.gidoctor.net/provider/leonard-weinstock-md

https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/

https://www.mcasfund.org/

https://www.nowleap.com/leap/

https://www.ifm.org/

https://ldnresearchtrust.org/

https://www.ldnscience.org/

https://www.genebygene.com/

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