The Grit And Grind Of Autism- Finding Light Along The Journey podcast

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Listen to the Mothers - My story & MAHA w/ Dr. Tiffany Gilbert 1:08:59

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Dr. Tiffany Gilbert completed her Undergraduate degree from Elizabethtown College in Social Work and Psychology. She has a Masters Degree in Health Sciences and a Doctorate degree in Natural Medicine from University of Natural Medicine. Tiffany is a Certified Family Herbalist from The School of Natural Healing and a Certified Emotion code and Body code practitioner. Dr. Tiffany Gilbert has a private practice with offices in York, PA and Hanover, PA and also sees patients virtually from all over the world. Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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The Spellers Documentary w/ Vincent and Honey Rinicella 44:27

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Honey Rinicella is the Executive Director of the Medical Academy of Pediatrics and Special needs (MAPS), and proud parent of 23 year old twins with autism. Prior to her onboarding with MAPS, Honey spent nearly two decades working leadership roles for Non-Profits, supporting families and parents in the Autism/Special needs community. She has seen the lives of her children transform under the care of a MAPS physician, which in turn has sparked her passion to grow the organization. The MAPS mission is to equip dedicated professionals in delivering the best possible care to children, teens, and young adults with special needs and complex medical conditions. Honey’s commitment is to ensure every child has the chance to achieve their full potential through this enhanced care; She knows first hand that a properly educated practitioner is the true key to unlocking that potential in anyone with Special Needs. Vincent Rinicella is a 23-year-old nonspeaker who had been a prisoner in his mind for 18 years. Fortunately, this changed when he was introduced to a newer communication method, which finally allowed him to break free from his silence. Through hard work and dedication, Vincent can now share his feelings, needs, opinions, and insight, which in turn has brought a whole new meaning and reward to his life, as well as to those he loves. Vincent is a published author of poetry and short stories, creator and writer of a blog (The Unfiltered Mind of Vincent), and has become a passionate advocate for bringing forth change in our community. He believes it’s critically important to help ensure all nonspeakers are given the chance he had, so they too can break free and live a life of their own choosing. Vince’s Blog Spellers The Movie (Must Watch!!) MAPS (Physicians and Practitioners) MAPS (Parents and Caregivers) Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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It's Been Six Decades...Listen to Us - w/TJ, Nigh Functioning Autism 1:24:39

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Hi, I’m TJ, or Tiffany, creator of the social media platforms, Nigh Functioning Autism. I am a single mother of three neurodivergent teens. I live and work in and around Maryland and Virginia, in the Washington DC area. I am Autistic, diagnosed in my late teens. However, I was diagnosed with other conditions when I was in elementary school, like central auditory processing disorder and ADHD. I also have had epilepsy and OCD since I was a child. I am hard of hearing as well. As such, I use many ways to communicate like ASL, mouth words, high-tech AAC and other ways depending on how accessible my speech and memory is to me at the moment. I work in special education or more preferred, ‘accessible education’, as a paraeducator for elementary school and a communication teacher/ partner to mostly teen and young adult Autistic nonspeakers. My passion in the disability space is communication and education rights for people of all disabilities. I specifically love teaching how to implement high-tech speech generating devices in schools and homes. I always say, I would have access to my own speech if I had text-based or high-tech speech generating strategies earlier in my life. I proudly sit on the board for Lilly’s Voice, a non-profit organization that provides high-tech speech generating devices for nonspeakers under age 18 in the United States. I am also a member of the Maryland Developmental Disabilities council, which is a federally funded, national organization in every state that sets the disability culture, policy, and laws in that state. Book Recommendations : Miracle at St. Anna Leaders Around Me Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Traveling: The Highs, Lows & Perspective - Part 2 20:12

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This is the other half of my discussion about our trip to Myrtle Beach. Please listen to part one first if you haven’t already. The spectrum of highs and lows in any single event for our community is real! Book Recommendations Discussed: The Body Keeps the Score Atlas of the Heart Danny With Words Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Traveling: The Highs, Lows & Perspective - Part 1 24:00

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Holy freaking cannoli… the last month has been a mixed bag of all things emotions. The lows: betrayal, defensiveness, anger, resentment, failure, and forlorn to name a few. The highs: gratitude, happiness, peace, amusement, pride, enjoyment and love. Then slipping into the black hole our families with complex needs tend to slide back into. Accompanied by anxiety, defeat, depression and overall PTSD. For continued healing you can’t ignore these feelings. You have to take a seat and join them. Or get in the freaking hole with all the feels. Take care of yourself even if it means sleep, eating, hydrating and showering. These are big accomplishments some days. Eventually, the clouds move again, perspective comes and you can climb out of the dark hole and proceed with life. "Feelings come and go like clouds in a windy sky. Conscious breathing is my anchor.” THICH NHAT HANH Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Introducing The Grit & Grind of Autism - Finding Light Along the Journey 1:14

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A new podcast released bi-monthly. I am having honest, raw and authentic conversations with caregivers, family members, friends, service providers, practitioners, legislatures and people with a diagnosis of autism. There are no boundaries, no shame, no judgement... just a safe place for our community to support one another and create collective, positive change. Autism is an epidemic. There is a place for everyone to better understand, support and contribute. Episodes released bi-monthly. Subscribe and follow on all major podcast platforms. Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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An Interview w/ Self-Advocate Justin Valenti 31:22

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Justin Valenti is an artist and author who currently lives in Gaithersburg, Maryland. He graduated from the Project SEARCH internship program and now works as an Office Clerk at the National Institutes of Health. Justin graduated from Partners in Policymaking in 2019 and he is a strong advocate. Justin also does a lot of fluid painting and digital artwork. He is also involved in self advocacy groups like The ARC Maryland and People on the Go of Maryland. Over the past few years, Justin has self published three amazing books: “Blast from the Past”, “Meeting the Girl”, and “The Zania Virus”. Justin lives at home with his family and his dog, Koda, in Maryland. Justin’s art can viewed and purchased here: Justin Valenti Art Etsy Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Inclusion and Friendships -An Intimate Discussion w/Life-Long Besties 54:38

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Meet Jen, Claudia, Peyton and Max. We all know that you don't have to be related to be family. They are my extended family whom I love to do life with. Thank you for allowing me to record this lovely discussion and for being the beautiful humans you are. I loved our time together. My heart is full. Time and actively listening without judgement is one of the greatest gifts you can give someone. I hope this inspires all who listen to be more involved with your loved ones living with a complex diagnosis. Spellers Documentary Max’s YouTube MD Autism Project (please subscribe) Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Covid, Exclusion & Politics - Coffee Talk w/Sara Schlessman 59:51

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Sara is originally from Kansas City and has lived in the Baltimore area for 19 years. She is a nurse practitioner and currently teaches nursing school. She lives with her husband, 15 year old son and her dog. Sara enjoys riding her Peloton every morning. Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Behaviors, Hospitals and Psychiatric Support - A System that Doesn't Work w/Kelly Rothering 1:16:48

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Kelly lives in Maryland with her husband of 25 years and two teenagers. She has been a licensed Physical Therapist Assistant for 27 years and currently works in home health. She also works for Baltimore County Health Department as a Community Navigator for families that have children with special health care needs. Kelly is a Reiki Master and animal lover. Kelly considers herself a fierce advocate for her children and will never stop fighting for them. Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Women Are The Best Natural Resource with Pam Villeneuve 1:07:44

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Pam Villeneuve is a Somatic Coach & Intimacy Practitioner who founded The Heart of Pleasure Project to help individuals and couples connect to themselves and each other through their heart and body. Her nurturing enthusiasm guides clients to gain somatic awareness, listening to the wisdom of the body and connecting through intuitive energy to heal relationships and embody pleasure in new and vibrant ways. In this work, Pam allows people to connect from the ‘neck down’ and join their intellect back with their body and heart, to safely express all they are feeling to themselves and others, thus deepening their intimacy capacity. She brings a breadth of experience from teaching many forms of movement/dance, breathwork, yoga and femme certification, erotic blueprint work, orgasmic arc and UPLVL communication training, and is a graduate of the School of Womanly Arts. Pam also has over 30 years experience in the recovery community. Pam is married and has two sons. Joey her youngest has a diagnosis of Down’s syndrome and autism. Contact Pam: Heart of Pleasure Project Book Recommendations: Women Who Run with the Wolves by Clarissa Estes Boundary Boss by Teri Cole UPLVL Communication by Kenya Stevens & Carl Stevens Pussy A Reclamation by Regina Thomashauer Eastern Body Western Mind by Anodea Judith Woman Most Wild by Danielle Dulsky The Orgasmic Arc by Genevieve Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Hashing Out ABA with Josselyn Ensor 1:14:13

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Josselyn Ensor is a licensed Board Certified Behavior Analyst and Special Educator with over 20 years of experience working with individuals on the Autism Spectrum. She has worked in various settings and held leadership roles in healthcare companies as well as nonpublic and public school sectors. Josselyn has trained and supported countless professionals and caregivers to deliver high-quality ABA and special education services, with a focus on instilling a passion for advocacy and never underestimating a person's capabilities. She encourages others to seek compassionate and progressive ways to achieve outcomes, pushing past barriers to redefine potential. Josselyn’s Website: www.learningoutsidethelines.org Book Recommendations: Turn Autism Around : An Action Guide for Parents of Young Children with Early Signs of Autism by Dr. Mary Barbara, Ph D, RN, BCBA-D The Out-of-Sync Child, Third Edition: Recognizing and Coping with Sensory Processing Differences (The Out-of-Sync Child Series) by Carol Stock Kranowitz The Reason I Jump : The Inner Voice of a Thirteen-Year-Old Boy with Autism by Naoki Higashida Navigating Autism : 9 Mindsets For Helping Kids on the Spectrum by Temple Grandin and Debra Moore LCarly's Voice : Breaking Through Autism by Arthur Fleischmann with Carly Fleischmann **************** Free 1-Hour Behavioral & Educational Consult Giveaway Drawing I'm offering for World Autism Awareness Month: https://giveaway.learningoutsidethelines.org **************** The Autism Cafe (Great article written by an autistic adult) Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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All Things Autism Support - A Discussion with Neal Lichter of Pathfinders 1:00:27

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Neal Lichter, Program Director, joined Pathfinders for Autism in October of 2013. As a trainer, Neal has provided an Understanding of ASD training since 2014. Audiences include students from Kindergarten-college, educators, police, first responders, medical personnel, and many others across the state of Maryland. Neal is also responsible for helping to plan many of the workshops that Pathfinders for Autism collaborates on around Maryland. Neal is married, with two sons, one of which has Autism. Contact Info: Pathfinders for Autism nlichter@pfamd.org Resource Center: 443.330.5341 nstokes@pfamd.org Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Seizures and Hospitals... A Personal Discussion With One Of My Besties 35:43

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It’s been 23 days since my sons last seizure. It was awful. It was traumatizing. You never get use to epilepsy. This one was by far the worst one yet. I felt deep in my soul that I needed to share this experience. Very thankful to my dear friend Juliet Gilden for talking with me so I could tell this part of our story. Resources from our discussion: Pathfinders for Autism MD Advisory Stakeholder Group on Autism National Epilepsy Foundation Delegate Michele Guyton Juliet's Paintings #thegritandgrindofautism podcast is available on all major platforms. Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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Sensory Integration with Dr.Shayna Stoogenke 1:11:44

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Dr. Shayna Stoogenke is a pediatric Occupational Therapist with over 18 years of experience in evaluating and treating children with varying needs. She has extensive training in sensory integration and has spent the last 10 years supporting families by conducting evaluations and making recommendations for children entering school for the first time. She is passionate about her work and helping children learn through play- and even more passionate about helping families see past a labeled disability and recognize and support the ability within their child. Learn more about her work at ShaynaOT . Resources from the pod discussion: Therapeutic Listening Therapy The Out-of-Sync Child The Out-of-Sync Child Has Fun The Out-of-Sync Child Grows Up Follow me at The MD Autism Project for more content. Instagram Facebook YouTube…

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