Invisible Not Broken - Chronic Illness Podcast Network

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Alternative Health Roundup

הוסף לפני seven שנים

תוכן מסופק על ידי Monica and Eva and Hosts: Monica. כל תוכן הפודקאסטים כולל פרקים, גרפיקה ותיאורי פודקאסטים מועלים ומסופקים ישירות על ידי Monica and Eva and Hosts: Monica או שותף פלטפורמת הפודקאסט שלהם. אם אתה מאמין שמישהו משתמש ביצירה שלך המוגנת בזכויות יוצרים ללא רשותך, אתה יכול לעקוב אחר התהליך המתואר כאן https://he.player.fm/legal.

Species Unite

1
Elizabeth MeLampy: Forget the Camel 39:33

לפני 17 ימים39:33

הפעל מאוחר יותר

רשימות

לייק

אהבתי

39:33

"The basic premise of the event is that hunters hunt rattlesnakes from the surrounding environment all across West Texas, and bring them into the roundup for the weekend. And during the roundup, these snakes are kept in a pit and then, one by one, beheaded and skinned in front of in front of audiences." - Elizabeth MeLampy Elizabeth MeLampy is a lawyer dedicated to animal rights and protection, and her passion for this work shines through in her latest book, Forget the Camel, the Madcap World of Animal Festivals and What They Say About Being Human . To research the book, Elizabeth traveled across the country, immersing herself in a wide range of animal festivals — from the Iditarod dog sled race to the rattlesnake roundup in Sweetwater, Texas. Elizabeth examines these festivals as revealing microcosms of our broader relationship with animals. Whether it's rattlesnake hunts, frog-jumping contests, ostrich races, or groundhog celebrations, these events reflect the ways humans use animals to express cultural identity, community pride, and historical traditions. Yet beneath the pageantry and excitement lies a deeper question: Is our fascination with these spectacles worth the toll it takes on the animals involved? With compassion and insight, Elizabeth invites readers to consider whether there’s a more ethical and empathetic way to honor our stories — one that respects both animals and the traditions they inspire. Please listen, share and read, Forget the Camel. It will be released on April 8th, 2025. https://apollopublishers.com/index.php/forget-the-camel/…

Invisible Not Broken - Chronic Illness Podcast Network « »
Navigating Creativity with MCAD, Interstitial Cystitis, and Fibromyalgia: Sarah Bigham

לפני שנתיים 34:44

שתפו

MP3•בית הפרקים

*This episode was recorded back in 2020

Monica Michelle is joined by artist and author, Sarah Bigham, who began writing about her experiences and painting, using dissolved medications and supplements as watercolors. Her creative endeavors are a distraction from the pain of several recent diagnoses and have been the silver lining of her medical journey.

Sarah lives with:

Sarah's links

In this episode, Monica and Sarah discuss:

Combating the medical and wellness world
Access to more information online via news, social media, etc
Activism and Disability
Tapping into creativity through writing and painting while disabled

Self-care as self-love

TIMESTAMPS

01:00 - Sarah’s Story

5:39 - The Wellness Movement

8:12- ‘Bad’ Words

13:59 - Social Media & the News: Pros and Cons

19:03- Covid and Chronic Illness

21:51 - Pandemic Upsides

27:00 - Creativity and Chronic Illness

32:26 - Self-care as Self-love

33:40 - Final Thoughts

The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy!

Hosted on Acast. See acast.com/privacy for more information.

223 פרקים

#Medicine #Chronic Illness #Invisible Illness #Spoonie #Fibromyalgia #Ehlers Danlos #Mental Health #Chronic Fatigue #Healthcare #Lupus #Fitness #Hosts: Monica #Alternative Health #Health and Well-Being #Monica and Eva #Pain #Care

Invisible Not Broken - Chronic Illness Podcast Network

Navigating Creativity with MCAD, Interstitial Cystitis, and Fibromyalgia: Sarah Bigham

Invisible Not Broken - Chronic Illness Podcast Network

131 subscribers

published לפני שנתיים

שתפו

MP3•בית הפרקים

*This episode was recorded back in 2020

Sarah lives with:

Sarah's links

In this episode, Monica and Sarah discuss:

Combating the medical and wellness world
Access to more information online via news, social media, etc
Activism and Disability
Tapping into creativity through writing and painting while disabled

Self-care as self-love

TIMESTAMPS

01:00 - Sarah’s Story

5:39 - The Wellness Movement

8:12- ‘Bad’ Words

13:59 - Social Media & the News: Pros and Cons

19:03- Covid and Chronic Illness

21:51 - Pandemic Upsides

27:00 - Creativity and Chronic Illness

32:26 - Self-care as Self-love

33:40 - Final Thoughts

The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy!

Hosted on Acast. See acast.com/privacy for more information.

223 פרקים

כל הפרקים

Invisible Not Broken - Chronic Illness Podcast Network

1
Author Interview Maggie Bushway: Memoir writing, Advice for Parents, and the Joys of a Weighted Blanket 36:25

לפני 26 ימים36:25

36:25

Summary In this conversation, Maggie Bushway shares her experiences as a child with brain cancer and the impact it had on her life, family, and friendships. She discusses the importance of autonomy in medical decisions, the role of writing in processing emotions, and the challenges of managing chronic illness while pursuing her passion for writing. The conversation also touches on the dynamics of friendship during illness, the journey of writing a memoir, and the balance between social life and work amidst health challenges. Takeaways Maggie felt included in her medical decisions, which empowered her. Autonomy is crucial for children facing health challenges. Friendship can provide both support and normalcy during illness. Writing serves as a powerful tool for emotional expression. Reading her father's blog helped Maggie process her past. Maggie's early writing experiences laid the foundation for her memoir. Journaling can be a helpful starting point for aspiring writers. Managing chronic illness requires careful scheduling and prioritization. Finding humor in difficult situations can aid in coping. Creative expression can take many forms, including fiction. Keywords Maggie Bushway, childhood illness, memoir, writing, chronic illness, friendship, family dynamics, emotional processing, creative expression, support Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Interview With Service Dog Trainer: Tara Moriarty 45:00

לפני 8 weeks45:00

45:00

Summary In this conversation, Tara Moriarty discusses her journey into the world of service dogs, the challenges of finding and training them, and the importance of understanding their role in supporting individuals with disabilities. The discussion covers the costs associated with obtaining a service dog, the various training methods, and the misconceptions that the public holds about service dogs and their handlers. This conversation delves into the distinctions between service dogs and emotional support animals, emphasizing the legal definitions and roles of each. It explores the challenges faced by service dog owners, including the need for proper training and support systems. The discussion highlights the importance of planning for the future care of service dogs, especially for individuals with degenerative conditions. Additionally, it covers the process of finding the right dog and trainer, advocating for positive reinforcement training methods, and the significance of using food as a motivational tool in dog training. Chapters 00:00 Introduction to Service Dogs and Their Importance 03:13 The Cost and Accessibility of Service Dogs 06:07 The Journey into Dog Training 08:52 Understanding Dog Behavior and Training Methods 12:06 The Need for Service Dogs: When is it Time? 14:59 Choosing the Right Breed for Service Dogs 17:45 Public Misconceptions About Service Dogs 25:50 Understanding Service Dogs vs. Emotional Support Animals 29:08 Navigating the Challenges of Service Dog Ownership 31:55 Preparing for a Service Dog: Key Considerations 34:22 Finding the Right Dog and Trainer 38:53 The Importance of Positive Reinforcement in Training 44:57 Innovative Training Techniques and Resources Takeaways Service dogs can be very expensive, ranging from $20,000 to $40,000. Nonprofits may offer lower-cost options, but availability is limited. Training a service dog can be a complex and costly process. Understanding dog behavior is crucial for effective training. Positive reinforcement is a more effective training method than punishment. Many people consider getting a service dog too late in their journey. The right breed for a service dog is less important than temperament. Labradors, Goldens, and Poodles are commonly recommended breeds. Public misconceptions about service dogs can lead to challenges for handlers. Emotional support is not a task that qualifies a dog as a service dog. Service dogs are task-trained to mitigate specific disabilities. Emotional support animals provide comfort but lack legal recognition as service animals. It's crucial to have a plan for the care of a service dog as health conditions change. Choosing the right breed is essential for first-time service dog owners. Positive reinforcement is key to effective dog training. Finding a qualified dog trainer can significantly impact training success. Service dog tasks are tailored to individual needs and circumstances. Proper training and socialization are vital for service dogs to function in public. Planning ahead for a service dog's future is necessary for responsible ownership. Using food as a reward can enhance training and strengthen the bond with your dog. Keywords service dogs, dog training, psychiatric service dogs, emotional support, dog behavior, training methods, cost of service dogs, choosing a service dog, public misconceptions, service dogs, emotional support animals, training, positive reinforcement, disability, dog ownership, service dog tasks, finding a trainer, dog breeds, service dog laws Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Tisha Foster: Glamour, Motherhood, Faith, and Chronic Illness 53:13

לפני 11 weeks53:13

53:13

Summary In this conversation, Tisha shares her journey of living with chronic illness, emphasizing the importance of gratitude, community support, and the struggles of public perception. She discusses her experiences with autoimmune disorders, the challenges of diagnosis, and how she has reframed her relationship with her illness, focusing on empowerment rather than battle. In this conversation, the speaker shares their experiences of parenting with a disability, discussing the challenges of communicating their condition to their children and the emotional toll it takes on family dynamics. They explore the journey of finding purpose while being bedbound and the therapeutic process of writing a book about their experiences. The discussion emphasizes the importance of support systems, the need for understanding in educational settings, and the resilience required to navigate life with a disability. Takeaways Gratitude can be a powerful tool for coping with chronic illness. Public perception often overlooks the struggles of those with invisible illnesses. Community support plays a crucial role in mental health and resilience. The journey to diagnosis can be long and fraught with challenges. Reframing the narrative around illness can lead to empowerment. It's important to check in on loved ones, even those who seem happy. Sharing personal stories can help others feel less alone. Wearing heels can be a form of self-expression and empowerment. Language matters when discussing illness and identity. Writing can be a therapeutic way to share one's journey. Talking to children about disabilities requires different approaches based on their age. The emotional impact of a parent's illness can lead to complex family dynamics. Creating a game out of challenges can help children cope with difficult situations. Parents often feel guilt for not being able to participate in typical activities with their children. Support from family and friends is crucial when dealing with chronic illness. Living with a disability can lead to feelings of isolation and despair. Finding purpose and joy in life, even from bed, is possible. Writing about personal experiences can be a healing process. It's important to advocate for accessibility in schools and public spaces. Resilience and community support are key to thriving despite adversity. Keywords gratitude, chronic illness, public perception, diagnosis journey, living with illness, mental health, autoimmune disorders, personal stories, resilience, community support, disability, parenting, mental health, communication, writing, resilience, family dynamics, bedbound life, emotional support, personal journey Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Musician Ann-Britt Celebrating New Music, Creativity and Chronic Illness, and Creating New Goals 53:21

לפני 22 weeks53:21

53:21

Summary In this conversation, Monica Michelle and Ann-Britt discuss their shared experiences with chronic illness, particularly Ehlers-Danlos syndrome. They explore the challenges of living with a chronic condition, the importance of community support, and the therapeutic role of music in coping with illness. Ann-Britt shares her journey from being an active musician to adapting her life around her health challenges, including the use of a wheelchair. They also touch on the differences in healthcare systems between Denmark and the USA, emphasizing the need for better understanding and support for those with chronic illnesses. In this conversation, Monica Michelle and Ann-Britt discuss the challenges of traveling with a disability, the emotional journey of adapting to life changes due to chronic illness, and the importance of setting boundaries. They explore generational differences in self-care, the concept of diminished normalcy, and the emotional ties to home. Ann-Britt shares her musical inspirations and the themes of her upcoming album, highlighting the beauty in small moments and the power of creativity in the face of adversity. Keywords chronic illness, Ehlers-Danlos syndrome, mental health, creativity, music therapy, wheelchair use, healthcare systems, Denmark, USA, community support, chronic illness, accessibility, self-care, personal growth, music, life changes, boundaries, emotional health, travel experiences, generational differences Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Author of “Finding A New Normal: Living Your Best Life with Chronic Illness”: Suzan Jackson 49:39

לפני 27 weeks49:39

49:39

Monica Michelle is joined by author Sue Jackson. Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease . In this episode, Monica and Sue discuss: Sue’s pathway to diagnosis Parenting with chronic illness and parenting a child with chronic illness Managing ME/CFS from diagnosis to creating routines Using books to cope emotionally Writing a book while having chronic fatigue TIMESTAMPS 00:46 Sue’s diagnosis and how she manages her symptoms 13:03 Parenting with a chronic illness 25:02 COVID-19’s impact on chronic illness 30:35 Books as a form of escapism and connection 42:00 The challenges of writing and the importance of routines with chronic illness The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Using Self-Portraits to Represent Chronic Pain 1:00:29

לפני 29 weeks1:00:29

1:00:29

Monica Michelle is joined by artist Kyrianna Bolles. Kyrianna lives with chronic pain . In this episode, Monica and Kyrianna discuss: Kyrianna’s struggle to be accommodated for her pain throughout school years How Kyrianna uses her portraits to help represent other’s chronic conditions The communities Kyrianna has built, from a college support group to an artist collective Kyrianna’s favorite tools for art and chronic pain TIMESTAMPS 00:00 Intro to Kyrianna 10:45 Kyrianna’s self portraits 24:42 Kyrianna’s Support group 33:40 Animus 45:57 Kyriannas favorite support tools The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Dory’s Corner: New Podcast intro with Host Nick Clemmons 1:00:25

לפני 33 weeks1:00:25

1:00:25

Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory’s Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon. Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome , POTS , MCAS , and Fibromyalgia . In this episode, Nick and Monica discuss: Monica’s diagnostic history and her relationship with her disabilities How Monica learned to advocate for herself Lack of media representation influencing abled people’s perspectives of disabled folks How Monica’s family functions around disability TIMESTAMPS 00:42 - Monica’s history and relationship with her disabilities 13:06 - How Monica found her voice *Trigger Warning: Mention of SA* 31:40 - Media representation 45:09 - Monica’s family The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Disability Access in the Education System and How to Support Disabled Folks’ Needs with Nick Clemmons 54:05

לפני 47 weeks54:05

54:05

Monica Michelle is joined by consultant and podcast host Nick Clemmons. Nick lives with Sickle Cell Disease. In this episode, Monica and Nick discuss: The ways disabled folks are often forgotten in education infrastructure How Nick navigates societal limitations to achieve his goals Disability representation in the media Knowing how to realistically offer help to disabled folks TIMESTAMPS 00:42 - ADA, Title IX, and disability access in schools 20:08 - How Nick makes and achieves opportunities 28:40 - Media and disability 40:42 - How to respectfully be concerned about someone else’s needs The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Vulnerability, Resiliency, and Advocacy with Tim Reitsma 47:06

לפני 50 weeks47:06

47:06

Monica Michelle is joined by consultant and podcast host Tim Reitma. Tim lives with Crohn's Disease . In this episode, Monica and Tim discuss: Tim’s resiliency through managing his Crohn’s The importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness TIMESTAMPS 00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy 15:41 - Why Tim started his podcast 22:42 - Invisible condition etiquette 31:00 - What HR can do better for employees with invisible illness 39:31 - Tools Tim uses to care for his Crohn’s outside the home The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Tech and Disability: What VR Offers the Disabled Community with Sunny Ammerman 1:10:27

לפני 1 year1:10:27

1:10:27

Monica Michelle is joined by artist and disability advocate Sunny Ammerman Sunny lives with Septo-optic dysplasia , panhypopituitarism , Optic Nerve Hypoplasia , and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss: Sunny’s complex disorders and how she copes with them Everything VR provides from accessible gaming, social platforms and the potential for better online education. Various VR/AR games and their gameplay Sunny’s VR support group TIMESTAMPS 00:45 - What VR/AR offers for chronically ill and disabled folks 11:57 - Sunny’s conditions and how she copes with them 17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences 37:13 - The social aspects of virtual gaming 51:32 - What opportunities VR has for the future 1:04:49 - Sunny’s VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Reporting on Chronic Illness and Disability with Journalist Julia Metraux 39:16

לפני 1 year39:16

39:16

Monica Michelle is joined by Journalist Julia Metraux. Julia lives with vasculitis , mild to moderate hearing loss, and has experienced long COVID . In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lens How community impacts the mental health of those with chronic illness How Julia and Monica find positives and negatives in the internet spaces for chronically ill and disabled folks The politics of how government, businesses, and celebrities influence the chronic illness community TIMESTAMPS 00:32 - Julia's diagnostic journey 07:02 - Julia’s work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks 26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyle The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Author of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt 31:29

לפני 1 year31:29

31:29

Monica Michelle is joined by author & physiotherapist Kevin Hunt. Kevin lives with chronic pain. In this episode, Monica and Kevin discuss: Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you. Kevin’s idea behind his new book. Using pain as a guide. TIMESTAMPS 00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life’s needs 14:00 - Putting aside the idea of a “quick fix” 19:45 - Kevin’s personal experience with pain and how he uses it with patients 28:44 - Kevin’s book, “Pain: The Ultimate Mentor” The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

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Author of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier 28:35

לפני 1 year28:35

28:35

Monica Michelle is joined by author & personal trainer John K. Frazier. John lives with ankylosing spondylitis . In this episode, Monica and John discuss: John’s work as a physical trainer and author Chronic pain comparisons Personal triumph TIMESTAMPS 00:50 - John’s business & diagnosis 07:19 - Chronic pain olympics 09:31 - Talking about & hiding a diagnosis 15:09 - Personal triumph 18:24 - Staying in the present 23:29 - The superman complex The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
The Creative Process, Self Worth, and Dating with Disability: Laura Mustard 31:08

לפני 1 year31:08

31:08

Monica Michelle is joined by musician Laura Mustard. Laura lives with VATER syndrome . In this episode, Monica and Laura discuss: Laura’s inspiration for her upcoming musical EP. How Laura’s illness impacted her recent relationship & self-image. Laura’s creative process, new music, and social media pressure. TIMESTAMPS 00:30 - Laura’s new EP / Monica’s recent COVID experience 05:32 - Relationships with chronic illness 11:20 - Image and self acceptance with disability 15:32 - Laura’s creative process and current projects 20:05 - Pursuing creativity despite social media attention The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

Invisible Not Broken - Chronic Illness Podcast Network

1
Author of “The Girlfriend’s Guide to Lupus”: Amanda Chay 30:43

לפני 1 year30:43

30:43

Monica Michelle is joined by author Amanda Chay. Amanda lives with Sjögren’s and Lupus . In this episode, Monica and Amanda discuss: Amanda’s book & diagnosis Outlooking on work & writing Navigating chronic illness with kids & family TIMESTAMPS 00:26 - Intro + The Girlfriend’s Guide to Lupus 02:17 - Amanda’s diagnosis 10:09 - Amanda’s outlook on writing 17:11 - Navigating chronic illness with kids & family 23:29 - Labels and roles 26:24 - Flare reads & closing remarks The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.…

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Invisible Not Broken - Chronic Illness Podcast Network « » Navigating Creativity with MCAD, Interstitial Cystitis, and Fibromyalgia: Sarah Bigham

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Navigating Creativity with MCAD, Interstitial Cystitis, and Fibromyalgia: Sarah Bigham

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Navigating Creativity with MCAD, Interstitial Cystitis, and Fibromyalgia: Sarah Bigham